Who me ?
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One of those I'm awake and the thoughts won't go away mornings .
I will ask the doc when I see her next, but can any of you tell me when, or if, you stop thinking "is it going to come back ?" Theoretically I have nothing right now. Chemo and herceptin are insurance policies against possibles in the future - but that means there IS a possible. And I can't shake it, I can't make it go away. Driving me crazy. I imagine every twinge, every tummy rumble, every headache - is something awful.
Dumb as eh ? Haven't even finished treatment.
Just focus, concentrate on the NOW.
Sometimes it's too hard.
Keitha
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Hi Keitha
Congratulations on Look Good.. Feel Good... and well.. the hair
I lost my hair many moons ago.. and to be quite honest I really don't miss it all that much... as women we place so much emphasis on our hair that sometimes I think we forget who we really are... my hair is starting to grow back now and early indications are that it will be white (I'm only 46) and I really don't care... my energies are focused on getting better.....
As you said... there's no point in being anxious.. it's all part of 'the journey'..
take care
Trina
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Indeed , you are quite right. I am not my hair and I hope that others will be able to see past whatever I happen to have on my head on any given day, and that I'm still ME.
I suspect mine will be totally white when it comes back, I'm very grey now but I've always had foils in a range of mixed shades. It will be quite an experiment to see how I look without the colour and then start from a plain base as it were !
Look on the bright side, thanks Trina !!
magicmum
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Today was OK again. No reactions to the infusion - yayy! And the lady opposite me came to ask where I had got my lovely hat, which was given to me by a friend who bought it in Paris - yes, France - but thought it didn;t really suit her. It's purple and quite unusual. I am determined to have interesting hats.
I am having my wig customised on Thursday - I have to work that evening so I plan to look fabulous. I reckon I'll save it for work, I am quite enjoying the hats during the day. There are so many more around these days so it's not feeling odd at all. And certainly keeps my head warm in this cold Tassie winter.
Here's hoping this round doesn't end up with mulitple migraines and the god-awful heartburn. I am taking slippery elm (thanks girls) and also Somac as a preventer for indigestion. And I'm trialling an AD for migraine prophylaxis. You never know. One of the side effects is drowsiness, and you take it at night so YES PLEASE, any sleep help will be great.
Will try to get a wig and a hat pic to post asap so you can let me know how it looks.
magicmum
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What do you think of my new do ? I wore it for the first time to work last night and today,and everyone made very positive comments. None of the patrons looked sideways at me so I'm guessing it must look natural enough. I spose it'sonly cos I know it;s not real - makes me self conscious.
Anyway I'm only wearing it for work - it feels weird and a little claustrophobic. Hats will be fine most of the time.
magicmum
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Hi Keitha
The wig looks great but there is one thing missing - your beautiful smile! Maybe you need to post a fresh pic ;-) It looks great. I wear "Coco" only when i really need to and have limited it to a couple of hours at most just to start with as I find it a little tight on my head - its probably not as tight as I imagine but I still have bristles on the back of my neck that tend to prickle when I turn my head around. I do feel self concious, too but all my friends tell me they would never have known if I hadnt told them. They are used to me changing my hair colour and style on a regular basis.
I found a cute little soft wool beanie at the clinic the other day. They are made and donated by a group called "Grannies in stitches". I found one in my favourite colours and that is my preference most of the time. I call that one "fluffy". When I am at home I go "au naturale" - its much warmer here than you're end of Australia :-) Good on you for still making it to work - you are inspirational! I cant even contemplate the idea of dealing with all this and going to work just yet.... Well done!
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Hi Keitha
The wig looks great but there is one thing missing - your beautiful smile! Maybe you need to post a fresh pic ;-) It looks great. I wear "Coco" only when i really need to and have limited it to a couple of hours at most just to start with as I find it a little tight on my head - its probably not as tight as I imagine but I still have bristles on the back of my neck that tend to prickle when I turn my head around. I do feel self concious, too but all my friends tell me they would never have known if I hadnt told them. They are used to me changing my hair colour and style on a regular basis.
I found a cute little soft wool beanie at the clinic the other day. They are made and donated by a group called "Grannies in stitches". I found one in my favourite colours and that is my preference most of the time. I call that one "fluffy". When I am at home I go "au naturale" - its much warmer here than you're end of Australia :-) Good on you for still making it to work - you are inspirational! I cant even contemplate the idea of dealing with all this and going to work just yet.... Well done!
