Friday Update - 12th July 2024
Welcome to the latest Friday Update! This week is NAIDOC week (National Aboriginal and Islanders Day Observance Committee) and celebrates the history, culture and achievements of Aboriginal and Torres Strait Islander peoples. Therefore we will again highlight BCNA's information and support for our First Peoples. Last month we had the Pink Lady Match at the MCG, of which we will share great images from the event. We will also share where you can watch our information forums online; the latest Policy & Advocacy news and more! Enjoy with you warm cuppa :) Community Highlights June Activity June saw 89 new members; 69 new discussions; 489 new comments and 11,906 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Struggling through Chemo chemo or no chemo 38yo solo mama, what is happening?! Dizzy turns - BC Trip Negative diagnosed July 2019 Doesn't get any easier Posts by 'Category Name' 1-30 June 2024 Community News Pink Lady Match - More than a Game The power of connection was on full display last Saturday night at the MCG with almost 30,000 fans attending to support Melbourne Football Club and North Melbourne Football Club in the 2024 Pink Lady Match, thanks to our major partner Red Energy. Our Mini-Field of Women tribute outside the ground and light up display from partners Opal ANZ and Red Energy, welcomed fans to the ground before filling the Pink Lady Bays with a sea of pink beanies, scarves and ponchos. BCNA is thrilled to announce that over $165,000 was raised from PLAY4BCNA beanie sales and Virtual Pink Lady donations which will ensure BCNA can continue to provide vital support for the more than 20,000 Australians diagnosed with breast cancer this year. Check out the short video captured of the day https://spaces.hightail.com/receive/wYbO3ZsXF7 Did you know that BCNA advocates to reduce the cost of new breast cancer drugs? In the last three years we have supported over 15 submissions to campaign for these expensive breast cancer drugs to be put on the Pharmaceutical Benefits Scheme (PBS) so that they are more affordable In April we welcomed a decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the life prolonging breast cancer drug Enhertu (trastuzumab deruxtecan) for government subsidy on the PBS for HER2-low metastatic breast cancer. Lynparza (olaparib) has recently been listed on the PBS for HER-2 negative early breast cancer with a confirmed BRCA mutation. Last year, BCNA advocated strongly for Lynparza’s subsidy as an important treatment option to help reduce the risk of breast cancer coming back after treatment for people who are at especially high risk of recurrence. BCNA remains committed to advocating for Lynparza’s subsidy for metastatic breast cancer patients. If you need support navigating your breast cancer treatment, call our Helpline on 1800 500 258. BCNA Podcast: What you Don't Know Until You Do UNLIMITED - "No" is a sentence (Boundary setting) EP8 After a cancer diagnosis and treatment, you often discover you are not able to operate at the same level as you did pre-cancer - physically, cognitively, or emotionally. In episode 8 of Upfront – What You Don’t Know Until You Do: Unlimited, Clinical Psychologist Dr Charlotte Tottman explains the importance of boundary setting in self-care, particularly in relation to the challenges in continuing to care for loved ones while navigating a cancer experience, and the role of guilt in this. We learn about how to identify your limits and act on them, communicate to others and ourselves, and how to identify alternative helpful activities and prioritise them Listen Here Providing the consumer voice in breast cancer research BCNA again celebrates the important role trained Consumer Representatives (CRs) play in ensuring the consumer voice is included in breast cancer research. CR Kathy Bell contributed to the study: Pioneering lower-dose combination treatments for breast cancer, one of 19 breast cancer research projects to receive a National Breast Cancer Foundation (NBCF) research grant. The study led by Associate Professor Lan Nguyen at Monash University will use an innovative approach to address the challenges posed by breast cancers resistant to PI3K targeting drugs. If you have a lived experience of breast cancer and would like to take part in studies and projects that aim to improve outcomes for others diagnosed, we invite you to join Review and Survey Group via the form below. You can find out more about the study and join the Review and Survey Group via the link Join the Review & Survey Group BCNA information for First Peoples Breast cancer is the most commonly diagnosed cancer in First Nations’ women. If you are one of these women, or know one of these women, BCNA has information in different formats to help support you during treatment and beyond. The information was developed with significant input from consumers through BCNA’s First Peoples Advisory Group. Read more about Information for First Peoples https://bcna.org.au/resource-hub/articles/information-for-first-peoples/ resources via the BCNA website. We have a private group right here through the Online Network First Peoples You can also visit Cancer Australia’s Our Mob and Cancer for information and resources for First Peoples diagnosed with cancer. BCNA Forums/Webcasts Where can you watch BCNA Forums? This year BCNA have held forums in South Australia (Murray Bridge), Tasmania (Devonport/Hobart) and Victoria (Shepparton). If you would like to find out more about the content presented in our forums, you can head to our YouTube Playlist to watch various location recordings: https://www.youtube.com/@BCNetworkAustralia/playlists Books/Movies/TV Series/Documentaries Women from First Peoples communities across Australia talk about why it’s important to look to your community, including friends and family, for strength and connection and how speaking to others who have had similar experiences can help you. We recommend you take care when watching this video as some people may find the content upsetting. The people featured in this video are sharing their own unscripted personal stories. This is not intended to replace medical or professional advice. This video was made with support from Cancer Australia through the Supporting Women in Rural Areas Diagnosed With Breast Cancer program. Published in 2022. https://youtu.be/1d5ShdMSS8E Enjoy and if you have any feedback please feel free to comment below or send a private message. The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au "We are all visitors to this time, this place. We are just passing through. Our purpose here to observe, to learn, to grow, to love... and then we return home." - Australian Aboriginal ProverbFriday Update (On Tuesday!) - 18th June 2024
