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Exemestane and zoladex

Sunshine0206
Sunshine0206 Member Posts: 146 ✭
in Tests, treatments and side effects
Afternoon ladies,

42.

triple positive.


About to have my last herceptin.

I have just stopped tamoxifen and started exemestane in conjunction with zoladex.

Starting Zometa infusions 6 monthly for 2 years in December. 

Anyone following similar path?

x
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Comments

  • Sunshine0206
    Sunshine0206 Member Posts: 146 ✭
    Ok. Does anyone take exemestane alone?
  • Sunshine0206
    Sunshine0206 Member Posts: 146 ✭
    Aromasin aromasin is the brand name
  • kmakm
    kmakm Member Posts: 7,974 ✭
    @arpie does but she's away this weekend. She'll get back to when she's in range I'm sure. K xox
  • Zoffiel
    Zoffiel Member Posts: 3,374 ✭
    I take Exemestane. I've tried the other two AI and this is my last option. I had my ovaries removed so I dont need the Zolodex.

     I started with Letrazole in April 2017, changed to Anastrazole 12 months later and made the final switch about a month ago. I did have an AI free holiday for a month before that.

    The previous two drugs made me truly miserable. I took Tamoxifen for 5 years when I was first diagnosed and had no side effects at all. I also had a recurrence so may be no pain no gain? That's a joke BTW. Sort of. 

    I don't know if it's just time, the drug free holiday (after two weeks I felt bloody fantastic, unfortunately) or whether this version suits me better, but the misery has subsided to vague displeasure. A marked improvement, but this has hardly been a reliable trial. Mxx
  • Sunshine0206
    Sunshine0206 Member Posts: 146 ✭
    Lol. Trial! Small sample size!!! I get you.

    Thank you. From what I can make out it’s a steroidal AI? The other two are non-s AI.

    I spoke to pharmacist yesterday and he said the steroidal AI act more like the molecules they are trying to block.

    Quite frankly I don’t care. 🤣 Long as it works.

    Yes am seeing surgeon in 2 weeks to have ovaries removed.

    @Zoffiel
    Did you have Zometa?
    x
  • arpie
    arpie Member Posts: 8,324 ✭
    Hi @Sunshine0206

    I started on Letrozole after I completed radiation at Easter & started it shorty afterwards.   It didn't really suit me & I wasn't happy with the side effects.  After 6 weeks, I had a checkup with my Onc & we discussed my pain issues (continual aches & pains - quite significant, given that I was already in pain with arthritis anyway .....) and she suggested I try Exemestane instead - and has been quite happy with the results since.

    I still have 'some pain' but it is totally manageable!  

    All the best with your ongoing treatment!!  xx
  • Sunshine0206
    Sunshine0206 Member Posts: 146 ✭
    Much thanks. X
  • Scared Mum
    Scared Mum Member Posts: 169 ✭
    Exemestane in conjunction with Zoladex.is there something you are worried about I can get my daughter to talk to you about she had been on both for 3 years at the start she had problems but her body has settled with now she was offered a change now as it has been  3 years to stop Zoladex and Exemestane and change to tamoxifen which she has declined as her body has been  fine with both drugs now why stuff with something that is working
  • Zoffiel
    Zoffiel Member Posts: 3,374 ✭
    @Sunshine0206 no, I haven't had that.
  • Anne94
    Anne94 Member Posts: 171 ✭
    Hi @Sunshine0206,  I started on Exemestane and Zolodex.  I was only on Exemestane for 1 month then changed to tamoxifen as I still managed to have a period.  
  • Barney74
    Barney74 Member Posts: 89 ✭
    Hi I'm on exemsestane and Zoladex only since January 2018  but want to get off 
    Exemestane 
    Aches and pains dont help 
  • iserbrown
    iserbrown Member Posts: 5,808 ✭
    If Exemestane is too hard talk to Onc and they will change you to something else.  I am now on my third 
  • Sunshine0206
    Sunshine0206 Member Posts: 146 ✭
    I’m on my fourth month of exemestane/zoladex. It’s not too bad. Better than tamoxifen. I don’t have aches more like stiffness. Would I have had that without breast cancer? Maybe. I won’t ever know.

    I find that I feel much better if I exercise. 

    Ovaries/tubes being removed in 6 sleeps. Then no more zoladex. I actually think the zoladex makes me stiff. I was on it for a month before starting exemestane. Anyway we shall se what we shall see after the surgery.
  • maggie14
    maggie14 Member Posts: 22 ✭
    Hi @Sunshine0 i'm  on Exemestane and Kisqali , have been since Feb , 2 lots of scans in that time, but have been stable , side effects are coping with the pain and fatigue, but that's ok ,stable is my number 1 word in all of this.
    I also have Zometa  every month, I have numerous bone metastases 

  • lgray3911
    lgray3911 Member Posts: 207 ✭
    Hi @Sunshine0206 I did one round of Zolodex and Exemestane but then opted to get ovaries and tubes removed. Am 39 was 37 at time of diagnosis. Have been on Exemestane for nearly 6mth and only side effects I have is stiff joints but once I get up and moving I’m fine and excercise helps xx

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