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My husband has promised to take another one in daylight - with a smile ! I always manage to look grim in pics :P That was taken after work the first time I wore it.
I know what you mean about the "tight" feeling. I can only do it for about 3 hrs. Rest of the time my lovely hats are just comfy and fine. My friend who promised to make me some stylish ones is still procrastinating !! But hopefully I will have a good range soon.
I have one lovelysoft woollen one I prefer at home, so cosy. Actually looks a bit like a tea cosy but I don't care!!!
I amlucky in that I can go towork or not as I choose - it's casual - and I quite enjoy it, makes the time pass. Been feeling very tired after this second cycle, sleeping heaps, so I spose that's good.
Take special care of yourself.
magicmum
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My husband has promised to take another one in daylight - with a smile ! I always manage to look grim in pics :P That was taken after work the first time I wore it.
I know what you mean about the "tight" feeling. I can only do it for about 3 hrs. Rest of the time my lovely hats are just comfy and fine. My friend who promised to make me some stylish ones is still procrastinating !! But hopefully I will have a good range soon.
I have one lovelysoft woollen one I prefer at home, so cosy. Actually looks a bit like a tea cosy but I don't care!!!
I amlucky in that I can go towork or not as I choose - it's casual - and I quite enjoy it, makes the time pass. Been feeling very tired after this second cycle, sleeping heaps, so I spose that's good.
Take special care of yourself.
magicmum
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Hi Magicmum
You look fabulous. It suits you heaps.
Mine is still sitting in it's stand, not used yet. I just can't find he courage to wear it yet. And besides having shingles the other week on my head was a definite no no to wig or any hats etc....
Great to hear that you are doing a few hours of work. Me to, I do about 15-20 hours a week. Body can't do much more than that at the moment.
Anyway , take care a and keep us posted.
Love Julie xx0 -
Hi Magicmum
You look fabulous. It suits you heaps.
Mine is still sitting in it's stand, not used yet. I just can't find he courage to wear it yet. And besides having shingles the other week on my head was a definite no no to wig or any hats etc....
Great to hear that you are doing a few hours of work. Me to, I do about 15-20 hours a week. Body can't do much more than that at the moment.
Anyway , take care a and keep us posted.
Love Julie xx0 -
Thanks for that - I told the hairdresser that I needed to look fabulous for the first time at work with my new do. And she came up trumps.
Keitha
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I have discovered that I just LOVE tinned spaghetti ! There are so many things that I normally love that just don't taste right and I don't want them - but a little tin of spaghetti and a piece of hot toast just fits the bill perfectly. It's prob not particularly nutritious but I don't care about that. I'm trying to eat veg and fruit to keep my tummy working, and struggling to keep a good amount of fluid going down - just don't want that either. Although last night I started a can of lemonade and that was quite nice, it's even nice today a bit flat. Gradullay I'll find the things I can actually enjoy the taste of - I just wish it was cappuccino !!!!! Still can't enjoy my coffee
On a really up note - I have had NO HEADACHES this cycle, it's amazingly awesome !!!! The preventer my doc found is working a treat I am so thrilled. Going to be taking that for the rest of mylife - no more migraines, yayy !!!!!!
Keep on keeping on girls
magicmum
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Rats - headache today. Not too bad though, just sleeping it off. But I feel SOO weary, maybe have to watch how much work I can actually do. When I'm feeling good I just go in as normal - hmmmm, perhaps that's what has caused this headache.
Or else it's just I'm at the 10 day low point and things will be good from now ! Let'sgo with that.
magicmum
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Rats. My husband caught a cold and he tried SO hard to stay away - sleeping on the sofa, isolating himself and his germs - but I got it. It's now moved into a sort of bronchial cough so my onc says go to the GP and make sure it's not bacterial yet.
I'm making my h go too, he has "man flu" of course so it may be ok but he had pleurisy once so his chest is inclined to be a bit weak. Better to be safe - and he didn't have a flu shot this year, I TOLD him it would be a mistake.
Apart from that still feeling ok, although constipation is this cycle's feature !! Have to hit some Senna tonight I think, can't be much room left !
Hope you journeys are all progressing - one step at a time girls, we'll get to the finish line in the end. Wouldn't it be good if there was a magic way to meet everyone you've "met" on this site ? I feel I have so many new friends.
much love and keep on keeping on
magicmum
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