Hello members new, old and in between :) Well, it has been some time since I crammed in an update for you all (apologies) and Tuesday is just as good a day as any right? During the month of May BCNA had another very successful Pink Bun campaign and our webcast 'Let's cut through all the hype! Why exercise?' was a hit! As we head into June we have the Pink Lady Match at the MCG in support of breast cancer and we are also heading to Shepparton for our information forum. All of these details are provided in the update - enjoy! Hope you are all rugging up as we adjust to the winter air. You may like to read Cancer Council QLD's article Ward off the winter blues: five tips to stay on top of your health this winter Community Highlights May Activity May saw 79 new discussions; 674 new comments and 16,507 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Struggling through Chemo Anxious Newly Diagnosed Old habits die hard Friday Funnies After 13 years and 2 diagnoses today the biggest celebration yet... Posts by 'Category Name' 1- 31 May 2024 Community News Taking the pulse on our members' experience with BCNA We wanted to find out if BCNA’s information and support services—including our Helpline, Online Network, website, podcasts, and webcasts—are meeting the needs of our members. Late last year we sent out a member experience survey asking how we can improve the support we provide to people living with and beyond breast cancer Read further details here Thankyou! 2024 Pink Bun Campaign Wrap BCNA gratefully extend a heartfelt thank you to our foundation partner Bakers Delight, along with every person who purchased Fun Buns or made a donation in-store between May 9-29. It is you who made the 2024 Pink Bun campaign a huge success! With your help, Bakers Delight has raised an incredible $2 million, which will go directly to help Breast Cancer Network Australia support all Australians affected by breast cancer. I personally was honoured to be part of this years campaign and stand beside Sam as she bravely told her story. We need to talk about metastatic breast cancer - BCNA's new media guide 6 June 2024 Breast Cancer Network Australia (BCNA) – Australia’s leading voice for people affected by breast cancer – has released a media guide on how to talk about metastatic breast cancer. BCNA’s Director of Policy, Advocacy and Support Services Vicki Durston said she hoped the guide would help journalists, among others, when covering stories about metastatic breast cancer, and breast cancer more generally. Read the media release via the link BCNA’s new metastatic breast cancer guide and view the Media Guide BCNA Podcast - What you Don't Know Until You Do UNLIMITED "The view from the other side of the bed: the partner's perspective" EP7 If you haven't yet stumbled across Dr Charlotte Tottman's wonderful podcase series, I'm sure our Online Network members tell you its worth a listen. In our socials channel highlight recently that talks to a partner's perspective of their loved one's diagnosis Listen Here Pink Lady Match - This weekend! (21st June) Tickets are now on sale, so please help BCNA 'pink up' the game and show support for every Australian affected by breast cancer. If you can't make it to the game, please do show your support from afar by purchasing a virtual pink lady or a BCNA beanie. Visit the link https://www.pinkladymatch.com.au/ for tickets and merchandise today. BCNA Forums/Webcasts Forums - Attend our next event in-person (Shepparton, Vic) or online! Wednesday 26 June 2024 Breast Cancer Network Australia (BCNA) is heading to Shepparton, Victoria, as part of our national Information Forum series. We are bringing leading experts to the local community to provide insights on a range of breast cancer topics Register Here Webcasts On Wednesday 22 May we held BCNA’s webcast Let’s cut through all the hype! Why exercise? We were thrilled to have Lauren Whiting, Founder and CEO of Lift Cancer Care Services and trained Oncology Physiotherapist present on the night. Lauren spoke about the many benefits of getting regular exercise for anyone who has been recently diagnosed or who is living with or after a breast cancer diagnosis. She also talked through simple and practical ways exercise can be implemented in the comfort of your home, where to seek information and resources on exercise and how to access support from professionals like an exercise physiologist. We were also joined by two BCNA Consumer Representatives, Dr Andrea Smith and Dr Naama Carlin, sharing their experience with exercise and what it looks like for them. The on-demand recording of this webcast can be viewed below: https://www.youtube.com/watch?v=ACwFpR1M32Q Books/Movies/TV Series/Documentaries As mentioned in this update, I was very honoured to represent the Helpline team to work with our ambassador Sam in this year's Pink Bun Campaign (You know I plugged the Online Network of course!). Check out Sam's story below: https://youtu.be/id0jc-6r_DI Enjoy and if you have any feedback please feel free to comment below or send a private message. The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au "You may find that making a difference for others makes the biggest difference in you." - Brian WilliamsFriday Update - 3rd May 2024
Welcome to May! This month is always busy for BCNA with the launch of the Pink Bun Campaign (9-29 May), where 100% of Fun Bun sales go directly to BCNA. We also see many wonderful Pink Sports Day events happening around Australia; turning PINK is a great way for clubs, associations and schools to create awareness and show support for the families in their local community affected by breast cancer. There has also been plenty of important media in relation to breast cancer related drugs and the Pharmaceutical Benefits Scheme (PBS), which we will share below. Enjoy the update. Community Highlights April Activity April saw 59 new discussions; 443 new comments and 13,119 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Exchange Surgery and 4th Cancerversary 💗 Wise words .... Feeling cold all the time tip or tricks on getting through radiation? Boob farewell? Posts by 'Category Name' 1 - 20 April 2024 Community News BCNA News - Life prolonging breast cancer drug recommended for PBS subsidy, but it is not to celebrate Breast Cancer Network Australia (BCNA) last week welcomed a decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the life prolonging breast cancer drug Enhertu (trastuzumab deruxtecan) for government subsidy on the Pharmaceutical Benefits Scheme (PBS) for HER2-low metastatic breast cancer. However, BCNA Director of Policy, Advocacy & Support Services, Vicki Durston, said that we are not yet able to celebrate because the drug remains out of reach to thousands who need it. This is because the pharmaceutical company AstraZeneca refuses to increase access by lowering the price of its Patient Access Program (PAP) for Enhertu Read Further Details Here BCNA News - Transformative funding for Australian medical research must centre people with a lived experience Medical research achieves much greater outcomes if people with lived experience are involved in its design and implementation, according to Breast Cancer Network Australia (BCNA) – Australia’s leading breast cancer consumer organisation. Welcoming the Australian Government’s $1.89 billion Health Research for a Future Made in Australia funding package, BCNA Director of Policy, Advocacy & Support Services Vicki Durston said involving consumers means that Australian researchers can remain at the cutting edge of research Read Further Details Here SBS News - Drug (Verzenio) offers new hope for Australians with breast cancer Patients at high risk of their breast cancer returning will soon have access to a treatment that could prevent just that. For some a re-diagnosis is their biggest fear, which is why improved access to a key drug is considered an important step. Listen to the SBS Podcast Drug offers new hope for Australians with breast cancer | SBS News ABC News - Breast Cancer is becoming more common among under -50s and free screening is a secret Even though there's recognition women can get breast cancer when they're younger, it's still more common in older people. "More than 75 per cent of breast cancers occur in women aged 50 to 74," said Vicki Durston, a director at BCNA. "However, there is increasing evidence that screening younger women is beneficial, which is why screening programs in Australia and other countries are often from age 40." Another problem relates to that issue of breast density and age, which we touched on above. A dense breast is not related to size or feel but whether a breast is made up of mostly glandular or fibrous tissue (dense) or fatty tissue (less dense). "One of the challenges in screening younger women is breast density, which is more common in younger women," Ms Durston