CEO Update - Kirsten Pilatti - Nov25
Dear Online Network community, As we approach the summer and holiday season, I want to take a moment to check in with you all and highlight some of the important campaigns and support services BCNA offers. 👀 October was a month of pride and purpose as we launched our new Know Yourself. Feel Yourself. breast awareness campaign. It was important that we could harness the passion and experiences of our network to help rebuild confidence among young women. While awareness of breast cancer may be high, we now need the Australian community to move from awareness to action. I loved being at Bondi Beach, where hundreds of women stepped into our mirrored booths to learn how to check their breasts with confidence. The energy, connection, and courage on display were truly inspiring. If you haven’t already watched our new educational video, I encourage you to do so - and please share it with your friends, family, and networks. You are our best champions for helping spread this life-saving message. 🏃 Looking ahead, we’re all limbering up for one of BCNA’s biggest events of the year—Carman’s Fun Run in Melbourne. Join me and thousands of runners, walkers, and joggers as we take on 5km, 10km, or the half marathon! It’s a great way to kick off the new year, do something positive for yourself, and raise vital funds to support people affected by breast cancer. You can register here. 👉 Don't forget that we are here for you - we know that many medical services close during this time, which can be particularly challenging for those undergoing treatment. We want to ensure that anyone affected by breast cancer knows support is available including My Journey and My Care Kit. You are all familiar with our incredible Online Network community. When we completed our member experience survey last year, we heard that many people know we are here for when you are first diagnosed but didn’t realise the resources and support we have when people are through those difficult first few months – so I would love you to tell me..... 💬 What is your favourite BCNA information page, video, podcast that has helped and why? As always, please reach out to our helpline if you need anything at all - 1800 500 258 9am-5pm AEDT - we are here and together we are stronger ❤️ Cheers KP Kirsten Pilatti, CEO, BCNA📊 The numbers are out.
Australia continues to lead globally in breast cancer survival rates. The latest 2025 data reveals: ❣️ Five-year survival has risen to 93% (up from 75% in 1987–1991). ❣️ In 2025, around 20,336 people will be diagnosed with breast cancer, including 207 men. ❣️ Breast cancer remains the most common cancer in Australian women, making up 27% of all new cases. ❣️ The average age of diagnosis is 62, with 80% of cases occurring in women over 50. ❣️ Metastatic breast cancer remains undercounted, but estimates suggest up to 16,000 people are living with it in NSW, Victoria, and Queensland. BCNA continues to advocate for national data collection. These statistics highlight both progress and ongoing challenges in breast cancer care and support. Most importantly, they remind us of the big picture behind our WHY - together we work to improve these numbers year on year. 👉 Click here to read more and download the infographic.In admiration and tribute to one of our community champions - Amber Whalan.
In admiration and tribute to one of our community champions - Amber Whalan. Mum to Ollie (14), Hazel (12) and Chase (10), a loved daughter, sister, friend and mad Dee’s supporter. Amber died yesterday, aged 38. These are always the days that bring our disease into reality for us all. Her words will continue to have an impact and make a difference. Her story connected with so many people across our Network. We know that sharing your experience is not always easy but certainly sends a message of strength to our community. We are forever grateful for the role Amber played and how her legacy will live on. "BCNA reminded me that seeking help isn’t a weakness. It’s a form of strength. And in a world where cancer can make you feel like you’re fighting alone, finding a network that gently says, “We’re here. We get it. And we’re not going anywhere,” can mean everything” - Vale Amber. If you or someone you know has been affected by breast cancer or cares for someone with a diagnosis, support is available. Contact the BCNA Helpline on 1800 500 258.🎊 We’re delighted to welcome Christina to the BCNA team! 🎊
We’re very pleased to officially announce that Christina_BCNA has joined the BCNA Online Network team as our newest moderator! Don't panic! Christina is here to be a wonderful addition to our team - the current BCNA mods you know and love are all still here. While the rest of our team continues to support you over the helpline phones, Christina is here as a dedicated presence in the Online Network, helping to nurture connection, conversation, and care within our digital community. Christina is passionate about creating safe, inclusive spaces where people feel supported, heard, and connected. As a moderator, she’ll be helping to guide discussions, offer encouragement, and ensure our network remains a welcoming, respectful and active environment for everyone at all times. You may have noticed a few changes to the Online Network group pages recently, like updated page content, new groups like DCIS and the public Breast cancer awareness group, as well as new forums like Policy & advocacy and new initiatives like our Wednesday Wellness check ins. These are just some changes Christina has been busy making behind-the-scenes as part of her mission to ensure BCNA's Online Network remains an updated, active and impactful space. This is all part of our ongoing campaign to show how much we truly care and invest in our members in the Online Network—because we know how important it is to you. Stay tuned for more exciting updates, deeper connections, and positive energy as we continue to nurture and grow BCNA's Online Network. We’re thrilled to have Christina_BCNA on board and can’t wait for you to get to know her! 💗 Please do reach out and say hello - we know she'd love to hear from you.✨Wednesday Wellness Check-In
