Friday Update - 22nd September 2023

Mez_BCNA
Mez_BCNA Administrator, Staff, Member, Moderator Posts: 1,144 ✭
edited October 2023 in Community news and events

Hello everyone,

It feels like the month of September is flying by us all. You may have noticed a few technical related correspondences from BCNA recently and I would like to share upcoming changes to the BCNA website in this update. You will also read about recent news items, upcoming forums and content you may have missed.

BCNA Website Changes


Next week you will start to see upgrades to the BCNA website. This website upgrade is part of a wider digital transformation project for BCNA as we continue to ensure we are providing the very best experience for consumers, carers, and health professionals seeking information and support in the breast cancer space. 

We are aiming to:

•       Provide an improved website experience, with content tailored to suit your needs, at your fingertips.

•       Provide a fresh look & feel, while making it easier to find your way around.

•       Put members at the centre of our website so you can find what you need, when you need it.

The site will have a new look and feel as we modernise our services and support. Things may be in slightly different places on our new website, but your experience should be easier and more intuitive. 

Our new Information & Resources Hub allows you to easily search and filter for the content you need. You might notice that some content has changed. That’s because we are working hard to review, refine and consolidate our resources, ensuring we provide the most accurate and up to date information for you. 

You can still access the Online Network via the BCNA website. The Online Network button is located on the top righthand corner of the homepage. Once you click on the button it will take you to the Online Network. No other changes are happening to the Online Network as part of this website upgrade.

If you have any concerns or notice issues with links and functions, please let us know via email helpline@bcna.org.au


Community Highlights

Popular Forum Discussions 

If you have missed some of the most active discussions the last few weeks, you can check them out via the links below:

IMPORTANT: BCNA's Online Network is getting a security upgrade 13th September 2023

Ice gloves - ideas needed please

Treatment for post chemo soft nails

Newly diagnosed, now waiting, doesn’t feel real

Trying to absorb the shock and fear


Posts by 'Category Name' 8 Sept - 21 Sept 2023



Online Network - Password Reset

BCNA recently performed a security upgrade for the Online Network and members were required to reset their passwords. We understand that there were members who received duplicate requests and had to change their password numerous times. There were also members who didn't receive or could not locate the password reset email.

We appreciate your patience and understanding as we worked through some of these pain points with you and hopefully your issue was resolved. However, if you are continuing to experience trouble logging into the Online Network we encourage you in the first instance to call the Helpline on 1800 500 258. Trouble shooting over the phone has proved most effective in resolving majority of these errors.

Thankyou again to members of the Online Network who reached out to support others experiencing issues. The Online Network is truly a supportive community.


Community News

SWIISH Walk4BCNA


Join us in Sydney, Sunday 15th October SWIISH Walk4BCNA.

Register now, don't miss out https://swiishwalk4bcna.com.au/

FREE event t-shirts for the first 1,000 registrants, even kids (and dogs) get a FREE buff! 4km 'leisure walk' or 8km 'power walk' option.

There will be a wellness themed family festival on site with activities, food trucks and giveaways from 9am -1pm.

Can't make it on the day or live outside Sydney? Virtual entrants can complete a self-led walk in their local area and receive the free 'Headskinz' buff to get involved


Information for people flying with a breast prosthesis

Travelling through airport security with a breast prosthesis - what you need to know.

BCNA is still hearing that some people travelling through airport security wearing a breast prosthesis or compression bra are having distressing experiences.

Please refer to our website for more information Call to improve airport screening


Parliamentary Friends of Women's Health

Last month we took our call to have people with metastatic breast cancer consistently counted on our cancer registries to Canberra.

The discussion - streamed live - also heard from BCNA Consumer Representative Lisa Tobin and MP Peta Murphy who are both living with metastatic breast cancer, as well as Professor Sanchia Aranda AM. If you missed it or want to see it again you can watch it via the link below

https://www.youtube.com/watch?v=-Hku5PtYzbk


BCNA Forums/Webcasts

Mission Beach Forum


We are holding an Information Forum in Mission Beach on Tuesday 24 October, 9.00am - 3.00pm. This will be our last in-person Information Forum for 2023.

During the event, you will hear from - 
  • Those with a lived experience of breast cancer
  • Medical Oncologist, Dr Michelle White
  • Clinical Psychologist, Chloe Oliver
  • Sexual Health Physician, Dr Tonia Mezzini 
  • More to come!
We will cover current and emerging treatments, sexual health, strategies to enhance physical and emotional wellbeing and share local services and support with  more speakers and topics to be announced shortly. You will have the opportunity to ask questions and meet others in your local community.

You can register to attend in person or online. To register please click here.


Books/Movies/TV Series/Documentaries

In June 2023 Breast Cancer Network Australia (BCNA) hosted an information forum in Darwin, NT where members had the opportunity to share their story. Aboriginal Liaison Officer Barbara Smith shares her experience working in the NT and the role of Aboriginal Liaison Officer's when someone is diagnosed with breast cancer:

https://www.youtube.com/watch?v=FiInXXj2PiU

Thankyou for taking the time to read the update. Please take care and if you have any questions or feedback please messaged of our Online Network moderators below:

@Pat_BCNA @Mez_BCNA , @Risha_BCNA, @Denise_BCNA, @Daina-BCNA


If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au 
 
The mod team - Mez, Daina, Pat, Denise and Risha
 

"Courage doesn’t always roar. Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow." Mary Anne Radmacher

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Comments

  • Kristen
    Kristen Member Posts: 134 ✭
    No photo description available
    Ladies might like to know about breast reconstruction awareness day on Oct 18th
    No fundraising.
    Encouraging exercise.
    It encourages people to make  'art' by planning a shape , then 
    mapping their walk/ride/run using the free app stravia.
    Then posting it on socials on 18th.
    The goal is to help women realise that there are many types of reconstruction options,
     including no mounds.So women can make more informed choices.
    You may like to 'draw'  a bra, a bandau, a bikini, a boob- whatever you want.
    Draw it on the beach and turn on your recording.
    Kayak on the water.
    Look at your local street map and see if you can find any shapes.
    Lovely sydney lady.Luan Laurie Woods, who has had her own recon journey,
     is using socials to try and help other women access information.
    She has done a whole heap of interviews with patients and doctors and they are on her insta page.
    Series called Recon 101
    Plus she has a blog Rewritten Me






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