said. "Breast density can reduce the ability for a mammogram to pick up cancer but can also be a risk factor for breast cancer." The combination of age and density makes it less appealing to offer mass screening to women under the age of 40. Instead, those women are advised to undertake regular self-examinations Read Further Details Here The Beacon Magazine - available now! In case you missed it, the latest edition of The Beacon magazine is available now. In this edition of The Beacon, we put a spotlight on the power of your voice. We hear incredible personal stories including from two young women carrying a BRCA gene mutation, the experience of caring for loved ones – and yourself too, and the view of a health professional who has had her own breast cancer diagnosis. We also celebrate the Government’s announcement of $1.5 million in funding to create a cancer data alliance to have people with metastatic breast cancer consistently counted on cancer registries across Australia. We hope you enjoy this edition of The Beacon. Click link to read The Beacon (bcna.org.au) Think Pink Foundation Have you heard of the Think Pink Foundation? Programs will continue to run online via Zoom and Live at the Centre (Victoria). Best of all, programs remain FREE for clients. Next week's sessions can be booked directly via the website or from the links below. Please remember to only register once. Pilates Art therapy Yoga Afternoon Pilates Aromatherapy Zumba Pink Sisters Support Group with guest Speaker Dale Ischia Bookings are essential so don't delay! BCNA Forums/Webcasts Webcasts Exercise is well known to positively impact your physical and emotional wellbeing. Did you know it can also positively affect things like fatigue, lymphoedema, muscle strength, depression and anxiety? Join us on Wednesday 22 May 7pm AEST to hear from Lauren Whiting, Founder and CEO of Lift Cancer Care Services. Lauren will be sharing simple and practical ways to incorporate exercise into your daily routine, the benefits of exercise, how to seek resources and access support from experts like an exercise physiologist. Submit your questions before or during the event to have them answered! This webcast is for anyone who has recently been diagnosed with breast cancer or who is living with or after a breast cancer diagnosis. To find out more and to register, visit the link https://www.bcna.org.au/event-directory/webcasts/let-s-cut-through-all-the-hype-why-exercise/ Books/Movies/TV Series/Documentaries We have been in Tasmania this week to present our Information Forums and one of the attendee's expressed how helpful they found Professor Neil Piller's presentation on Lymphoedema. You can check out his presentation at our Murray Bridge forum: https://www.youtube.com/watch?v=P53xQ5ppt-Q Take care and if you have any feedback please feel free to comment below or send a private message. The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au "Movement is the song of the body." - Vanda ScaravelliFriday Update - 19th April 2024
Welcome to the Friday Update, March has flown by us already and we are half way through April! There has been alot of activity at BCNA including the Murray Bridge SA Information Forum, the World Indigenous Cancer Conference and BCNA's Think Tank . We are off to Tassie this month for two more information forums in Devonport and Launceston (Remember if you cannot attend in person, you can register to attend online). We are also gearing up for Bakers Delight’s Pink Bun campaign in May - Its 20th year! Head into your local Bakers Delight between 9 - 29 May, where 100% of the sales from every Fun Bun sold helps BCNA support all Australians affected by breast cancer (Further details in the update on how you can get involved). Take care and enjoy the update. Community Highlights Private Group 'Living with metastatic breast cancer' On Metastatic Awareness Day 2022 - BCNA released an issues paper, Making Metastatic Breast Cancer Count. In August 2023 we held a National Roundtable in Canberra, bringing together leading cancer and data experts to discuss a way forward. On Metastatic Awareness Day 2023 on 13 October, BCNA was proud to release Making Metastatic Breast Cancer Count - A Way Forward. This advocacy work has brought awareness to BCNA's support resources for metastatic breast cancer and also our very own private group here through the Online Network Living with metastatic breast cancer - which has seen many new members join to seek support and connection Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Struggling through Chemo Information Overload! Boob farewell? tip or tricks on getting through radiation? I’m in a grey area and confused Posts by 'Category Name' 1 Apr - 18 2024 Community News BCNA joins international call to challenge enduring inequities in breast cancer care An international report on global inequities in breast cancer care and to count the number of people with metastatic breast cancer was released by the new Lancet Commission on Breast Cancer this week. BCNA responded with a media release and social post. Read BCNA’s media release here. BCNA partners to seek wider access to precision cancer therapies BCNA partners with other cancer groups to call for expanded access to innovative and effective precision therapies Read Further Details Here Take part in research to improve our online services Can you help us continue to improve our website and online services? We’re working on a digital project to give you better access to information and support that is tailored to your personal preferences and experiences of breast cancer Read Further Details Here My Journey - 'Targeted Therapies' (Articles updated) Our goal at BCNA is to ensure people affected by breast cancer can access the latest information and resources. We recently updated two articles in BCNA’s My Journey online tool about targeted therapies in early breast cancer and hormone receptor-positive metastatic breast cancer to capture the emerging trends in treatments for breast cancer: Targeted therapies for early breast cancer Targeted therapies for hormone receptor-positive MBC BCNA Think Tank 2024 After three incredible days of discussion and connection, we wrapped up our third annual Think Tank event on Wurundjeri Country in Naarm (Melbourne) 24-26 March. BCNA's consumers from across Australia gathered to discuss the direction of BCNA's future to ensure we make the most difference to those affected by breast cancer. Reflecting on this year's theme 'connection and social capital', Consumer Representative Naveena Nekkalapudi said, "It's important Consumer Representatives have a seat at the table when decisions are being made that pertain to us because there is no for us, without us". Thank you to everyone who joined us either in person or virtually to discuss and share their knowledge. Pink Bun Parties are back! Will you help us support over 20,000 Australians who are diagnosed with breast cancer each year by hosting a Pink Bun Party between 9 - 29 May? Get around Breast Cancer Network Australia (BCNA) and host a Pink Bun party your way this May, all to support BCNA! All Pink Bun party hosts receive a FREE party pack, to help you pink up your party. This includes pink lady cut outs, posters, BCNA balloons, helpful information and a link to your own unique fundraising page. After registering your party, simply call or visit your local Bakers Delight bakery and place your Pink Fun Bun order, where 100 % of Fun Bun sales during the Pink Bun campaign go directly to BCNA! Hosting a Pink Bun Party is a great opportunity to come together with friends, family and colleagues to support all Australians affected by breast cancer. So get around BCNA this May and register your Pink Bun Party today. Register now via the link Pink Bun Parties Counterpart - Peer Support