So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!

Options
124678

Comments

  • JJ70
    JJ70 Member Posts: 983
    Options
    Yep to all that @arpie...and what about the massive SECRET regarding women 40-49 - eligible for FREE screening mammograms but not told they exist!! 20% of BC's are found in women aged 40-49 and these have been available since 1993 - when Bob Hawke lowered the age eligibility from 50 to 40. So for 26 years this has existed, still most women  their 40's have no clue.
    My BC was picked up on my 4th regular screen at 46, so I have a different perspective to you. I know it is imperfect, but the stats show just how much of a difference screening makes to the population. In total agreement regarding the cost to government and early detection. I am so completely over BreastScreen Australia touting early detection - yet not promoting their sevices to all eligible women and excluding women 40-49. JUST NOT CRICKET!!
  • arpie
    arpie Member Posts: 7,733
    Options
    OMG!! @JJ70 ... I didn't realise those under 50 can be tested for free! We must spread this around - is that Australia wide??   I thought it was only from age 50 to 74 (I 'like' the 74 BTW .... why not 75 or 76 ... Did knows there are enough older ladies diagnosed as well!!)

    Yes, I must admit that a helluva lot of BC IS picked up early - but it is the most easily identified, not the tricky ones.

    Yep, totally NOT CRICKET .... and about 90% don't have any family history as well, so not aware  it may be them - as shown by the current advertising campaign - but many will still ignore it!  :(  Thinking it won't happen to them.
  • Flaneuse
    Flaneuse Member Posts: 899
    Options
    @JJ70 and @arpie People slip through the nets. I had my regular Breastscreen QLD mammogram in Nov 2016 and received the "nothing to see here" letter - also a note that that would be my final screening with them, because I was approaching 75. 
    Nine months later, I found physical symptoms. At the Wesley BC, neither the mammogram nor the tomosynthesis showed anything. It took 1.5 hours of a three people ultrasounding me, to find it. Stage 2 Invasive Lobular (like 20% of BCs) - very diffuse and subtle, hard to detect. Ended up being a 12 cm tumour. And papillomas in the right.
    I have dense breast tissue. My daughter and nieces have now all been off to have ultrasounds and will do so regularly.
  • arpie
    arpie Member Posts: 7,733
    Options
    Pretty sure my 3D/tomosynthesis also didn't show mine either (as with the mammogram) - it was only the ultrasound that picked it up and even then, it was 'inconclusive' and suggested a biopsy to be sure to be sure.   Have you had any other scans @Flaneuse - MRI, PET etc?  I haven't, tho am tempted to ask for one, so there is something to compare it with further down the line!?

  • Flaneuse
    Flaneuse Member Posts: 899
    Options
    @arpie I had MRI and CT scans before surgery (in Jan last year). Recently had my one-year tomo and ultrasound. I didn't ask whether I would have any other scans before the end of year two. Might phone them and ask one day when I'm feeling up to it.
  • arpie
    arpie Member Posts: 7,733
    Options
    Was it your GP that suggested the MRI & CT, or your specialist @Flaneuse?  It has never been raised by anyone for me!!  Were yours covered by medicare?

  • Blossom1961
    Blossom1961 Member Posts: 2,411
    Options
    @arpie My BS insisted on both a MRI and a CT before any treatment even started. Medicare paid it all, I didn’t even see the bill.
  • kmakm
    kmakm Member Posts: 7,974
    Options
    @arpie @Blossom1961 MRIs especially, CTs to a lesser extent, seem to be completely hit and miss depending on your doctor. There are no discernible guidelines as far as I can tell. It's up to your doctor. My BS is not a fan of them unless absolutely necessary.
  • arpie
    arpie Member Posts: 7,733
    Options
    Interesting, @kmakm  .... have you ever asked for one, to be told 'No' - or you haven't chased it up as your BS isn't a fan?

    My query is - if you don't have one at 'some stage' - how do they know what they are comparing the next one to?  

    We are given mammograms every 2 years 'just in case' and there is already some level of exposure to 'radiation' there .... We all have the odd dental X-ray 'in case' we have dental caries ..... so it makes sense to me to have a body scan at least once since diagnosis.

    THEN - you only have others if you suspect something else is seriously wrong.

  • kmakm
    kmakm Member Posts: 7,974
    Options
    I've never pushed for one @arpie. The professor I saw last week is also of the opinion that they can send you down the rabbit holes of unecessary worry, stress, biopsies and investigations. I've never been entitled to a subsidised one and so the cost is a big issue for me as well. All our savings are gone due to my breast cancer, there's no buffer anymore.

    I'm focussing on survivorship, and with a colonoscopy coming up and the possibility of a problem being found (because of my multiple risk factors), it's something I may yet need.

    I'll always be slightly uneasy, but I have to trust my doctors and move on. I've done everything possible treatment wise, to reduce the likelihood of a recurrence or new BC. I plod on.
  • Flaneuse
    Flaneuse Member Posts: 899
    Options
    @arpie All covered by Medicare in Qld public system in Brisbane. Standard procedure for BC patients.
  • Flaneuse
    Flaneuse Member Posts: 899
    Options
    My pre-surgery CT scan did reveal spots on my liver (subsequent ultrasound revealed nothing) and thyroid (subsequent u/s revealed small nodules and I now have six-monthly u/sounds of those to monitor).
  • Flaneuse
    Flaneuse Member Posts: 899
    Options
    @arpie Go, you good woman! Koala stamp to you.