'Together Towards Tomorrow Adelaide Survivorship Conference 27 & 28 July 2019 registrations open

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Comments

  • Lisa67
    Lisa67 Member Posts: 4
    @Rosie_BCNA, just wanted to say how much I enjoyed the conference in Adelaide, agree with all the positive comments posted. I do have one area of major disappointment though. I was in the metastatic bc group and we didn't get to listen to Raylene Boyle. I heard she was totally inspirational. I would have thought for such a great speaker the two groups could have merged. I didn't even realise she was speaking until I heard people talking about how great she was. I was very disappointed to have missed her. Perhaps a joint presentation could be considered for future events when such an amazing speaker is secured.
  • Patti J
    Patti J Member, Dragonfly Posts: 589
    Will there be any feedback on the facilitated discussion with metastatic breast cancer patients and Kirsten Pilatti: "You look so well, when does your treatment finish?" @Riki_BCNA.

  • Riki_BCNA
    Riki_BCNA Staff Posts: 323
    Hello @Patti J we will provide feedback in the MBC group about the conference and issues affecting women with MBC that were highlighted in South Australia in the oncoming week.
  • Patti J
    Patti J Member, Dragonfly Posts: 589
    Thanks.
  • Rosie_BCNA
    Rosie_BCNA Member Posts: 217
    Hi @Lisa67 thanks for your feedback about the conference as well as all the commentary from the others who attended. It was a jam packed weekend and we were delighted with the presenters and the response from those who were able to be there. I'm sorry i didn't get to meet you @Sister and @Anne65  - I was in the metastatic room all day on Saturday.
    @Lisa67, I will certainly pass on your thoughts about having both groups come together to hear Raelene Boyle speak. We are having a post conference review this afternoon and will also see what was raised in the evaluation forms but I think yours is a great idea. 
  • Patti J
    Patti J Member, Dragonfly Posts: 589
    Could you please explain @Riki_BCNA why last week there was valuable information available for those of us with metastatic breast cancer but this week the information available is not worth posting? 
  • Riki_BCNA
    Riki_BCNA Staff Posts: 323
    Hello @Patti J based on feedback from the Adelaide forum we will be live
    streaming the metastatic breast cancer sessions of the Gold Coast forum. This will
    allow more people to participate. We hope that you will be able to be involved.
    The format of the metastatic breast cancer session will be similar to that of
    Adelaide and other forums BCNA conducts. We will have  presentations from a medical specialist and other experts talking about lifestyle, health and well being. Information about the conference will
    be posted in the online network as it becomes available.

  • Patti J
    Patti J Member, Dragonfly Posts: 589
    Thanks @Riki_BCNA. I would still like to have heard the discussion about not looking sick. 
  • Patti J
    Patti J Member, Dragonfly Posts: 589
    From the latest BCNA news could you please tell me the coping strategies discussed and the advances in treatment for those of us with metastatic breast cancer @Giovanna_BCNA? Apparently this was discussed at this conference.
  • Patti J
    Patti J Member, Dragonfly Posts: 589
    "The conference also included a separate program for people living with metastatic breast cancer, looking at advances in metastat breast cancer treatment and care, and provided coping strategies." BCNA NEWS 16 Aug 2019. @Riki_BCNA.
  • Giovanna_BCNA
    Giovanna_BCNA Member Posts: 1,839
    Hello @Patti J

    I wasnt at the Adelaide conference but understand that coping strategies were discussed during the course of the day. I have been told that the presentation that will be delivered at the October Gold Coast forum will be very similar to what was discussed at the Adelaide conference re coping strategies for people living with metastatic breast cancer.  The session will also be live streamed which will allow more people to participate and to hear the discussions first hand.

    You may already be aware that we recently recorded a podcast about metastatic breast cancer that you may like to listen to or read the transcript. https://www.bcna.org.au/understanding-breast-cancer/resources/podcasts/episode-5-metastatic-breast-cancer/  If you need further information and or support, dont hesitate to call our helpline on 1800 500 258.
     
    kind regards


  • Patti J
    Patti J Member, Dragonfly Posts: 589
    Thanks @Giovanna_BCNA. I have listened to the podcast. It was interesting. However, I  am in a much different situation to the person on the podcast. Coping strategies would help me much more.
    I will look forward to the Gold Coast forum.