Volunteer Counterpart have recently had a group of new volunteers begin their training. These amazing women have all had a cancer diagnosis of their own. Soon they will be joining Counterpart's lovely team of Peer Support Volunteers who patients can talk to over the phone, in their Resource Centre, or at one of the hospitals they visit through their Bridge of Support program. Find out more about peer support and how your patients may benefit from speaking to a Peer Support Volunteer on our website. BCNA Forums/Webcasts Recording Now Available! - Murray Bridge (SA) Information Forum Breast Cancer Network Australia (BCNA) held an information Forum in March 2024 for people diagnosed and living with breast cancer and their supporters in Murray Bridge, South Australia. The Information Forum covered topics including: Current and emerging treatments Managing emotional impacts Lymphoedema Watch all the videos here Tasmania Information Forum BCNA is coming to Tasmania as part of our free national Information Forum series. We are bringing leading experts to events in Devonport on Tuesday 30 April and Hobart on Thursday 2 May to talk on a range of breast cancer topics. Our events are for anyone who has recently been diagnosed with breast cancer or who is living with or after a breast cancer diagnosis, as well as supporters. REGISTER FOR DEVONPORT HERE REGISTER FOR HOBART HERE If you can’t attend in person, you can join us online. When registering, select ‘Information Forum – Attending Virtually’. The virtual session will be delivered via Zoom, and you will receive the access link one day before the event. If you require any assistance, please contact events@bcna.org.au We look forward to seeing you in person or online! Books/Movies/TV Series/Documentaries VCCC Alliance held a webinar 'Women in Cancer' in conjunction with International Women's Day. A panel of inspiring women in cancer research and leadership share their stories on how they entered the field, as well as the motivations or experiences that have shaped their journey: Women in Cancer - Inspiring Inclusion | VCCC Alliance Centre for Cancer Education (vcccalliancelearn.org.au) The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au "Strength doesn't come from what you can do. It comes from overcoming the things you once thought you couldn't" - Rikki RogersFriday Update (On Thursday!) - 28th March 2024
Hi everyone, It's a Friday Update on a Thursday! I deliver you an early Friday update as the BCNA office will be closed over the Easter period (5:00pm tonight, and will re-open on Tuesday 2nd April at 9:00 am) . Remember the Online Network is always here to help and you can request the Helpline team to call you back when we reopen by filling out this Form For information and resources about breast cancer, you can access our website https://www.bcna.org.au/resource-hub/ Wishing you a lovely Easter and however you mark the occasion, I hope it is with joy. Take care. Community Highlights March Activity March so far has seen 72 new discussions; 542 new comments and 15,913 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Struggling through Chemo New to This Anxiety Plus Slow Down Project Newly Diagnosed - Radiation Side Effects? Posts by 'Category Name' March 2024 Community News Election commitments fall sort to fix lack of access to public diagnostic mammography in Tasmania BCNA has been long been advocating for improvements in access to public diagnostic mammography in Tasmania Read Further Details Here STUDY: Fear of Cancer Recurrence among First Nations people with Breast Cancer Findings from the first study on fear of recurrence among Aboriginal and Torres Strait Islander people, Dr Kate Anderson from the University of Queensland, said many in the study worried about their cancer coming back or getting worse. “I think (better information) would have helped me a lot, because I felt like I was on my own and I was feeling this on my own” – from the study. You can read the full study via the link Fear of Cancer Recurrence among Aboriginal and Torres Strait Islander Women Diagnosed with Breast Cancer Volunteer for Pink Bun campaign Amazing opportunity to support your local Bakers Delight to raise funds in support of BCNA! Check out the volunteer opportunities in your state and if it sounds like something you would like to be part of, please apply Volunteer for Pink Bun campaign Check out the short video from last year's campaign: https://youtube.com/shorts/lR7cUGAu48Y?si=urg8l559M7S5p1Bk Research (Medical Xpress) Interesting research coming out of the UK. Scientists have discovered how breast cancer cells can "hibernate" to avoid treatment and "wake up" years later causing a relapse that is more difficult to treat. Research uncovers how to target 'sleeping' breast cancer cells and prevent relapse BCNA Forums/Webcasts BCNA is coming to Tasmania as part of our free national Information Forum series. We are bringing leading experts to events in Devonport on Tuesday 30 April and Hobart on Thursday 2 May to talk on a range of breast cancer topics. Our events are for anyone who has recently been diagnosed with breast cancer or who is living with or after a breast cancer diagnosis, as well as supporters. REGISTER FOR DEVONPORT HERE REGISTER FOR HOBART HERE Event details for Devonport and Hobart: Date: Devonport Tuesday 30 April; Hobart Thursday 2 May Time: 9.00am for 9.30am start – 3.00pm Refreshments will be served on arrival from 9.00am and a light lunch will be provided. Location: Paranaple Convention Centre, Market Square, 137 Rooke St, Devonport RACV Hobart Hotel, 154-156 Collins St, Hobart RSVP: Tuesday 23 April There will be two information sessions held each day – one for people with early breast cancer and one for people with metastatic breast cancer. Please register for the appropriate session for your diagnosis. If you can’t attend in person, you can join us online. When registering, select ‘Information Forum – Attending Virtually’. The virtual session will be delivered via Zoom, and you will receive the access link one day before the event. If you require any assistance, please contact events@bcna.org.au We look forward to seeing you in person or online! Books/Movies/TV Series/Documentaries As Lymphoedema Awareness Month comes to a close I thought I would share Pia Jorgensen's talk at BCNA's Bunbury Information forum: https://youtu.be/pKsMwDmF6gY?si=TLLixMx5EjmGdXPp Hope you have a lovely weekend and if you have any feedback please feel free to comment below or send a private message. The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au "It doesn't cost me anything to be kind". - PaddingtonFriday Update - 8th March 2024