It's time for a Wednesday Wellness check in... 🌸 WELCOME TO SPRING! It’s been a chilly winter, hasn’t it? The kind that makes you want to stay wrapped in a blanket with a warm cuppa. But with spring just around the corner, we’re starting to feel those little hints of warmth and light — and it’s giving us something to look forward to 🌸 Today, we’re checking in on wellness — whatever that looks like for you right now. Maybe it’s a moment of peace, a good laugh, a walk in the sun, or just getting through the day. Big or small, it all counts. 🏃 CARMEN'S FUN RUN Are you in Sydney and looking for some fun in the sun? Following its overwhelming success in Melbourne, Carman’s Fun Run is launching its inaugural Sydney event on Sunday 21 September 2025. In collaboration with Sole Motive and Carman’s Kitchen, we invite you to join us for an unforgettable, pink-filled day at Metcalfe Park, Pyrmont. Walk, jog or run 5km, 10km or 21.1km and make it count by raising funds to help Australians affected by breast cancer. Secure your spot now and help us turn the Harbour City PINK! Read more and register via the link Carman’s Fun Run 2025 - Sydney 💻 NETWORK ACCESS UPDATE We know there have been some glitches lately on this Online Network, and we just wanted to say a big thank you for hanging in there with us. We really appreciate your patience while we work through these technical issues — we know how important this space is for connection and support. Our team is on it and doing everything we can to get things back to normal as soon as possible. We’ll keep you posted with any updates, and in the meantime, if you’re having trouble or need a hand, please reach out — we’re here to help 💗 Thanks again for your understanding and kindness — it means so much to us and to this amazing community. If you’re just joining us, we encourage you to explore the forums Get started here introduce yourself, or simply read along. And if you’ve been with us for a while, thank you for continuing to support others. Warmly, BCNA ModsPink Lady Match - 2025
Pink Lady Match is back, and tickets are on sale now! 🏉 Join us at the MCG on Sunday 10 August to watch Melbourne Football Club take on the Western Bulldogs (match time 3.20pm) Buy your ticket to the Pink Lady Bay via the link Pink Lady Match where 100% of ticket sales go directly to BCNA. All Pink Lady Bay seats include your choice of all new BCNA beanie! See you at the ‘G 💗 If you cant be there in person - show your support buy buying your place in the virtual pink lady.Friday Update - 1st August 2025
Hello and welcome to our Friday Update! Whether you’re new to the BCNA Online Network or a long-time member, we’re so glad you’re here. This safe space built on connection, understanding, and shared experience. Last month, we’ve seen powerful conversations, and practical advice shared across the community. From navigating treatment side effects to finding emotional support, your contributions continue to make this network a safe and empowering place for all. If you’re just joining us, we encourage you to explore the forums Get started here introduce yourself, or simply read along. And if you’ve been with us for a while, thank you for continuing to support others. 💬 Trending Online Network Discussions – July 2025 Bone and join pain side effects of chemotherapy Offering practical advice and emotional support for those newly starting chemotherapy treatment. From bad to worse, but getting better. Metastatic breast cancer (MBC) after previously having early-stage cancer. Kindly sharing story with the community, sparking conversation and shared experiences. Implant or Autologous Flap? Exploring reconstruction options post-mastectomy, with members sharing their experiences with implants versus DIEP flap procedures. WHO do I tell? Emotional challenges of disclosing diagnosis to loved ones. Members sharing advice on navigating conversations with family and friends. Letting go of blame - WHY did I get cancer? Inspired by a BCNA podcast, this discussion sparks meaningful dialogue about emotional healing and self-compassion. 🌟 BCNA Highlights – July 2025 Expanding the ‘Seat At The Table’ Program BCNA continued to grow its internationally recognised Consumer Representative Program Seat at the Table program , empowering people with lived experience to influence cancer research, policy, and care. This initiative ensures that real voices shape decisions that affect breast cancer patients nationwide. BCNA Consumer Representative Kym shares what she thinks Do you think it’s important that those with lived experience are involved in research? Global Advocacy for Metastatic Breast Cancer BCNA joined forces with Breast Cancer Now (UK) and Rethink Breast Cancer (Canada) at the Australian High Commission in London to launch a joint advocacy pledge. The united call to action urges governments and health systems worldwide to count and recognise people living with metastatic breast cancer; a critical step toward improving care, visibility, and support. Watch Together for visibility, equity, and support! Exciting News! BCNA is proud to welcome Red Energy as our inaugural Principal Partner. This partnership marks a significant milestone in our mission to support all Australians affected by breast cancer. Together, we’re powering hope, connection, and change. Stay tuned for more on how this collaboration will make a meaningful impact. Male Breast Cancer Awareness In