Friday Update - 23rd February 2024
Mez_BCNA
Administrator, Staff, Member, Moderator Posts: 1,131 ✭
Welcome to the latest Friday update!
We are still thrilled about the roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced by Prime Minister Anthony Albanese to fund a cancer data alliance. In this update I will include the information related to this important development, in addition to support and information available to those diagnosed with metastatic breast cancer.
Community Highlights
February Activity
February so far has seen 63 new discussions; 501 new comments and 15,725 visits to the community.
Popular Forum Discussions
If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below:Posts by 'Category Name' 01 - 20 Feb 2024
Community News
Counting people with metastatic breast cancer: a step closer
The following My Journey articles can be helpful for someone newly diagnosed with Metastatic Breast Cancer:
You can also watch BCNA’s Webcast: Just diagnosed with metastatic breast cancer - what’s next? and listen to Dr. Charlotte Tottman speak at one of BCNA’s forums about the Emotional impacts of metastatic breast cancer
BCNA welcomes new Peta Murphy Breast Imaging Suite at Frankston Hospital
Thousands of people in Frankston and broader Mornington Peninsula communities will have access to comprehensive public diagnostic breast imaging at the new Peta Murphy Breast Imaging Suite at Frankston Hospital. Read further via the link BCNA welcomes new Peta Murphy Breast Imaging Suite at Frankston HospitalLiving well with and beyond breast cancer
‘Living well with and beyond breast cancer’ is the theme of BCNA’s third year of our Policy and Advocacy Strategic Plan: Towards 2025.
BCNA has a plethora of resources – including engaging podcasts and webcasts featuring cancer experts in health and wellbeing.
As part of this strategy, we have updated many of our exercise and wellbeing resources, including:
· BCNA’s Strengthen Your Recovery Pilates Program, a generalised program for people who need to maintain their physical wellbeing during their breast cancer treatment.
· Physical Preparation and Recovery After Breast Reconstruction is a program developed with Breast Research Australia and the University of Wollongong. This program covers pre-and post-surgery videos, a podcast and a webcast with four health professionals
· Exercise is Annoying (‘cos it works) podcast by clinical psychologist Dr Charlotte Tottman.
· Food and Movement When Living with Metastatic Breast Cancer webcast with exercise physiologist Dr Eva Zopf, dietitian Erynn Sotirelis, BCNA member Laura Yammouni and BCNA Consumer Representative Lisa Tobin.
Carman's Fun Run 2024
Thankyou to everyone who attended and supported Carman's Fun Run over the weekend. It was our biggest fun run yet and the power of pink was on full display! With your support, BCNA has raised over $285,000 through Carman's Fun Run this year, and the donations are still coming in!
Canteen Connect
We have plenty of you connected with young people in your life in one way or another. Canteen is an Australian not-for-profit that provides free and tailored support to young people aged 12-25 who are impacted by cancer. Whether they are dealing with their own diagnosis, a close family member’s cancer or the death of a loved one.A recent evaluation of Canteen's online community Canteen Connect showed improved psychological wellbeing, highlighting the platform's significance in addressing psychosocial impacts and fostering peer connections during the cancer journey. Watch the video to learn more
Breast Cancer Trials Q&A - Breast Cancer and Fertility (Recording available)
The recording is now available for Breast Cancer Trials latest Q&A session where experts discuss the latest in fertility preservation options for breast cancer patients, informed decision making and fertility decision aids. Watch via the link Q&A
Event - Breast Cancer and Fertility (breastcancertrials.org.au)
BCNA Forums/Webcasts
Forum - Murray Bridge SA
Breast Cancer Network Australia (BCNA) is heading to Murray Bridge, South Australia as part of our national Information Forum series. We are bringing leading experts to the local community to provide insights on a range of breast cancer topics. We extend an invitation to anyone located in or around Murray Bridge to join us on Wednesday 6 March for this fantastic day full of information and getting to connect with others in the area! REGISTER
HERE
Books/Movies/TV Series/Documentaries
This book has recently been added to My Journey:
One Man's Journey Through Breast Cancer - Ron Gordon
Following a diagnosis of breast cancer, Ron Gordon used photography to tell his experience of male breast cancer. He held an exhibition of his work in 2014 and followed with up with a publication of his photography in a book.
Ron has very kindly donated an updated PDF version of his book, as a gift for men diagnosed with breast cancer. To receive access to the PDF, contact BCNA Helpline on 1800 500 258 or email helpline@bcna.org.au
Hope you enjoyed the update and if you have any feedback please feel free to comment below or send a private message.
The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA
If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au
"Life is so fragile and time is so precious" - Ron Gordon
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