Hello existing members and our 'newbies' who have joined the Online Network community recently. If you are a new member, you may like to use the search function to type 'Friday Update' and read previous editions. We try to include Online Network activity; BCNA news/resources and external organisation resources. BCNA have been busy this week at the Murray Bridge SA Information forum and we cannot wait to share online recordings with you in the coming weeks. Out next Information Forum will be held in Tasmania on the 30th April 2024 (Registrations open soon). Please enjoy the update! Community Highlights Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Struggling through Chemo Newly Diagnosed - Radiation Side Effects? The “journey” begins. Anxiety Plus Slow Down Project Posts by 'Category Name' 21 Feb - 08 March 2024 Community News Breast Cancer cannot wait: Open letter regarding inadequate access to diagnostic imaging in Tasmania for breast Cancer Breast Cancer Network Australia (BCNA) remains deeply concerned about the lack of access to diagnostic imaging in the public system in the south of Tasmania and calls on all candidates contesting the 2024 state election to make commitments to fix this issue and restore basic rights to healthcare for Tasmanian women. Read the open letter Triple Negative Breast Cancer (TNBC) Day - 3rd March 2024 Triple Negative Breast Cancer (TNBC) Day is a good time to acknowledge the significance of the drug Keytruda being added to the Pharmaceutical Benefits Scheme (PBS) late last year. In September 2023 Keytruda was added to the PBS for those with metastatic TNBC and in December it was added for those with early TNBC. Around 3000 Australians are diagnosed with TNBC each year, it is an aggressive and fast-growing form of breast cancer with fewer treatment options. Having this crucial drug on the PBS means more equitable access while also reducing the financial burden of a breast cancer diagnosis. We thank all the BCNA consumers who joined us in our successful advocacy to get this drug listed. Don't forgot here through the Online Network if have a private group Triple Negative Breast Cancer (TNBC) Lymphoedema Awareness Week Lymphoedema Awareness Week is a chance to celebrate work being done to develop an online tool for people with – or at risk of – lymphoedema as a result of a breast cancer diagnosis. The tool is being led by Flinders Health and Medical Research Institute’s (FHMRI) Cancer researcher Professor Bogda Koczwara AM in partnership with BCNA. Lymphoedema is the build-up of fluid in patients’ arms, resulting from damage or removal of lymph nodes during breast cancer treatment. The condition can develop soon after surgery or many years later. Prof. Koczwara says breast cancer survivors living in rural and remote locations are particularly at risk because of limited health support and will benefit most from an online self-management tool. Read more via the link Helping cancer survivors manage lymphoedema Also check out Lymphologist Pro Neil Piller speak at our Warrnambool Information Forum last year Warrnambool Information Forum: Prof Neil Piller- lymphatic system and lymphoedema (youtube.com) In 2022 BCNA held an 'Ask the Expert' webcast Living well with lymphoedema - In this Ask the Expert event, we heard from lymphoedema physiotherapist Maree O’Connor and BCNA Consumer Monique Bareham. Maree is lymphoedema physiotherapist with over 30 years experience in the management of lymphoedema for people affected by breast cancer and Monique was recently announced as South Australia’s 2022 Local Hero for her advocacy for compression garments for lymphoedema after her own personal experience of lymphoedema following breast cancer treatment. BCNA 2024 Impact Report We are thrilled to deliver our 2024 Impact Report. It highlights the many ways in which your generosity has helped BCNA support Australians affected by breast cancer in the past year. Hear about our key achievements, including our continued policy and advocacy work, delivering our newly refreshed website, and the 10,000-strong crowd who stood on the MCG at Field of Women. Read our impact report via link 2024 Impact Report (bcna.org.au) Centre for Genetics Education - Breast cancer and inherited susceptibility BCNA's Helpline team have noticed an increase in the number of people seeking information about genetics and the risk of breast cancer. The Centre for Genetics Education have a great page on the topic Breast cancer and inherited susceptibility (genetics.edu.au) BCNA Forums/Webcasts Persistent pain after breast cancer - Recording available ! https://www.youtube.com/watch?v=SGWv6HhHn3Q In Persistent pain after breast cancer – addressing quality of life we explored pain from both a clinical and personal perspective. This webcast addressed persistent pain associated with early breast cancer treatments, strategies to help manage pain and resources and support that may be available. We heard from Naveena Nekkalapudi, BCNA Consumer Representative; Professor Paul Glare, Pain Medicine Specialist and Dr Charlotte Tottman, Clinical Psychologist. Welcome Georgie to BCNA's Helpline team Last year we had the pleasure of welcoming Georgie into the Helpline team and we wanted to share her introduction. Georgie has hit the ground running and has been a wonderful addition to the team with her empathy and guidance: My Name is Georgie; I have been with BCNA since August 2023, and I love being a part of the Helpline team. I have been in the health sector for over 8 years now, and love being able to help others. I have a fur baby who I love taking on plenty of walks and adventures. Take care and if you have any feedback please feel free to comment below or send a private message. The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au "Those who bring sunshine to the lives of others cannot keep it from themselves." - James Matthew BarrieFriday Update - 23rd February 2024
Welcome to the latest Friday update! We are still thrilled about the roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced by Prime Minister Anthony Albanese to fund a cancer data alliance. In this update I will include the information related to this important development, in addition to support and information available to those diagnosed with metastatic breast cancer. Community Highlights February Activity February so far has seen 63 new discussions; 501 new comments and 15,725 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Struggling through Chemo Lumpectomy didn't work - now what? The “journey” begins. Today is @melclarity Birthday! New to the Journey Posts by 'Category Name' 01 - 20 Feb 2024 Community News Counting people with metastatic breast cancer: a step closer A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced Prime Minister Anthony Albanese to fund a cancer data alliance on Saturday 3 February. Read full details via the link Counting people with metastatic breast cancer: a step closer The following My Journey articles can be helpful for someone newly diagnosed with Metastatic Breast Cancer: Recently diagnosed with metastatic breast cancer? Top 5 tips What is metastatic breast cancer? People on your treating and care team for metastatic breast cancer Metastatic breast cancer: the first few weeks You can also watch BCNA’s Webcast: Just diagnosed with metastatic breast cancer - what’s next? and listen to Dr. Charlotte Tottman speak at one of BCNA’s forums about the Emotional impacts of metastatic breast cancer BCNA welcomes new Peta Murphy Breast Imaging Suite at Frankston Hospital Thousands of people in Frankston and broader Mornington Peninsula communities will have access to comprehensive public diagnostic breast imaging at the new Peta Murphy Breast Imaging Suite at Frankston Hospital. Read further via the link BCNA welcomes new Peta Murphy Breast Imaging Suite at Frankston Hospital Living well with and beyond breast cancer ‘Living well with and beyond breast cancer’ is the theme of BCNA’s third year of our Policy and Advocacy Strategic Plan: Towards 2025. BCNA has a plethora of resources – including engaging podcasts and webcasts featuring cancer experts in health and wellbeing. As part of this strategy, we have updated many of our exercise and wellbeing resources, including: · BCNA’s Strengthen Your Recovery Pilates Program, a generalised program for people who need to maintain their physical wellbeing during their breast cancer treatment. · Physical Preparation and Recovery After Breast Reconstruction is a program developed with Breast Research Australia and the University of Wollongong. This program covers pre-and post-surgery videos, a podcast and a webcast with four health professionals · Exercise is Annoying (‘cos it works) podcast by clinical psychologist Dr Charlotte Tottman. · Food and Movement When Living with Metastatic Breast Cancer webcast with exercise physiologist Dr Eva Zopf, dietitian Erynn Sotirelis, BCNA member Laura Yammouni and BCNA