November 2024, Martin noticed signs that something was wrong with his health. Read his story via the link Humbled by the love and support 📅 BCNA Events BCNA Pink Lady Match – Sunday 10 August 2025 Join BCNA and major partner Red Energy at the Melbourne Cricket Ground (MCG) as the Melbourne Demons take on the Western Bulldogs in support of Australians affected by breast cancer. Watch video Pink Lady Match is back, and tickets are on sale now Event Schedule 1:30 PM – BCNA Tribute Field opens in Yarra Park 1:30 PM – BCNA merchandise available outside Gate 1 and between Gates 5–6 2:00 PM – MCG gates open; attendees take seats for entertainment and pre-match ceremony 3:00 PM – Players enter the field 3:20 PM – Match begins Carman’s Fun Run Sydney– Sunday 21 September 2025 🏃♀️ Location: Metcalfe Park, Pyrmont, Sydney Time: 6:00 AM – 1:00 PM AEDT Event Options Half Marathon (21.1K) – Wave A: 7:15 AM | Wave B: 7:20 AM 10K & 5K Runs – Waves start from 9:00 AM Pink Lady 5K Walk – Starts at 10:15 AM Read more and register via the link Carman’s Fun Run 2025 - Sydney That’s a Wrap! Thank you for joining us for another month of connection, support, and shared strength in the BCNA Online Network. If you have any questions, concerns, or feedback, please don’t hesitate to reach out to our moderators via BCNA_Mod or email helpline@bcna.org.au . We’re here to help and always happy to hear from you. Until next time, take care and stay connected! BCNA_Mod TeamCount Us In. From Australia to the world: Leading the push for global metastatic breast cancer visibility
BCNA has teamed up with global partners to launch a powerful new pledge calling for visibility and support for people living with metastatic breast cancer (MBC). The message? Just because MBC is incurable doesn’t mean people should be invisible. This global push—unveiled at Australia House in London—brings together voices from Australia, the UK, and Canada, demanding better data, recognition, and care for those living with MBC. It’s a bold step toward making sure no one is left out of the picture when it comes to cancer care. Read the full media release via the link Count Us In. From Australia to the world: Leading the push for global metastatic breast cancer visibilityFinally counted: A milestone for Victorians living with metastatic breast cancer
For the first time, Victoria has counted everyone living with metastatic breast cancer in the state, marking a major step forward for visibility, recognition, and support. New data released by the Victorian Cancer Registry (VCR) estimates that 4,461 Victorians are living with metastatic breast cancer, making them visible in the health system and ensuring their needs can are not overlooked. This achievement is the result of decades of consumer-led advocacy by Breast Cancer Network Australia (BCNA), collaboration with the Victorian Cancer Registry and Cancer Council Victoria, and the determination of women living with metastatic breast cancer who have long called for change. Read more via the link Finally counted: A milestone for Victorians living with metastatic breast cancerWelcome New Members - 20th June 2025
Welcome to members who recently joined our community! We hope you are connecting with others and finding support. riverflows BWG shroomietornado Newsusuau JamieM M0nP Jojo167 Nichola67 Squish BaggyPants33 HardDecisions Wilson09 Jess_ica BrissyGirl Michelle666 Chk2025 Charles6 Morag kat06 eberk BrisKate Shittingmypants Annie8 Duck2 grungle Fran6244 HopefulKind Swallow shez29 Nsin Bron77 PSR flatout Megs33 Libby52 Gailae71 Rosemary_C Dappermongrel Mat Tigers1962 Lana1 Amorrison Steph19 Mummamia22 MayaClaire Rona2302 Ksmith19 VeraRose26 KateCr mountains94 penlou Kate_M EddieC Klio Frances1 bcjourney Annie2025 31breastca Boy-Mum Salmax Forgetful_Lucy neene38 Juan nesssie31 NatR LokiLambchop Kp1111 Niks74 Cathy1 D69 Dunney Roz67 sabrinaperri This forum is a supportive space where you can connect with generous members who provide meaningful support to each other. Share as much or as little as you feel comfortable with. Explore our various groups for greater peer-to-peer support. Helpful Links to Get You Started: How to start a discussion About BCNA's Online Network Check out our private groups! BCNA Online Network Groups Community Guidelines New breast cancer diagnosis? Read Living with DCIS, LCIS or early breast cancer Listen to BCNA's podcasts: Upfront About Breast Cancer: Just Diagnosed - What's Next? What You Don't Know Until You Do Metastatic Breast Cancer Diagnosis? Watch Just diagnosed with metastatic breast cancer - what's next? Get the Most Out of Our Community: Our long-time members (and newbies too!) are a wealth of information. Don't hesitate to post your questions. You can also update your profile with details about yourself, such as your breast cancer experience and where you live (e.g., Sydney, Melbourne, Regional Victoria) for more targeted responses. You may like to check some of our more light-hearted discussion threads while you are here: Friday Funnies Wise words Creative Corner! Our Gardens Need Help? Message BCNA_Mod or one of our other moderators: Daina_BCNA Mez_BCNA Astrida_BCNA Risha_BCNA Denise_BCNA . You can also contact BCNA's Helpline Manager Kate_BCNA Please Note: Please be aware that your posts and comments in the public discussions and public groups can be found and read by anyone, including those who are not members of the network. This means that what you share in a public discussion or public group may be read by a wider audience, please consider this when sharing sensitive or personal details. The Online Network is not moderated by staff/volunteers on weekends. For urgent queries, contact the Helpline Team via email at helpline@bcna.org.au or phone 1800 500 258, Monday to Friday, 9:00am-5:00pm AEST.