Consumer Representative Lisa Tobin. Carman's Fun Run 2024 Thankyou to everyone who attended and supported Carman's Fun Run over the weekend. It was our biggest fun run yet and the power of pink was on full display! With your support, BCNA has raised over $285,000 through Carman's Fun Run this year, and the donations are still coming in! Canteen Connect We have plenty of you connected with young people in your life in one way or another. Canteen is an Australian not-for-profit that provides free and tailored support to young people aged 12-25 who are impacted by cancer. Whether they are dealing with their own diagnosis, a close family member’s cancer or the death of a loved one. A recent evaluation of Canteen's online community Canteen Connect showed improved psychological wellbeing, highlighting the platform's significance in addressing psychosocial impacts and fostering peer connections during the cancer journey. Watch the video to learn more Breast Cancer Trials Q&A - Breast Cancer and Fertility (Recording available) The recording is now available for Breast Cancer Trials latest Q&A session where experts discuss the latest in fertility preservation options for breast cancer patients, informed decision making and fertility decision aids. Watch via the link Q&A Event - Breast Cancer and Fertility (breastcancertrials.org.au) BCNA Forums/Webcasts Forum - Murray Bridge SA Breast Cancer Network Australia (BCNA) is heading to Murray Bridge, South Australia as part of our national Information Forum series. We are bringing leading experts to the local community to provide insights on a range of breast cancer topics. We extend an invitation to anyone located in or around Murray Bridge to join us on Wednesday 6 March for this fantastic day full of information and getting to connect with others in the area! REGISTER HERE (Note: When registering, you can choose to either attend in person or online. The online session will be delivered via Zoom, and you will receive the access link one day before the event) Books/Movies/TV Series/Documentaries This book has recently been added to My Journey: One Man's Journey Through Breast Cancer - Ron Gordon Following a diagnosis of breast cancer, Ron Gordon used photography to tell his experience of male breast cancer. He held an exhibition of his work in 2014 and followed with up with a publication of his photography in a book. Ron has very kindly donated an updated PDF version of his book, as a gift for men diagnosed with breast cancer. To receive access to the PDF, contact BCNA Helpline on 1800 500 258 or email helpline@bcna.org.au Hope you enjoyed the update and if you have any feedback please feel free to comment below or send a private message. The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au "Life is so fragile and time is so precious" - Ron GordonFriday Update 22nd December 2023 (BCNA Christmas Closure Details)
Friday Update - 22nd December 2023 Hello Online Network community and welcome to the final Friday Update of 2023! We haven't always kept up perfectly with the fortnightly update however we still managed 26 editions this year, so thankyou for reading. I would also like to acknowledge the 764 new members who have joined this year and while it isn't necessarily the community you hoped to be part of, we hope you have found support in connecting with others. Finally, a big shout out to our many long time members who continue to have a presence here and provide invaluable support to others. Myself and the rest of the moderating team always feel grateful to witness the incredible conversations and stories shared here. We hope to see you again in 2024! Thankyou BCNA Helpline over Christmas and New Year BCNA’s Helpline will be closed from 5pm today (AEDT) and will reopen on Wednesday 3 January at 9am (AEDT). During this time, you can request the Helpline team to call you back when we reopen by filling out this Form If you are seeking support during this time, you can get in touch with the following organisations: Cancer Council 13 11 20 https://www.cancer.org.au/ (operating on reduced hours) Beyond Blue 1300 224 436 https://www.beyondblue.org.au/ Lifeline 13 11 14 https://www.lifeline.org.au/ 1300YARN (12 92 76) https://www.13yarn.org.au/ For information and resources about breast cancer, you can access our website https://www.bcna.org.au/resources-over-the-festive-season/ Online Network over Christmas and New Year You can continue to connect with others with a breast cancer experience here on BCNA's Online Network (available 24/7) Mez_BCNA Kate_BCNA and Daina-BCNA will be moderating the Online Network over the closure period should you need to send a private message for urgent matters you can include all moderators in your message. To send a private message from your laptop/desktop click the envelope next to your profile picture and click on the highlighted picture below; type in the moderator’s names in the ‘recipients’. Type the body of your message and hit ‘Post Message’button: To send a message from your mobile device you will click on your profile picture and then the envelope will be on the top-right (screenshot below): Community highlights Christmas Funnies In the spirit of Christmas Funnies… Popular forum discussions You may be interested in several forum discussions that have received the most comments in December: Here we (I) go Where do I start...... what to take to hospital Lobular breast cancer just diagnosed Christmas Funnies ....... put them up here for a laugh! Community News Season Greetings from Kirsten Pilatti (aka KP) https://www.youtube.com/watch?v=zDtHJUUqWtI BCNA Celebrating 25 years We know that in another 25 years’ time, things may look very different. We anticipate further advances in breast cancer prevention, improved services to support those living with and beyond breast cancer, and new innovative ways that we access health information. So where do we see BCNA in 25 years’ time? ‘My granddaughters will be reaching an age where breast cancer may come into their lives. If breast cancer is still here, if it hasn't been eradicated or if we haven't found a way to prevent it from happening, then I would hope that BCNA is still a haven that can be relied upon.’ - Lyn Swinburne AO, BCNA Founder ‘I want to see everyone, not just those with the strongest voices, getting the best care. I also want BCNA to continue to help those diagnosed to find each other and to feel a sense of shared understanding through the connections we foster’. – Kirsten Pilatti, BCNA CEO You can read more BCNA's 25-year story CLICK HERE Magnetic Resonance Imaging (MRI) - PROSPECT Study BCNA welcomes new Australian research which has found breast magnetic resonance imaging (MRI) prior to breast surgery, may be able to identify patients who can safely avoid radiotherapy. This could lead to less treatment, fewer side effects and save thousands of dollars in healthcare costs. The PROSPECT study – recently presented at the San Antonio Breast Cancer Conference and published in @the_lancet_ – also found participants who did not have radiotherapy, had substantially lower rates of fear of breast cancer recurrence and better quality of life compared to those who did. The researchers, led by Professor Bruce Mann, also found patients have a positive perception about tailored care, lower treatment burden and trust in clinicians. Read more about the study led by Professor Bruce Mann via the LINK Travelling and Airport Security Travelling through airport security with a breast prosthesis this holiday season? Here's what you need to know. With the busy travel period coming up, BCNA is still hearing that some people travelling through airport security wearing a breast prosthesis or compression bra are having distressing experiences. If you feel comfortable, let airport staff know you are wearing a breast prosthesis or compression bra before passing through security. It can also be helpful to carry a letter from your doctor. Airport staff may organise another imaging scan or a pat down. If this happens you must be treated respectfully. You can request to be screened in a private area and by an officer of the same gender. Your prosthesis or bra should never be touched or removed. BCNA is now working together with all major Australian airports to ensure their staff are well informed and trained to ensure all people with prostheses are treated respectfully. For more information, call our Helpline on 1800 500 258 or visit the LINK Otis Foundation Perhaps a Christmas gift for yourself or someone else affect by breast cancer. Otis Foundation is a national charity gifting retreat accommodation to people experiencing breast cancer and their loved ones. They will take enquiries from anyone who has experienced breast cancer and feel they would benefit from a stay. http://www.otisfoundation.org.au/ BCNA Forums/Webcasts Mission Beach Information Forum Recording - Now Available! CLICK HERE to access recording. The Information Forum covered topics including: current and emerging treatments sexual health strategies to enhance physical and emotional wellbeing. We heard from two BCNA members, Angela and Sharon, about their lived experience. Members were also advised of local support as well as learning more about BCNA’s services and resources. Guest speakers included: Dr Michelle White, Medical Oncologist Chloe Oliver, Clinical Psychologist Dr Tonia Mezzini, Sexual Health Physician Jody Spicer, Exercise Physiologist Maebh Coleman, Physiotherapist Jessica Chenery, Metastatic Breast Care Nurse Kate Tracey, Breast Care Nurse. Upcoming Webcast! Stay tuned for the upcoming webcast related to "Persistent pain after treatment" on the 7th of February 2024 (Registration link will be posted in events through the Online Network soon). Upcoming Information Forum! Stay tuned for the upcoming BCNA Information forum to be held in Murray Bridge SA on the 6th of March 2024 (Registration link will be posted in events through the Online Network soon) Books/Movies/TV Series/Documentaries We will round out this week's Friday Update with a Christmas movie recommendation, it is a family friendly movie and very sweet: Or... if you are not feeling Christmas this year there is always 'The Grinch who stole Christmas' ;) BCNA and the moderating team wish you a very restful, safe and happy festive season. Hope to connect with you all again in 2024! The Mod Team - @Pat_BCNA @Mez_BCNA @Daina-BCNA @Kate_BCNA @Denise_BCNA @Risha_BCNA @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au "There are two ways of spreading light: to be the candle or the mirror that reflects it." - Edith WhartonFriday Update - 8th December 2023
Welcome to December members, This may be a good time to remind ourselves and those around us that the holiday season can look different for everyone. If you’re struggling to feel those ‘festive’ feelings, please be kind to yourself. Here are some strategies from the Cancer Council to help make Christmas easier if you’re affected by cancer: 6 ways to cope with cancer this holiday season Hope you enjoy the update. Community Highlights November Activity In November the Online Network had 112 new discussions; 641 new comments and 26,216 visits to the community Popular Forum Discussions If you have missed some of the most active discussions in the last few weeks, you can check them out via the links below: Lobular breast cancer just diagnosed Creative Corner! Friday Funnies New Diagnosed SUFFERING STOPPING HORMONE TREATMENT FOR MENOPAUSE Posts by 'Category Name' November 2023 Community News BCNA News - New Board Members 16 Nov 2023 At BCNA's Annual General Meeting today, Surgical Oncologist Professor Bruce Mann retired from the Board after 9 years' service. We are so grateful to Bruce for his commitment and passion for BCNA and our purpose. We know he will continue to remain a friend of BCNA. CLICK HERE to read further. BCNA News - Time to Count People with Metastatic Breast Cancer – A Way Forward 29 Nov 2023 Finding a way to have people living with metastatic breast cancer consistently counted on our cancer registries is a step closer to reality. The Time to Count People with Metastatic Breast Cancer – A Way Forward report outlines a roadmap to collecting and reporting cancer stage and recurrence data. Read more via the link Time to Count People with Metastatic Breast Cancer - A Way Forward BCNA News – Vale Peta Murphy MP It is with much sadness that Breast Cancer Network Australia (BCNA) acknowledges the death of Peta Murphy MP. Please read the discussion https://onlinenetwork.bcna.org.au/discussion/26093/vale-peta-murphy-mp#latest You are welcome to leave your own comments / reflections. Mary Lloyd – The sneaky breast cancer I almost missed and how other can look out for it Mary Lloyd from the ABC’s Specialist reporting Team tells her personal story of a breast cancer experience and how lobular breast cancer (lobular carcinoma in situ – LCIS) is harder to detect. Her story looks at how is lobular cancer different to other types of breast cancer, and why lobular breast cancer is harder to detect on medical images. BCNA promotes breast awareness, and we encourage women to be familiar with their breasts so they can pick up changes early. If you notice a change that is unusual for you, it is important you see your doctor as soon as possible. Watch and read the full story HERE Dragons Abreast Australia (DAA) Celebrates 25 years! BCNA is proud to share a big birthday with Dragons Abreast Australia (DAA). Like us, DAA turned 25 this year. And, like us, DAA promotes the benefits of exercise – especially after a breast cancer diagnosis. Dragon boating is a great opportunity for those living with and beyond breast cancer to get back into exercise – pick up a paddle, have fun, and connect with others in a friendly and supportive environment. Interested in learning more? To join a dragon boating club or get involved in events, visit DAA’s website Click here to learn more about the benefits of exercise post-treatment on BCNA’s newly refreshed website. Shop BCNA Charity Christmas Cards - Hello Sunday Each year @hellosundaystore produce a beautiful range of Christmas cards just for BCNA. Designed by Australian and international artists, the cards are available in packs of 10 and are presented in a premium wallet featuring your chosen design. Hello Sunday donate 10 per cent of the wholesale price to BCNA. To buy your 10-pack of Christmas cards visit the link in bio. T&Cs apply https://hellosunday.com/collections/bcna-charity-christmas-cards BCNA Forums/Webcasts Upcoming Webcast! Stay tuned for the upcoming webcast related to "Persistent pain after treatment" on the 7th of February 2024 (Registration link will be posted in events through the Online Network soon) Upcoming Information Forum! Stay tuned for the upcoming BCNA Information forum to be held in Murray Bridge SA on the 6th of March 2024 (Registration link will be posted in events through the Online Network soon) Coffs Harbour Information Forum Recording now available! CLICK HERE to access recording The forum had both early breast cancer and metastatic breast cancer streams, and speakers for this forum included: · Dr. Michelle White, Medical Oncologist · Dr. Carrie Lethborg, Oncology Social Worker · Hugh Campbell, Exercise Physiologist (Masters in Oncology Exercise) · Lee Millard-Newton, lymphoedema accredited therapist (ALA), Registered Nurse · Jane Kelly, local Breast Care Nurse · Rob Brangwin, local Social Worker Books/Movies/TV Series/Documentaries This week I thought it was timely to include several resources that Peta Murphy was happy for BCNA to continue to share. Thankyou Peta for your voice. Upfront About Breast Cancer Ep#27 - Vulnerability and strength - Peta Murphy on breast cancer Dear Peta - a personal story https://youtu.be/-Hku5PtYzbk?si=yTZYA9IXYrTvfsKL Take care everyone and if you have any questions or feedback please message one of our Online Network moderators below: @Pat_BCNA @Mez_BCNA , @Risha_BCNA, @Denise_BCNA, @Daina-BCNA , @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.auFriday Update 12th October 2023
Greetings everyone, Welcome to the Thursday 'Friday Update'. We are into the swing of Breast Cancer Awareness Month here at Breast Cancer Network Australia (BCNA) and I will share several of the highlights we mention throughout the month of October. This month can bring different thoughts, feelings and reflections for many of you; please connect with the people in your life who support you (including the Online Network community). You can always reach out to the BCNA Helpline 1800 500 258. Check out our CEO Kirsten Pilatti's message about the significance of Breast Cancer Awareness Month https://youtube.com/shorts/TSg4si9iw-M?si=ARZqofcW2SFRXhKn Community Highlights September 2023 Activity During the month of September the Online Network had 68 new discussions; 430 comments and 17,832 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in September, you can check them out via the links below: IMPORTANT: BCNA's Online Network is getting a security upgrade 13th September 2023 Extensive DCIS Ice gloves - ideas needed please Treatment for post chemo soft nails Xeloda Posts by 'Category Name' September 2023 Featured Private Group 'Autism Spectrum Disorder (ASD) and Breast Cancer' Autism Spectrum Disorder (ASD) and Breast Cancer This private group was set up to connect people with Autism and a diagnosis of breast cancer. Feedback from members, is that often the additional challenges faced by someone with ASD while navigating a breast cancer diagnosis, are not always understood by all. This space will hopefully allow you to connect, support and share your experiences with others going through a similar journey. Community News Breast Cancer Awareness Month Breast Cancer Awareness Month provides the opportunity for us to draw attention to the ongoing impact of breast cancer on those diagnosed and their supporters. In our 25th year, BCNA continues to connect you with the information, resources, and support you need whether you are someone diagnosed, a family member, support person, or a health professional providing care. 'Living well, your way' A diagnosis of breast cancer looks different for everyone, and there is no one way to ‘live well’ during or following a diagnosis of breast cancer. Breast cancer affects people long after active treatment has finished. For some people, including those living with metastatic breast cancer, treatment never finishes. There are often long-term impacts of a breast cancer diagnosis. These impacts could be physical, psychosocial, or financial. It is likely that you will require different types of support at different times after your initial diagnosis of breast cancer. Living well, your way aligns to the third year of BCNA’s Policy and Advocacy Strategy, you can read more about how we use this strategy to advocate on behalf of our network here. Throughout Breast Cancer Awareness Month, keep an eye on our website or social media as we share resources and stories that can support you or someone you care for to live well. SWIISH WALK4BCNA - This Weekend! We invite you to this inaugural event proudly supporting Breast Cancer Network Australia (BCNA). The SWIISH WALK4BCNA will see registrants participate in a 4km or 8km walk around Metcalfe Park, Sydney followed by a family friendly festival. The festival will include food vendors, health and fitness retailers, SWIISH and BCNA merchandise, children’s activities, yoga, massage and other wellness activations including a chill out zone. BCNA’s signature Mini-Field of Women area will be a space where participants can pay tribute to those affected by breast cancer. We are excited to partner with SWIISH to bring you this fantastic event! Register now (Virtual walk option available) International Flat Closure Day - 7th October 2023 Staying flat and feeling stronger for it On Flat Closure Awareness Day read Grace’s story about her decision to not have a breast reconstruction after a mastectomy. Going flat is also called aesthetic flat closure (AFC). It involves chest wall reconstruction to create a smooth appearance with no extra skin left behind following a mastectomy for breast cancer. Aesthetic flat closure is an important option that should be discussed ahead of a mastectomy. It is important to have all the information you need to make an informed decision. “This decision needs to be about you – not anyone else. Remaining flat has had a positive effect on my mental health. I feel so much stronger, confident, and courageous”, says Grace. Read more of Grace’s story in the October edition of The Beacon: https://www.bcna.org.au/the-beacon/ Metastatic Breast Cancer Awareness Day- 13th October 2023 In the lead up to Metastatic Breast Cancer Awareness Day on 13 October, we recognise the work of Dr Sophie Lewis and her colleagues. Published in the journal Sociology of Health & Illness, Dr Lewis’ recent article explores some of the challenges those living with metastatic breast cancer may experience regarding social isolation. The article, which draws on interviews with 38 Australian women, highlights the importance of focusing policy and research attention on identifying new ways of supporting women with metastatic breast cancer, and those around them, to negotiate flexible social bonds, ensuring women feel secure and connected. Read the article, which supports our theme for Breast Cancer Awareness Month - Living Well, Your Way - here: https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704 Breast Cancer Trials Online Q&A: Triple Negative Breast Cancer - 24th October 2023 Breast Cancer Trials will be holding an online Q&A where you will hear from women with a history of triple negative breast cancer and from world-leading researchers on the latest in research and clinical trials to improve treatments and patient outcomes. Read more via the link Click here to visit the event website BCNA Forums/Webcasts Mission Beach Forum We are holding an Information Forum in Mission Beach on Tuesday 24 October, 9.00am - 3.00pm. This will be our last in-person Information Forum for 2023. During the event, you will hear from - Those with a lived experience of breast cancer Medical Oncologist, Dr Michelle White Clinical Psychologist, Chloe Oliver Sexual Health Physician, Dr Tonia Mezzini Exercise Physiologist, Jody Spicer Physiotherapist, Maebh Coleman Deirdre Maunsell, Breast Care Nurse We will cover current and emerging treatments, sexual health, strategies to enhance physical and emotional wellbeing and share local services and support with more speakers and topics to be announced shortly. You will have the opportunity to ask questions and meet others in your local community. You can register to attend in person or online. To register please click here. Books/Movies/TV Series/Documentaries Have you checked out our new website recently? https://www.bcna.org.au/ We would encourage you to check it out! Our new Information & Resources Hub allows you to easily search and filter the new website for the content you need. Hope you enjoyed the update. Please take care and if you have any questions or feedback please messaged of our Online Network moderators below: @Pat_BCNA @Mez_BCNA , @Risha_BCNA, @Denise_BCNA, @Daina-BCNA , @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au The mod team - Mez, Daina, Pat, Denise and Risha "Alone, we can do so little; together, we can do so much" - Helen Keller
