Mastectomy 42 triple negative diagnosis
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Hello and welcome@Shellbelle_75 The information below is what @SoldierCrab provides to new members to our online community.
Navigating the online community formerly the what and how thread.
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey Kits and other resources.
https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.
How to understand your pathology reports
https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html
Please do not hesitate to contact the BCNA Helpline for support and to help you navigate all the information.
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Thankyou @Riki_BCNA0
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hi there @Shellbelle_75 i was diagnosed aged 43 TNBC may 2016 , left boob grade 3 stage 2a (3cm tumor), had left mastectomy no lymph nodes involved scans all clear, i had 8 rounds of chemo - 4 AC and 4 paclitaxol 2 weeks apart for 16 weeks,no family history and negative for the gene test (you will probably qualify for this too as you are under 50 and have TNBC) then 6 months later i had a preventative mastectomy of the right boob (my choice) and Im doing great, Im happy to chat anytime, just PM me if you like or I can see the others in our club have been tagged too @Spiv1803 (im pretty sure thats her BCNA name, I only know her by her actual name now lol) is in WA also Im not near you (Qld) but sounds like @JJ70 is close by for a chat, I was sorry to hear about the other stuff going on in your life, there's never a "right time" for any shitty things that happen in life hey, rest assured you will get plenty of support on here with the crew, keep us posted on how you go @SoldierCrab is bloody awesome for advice with all your questions. big hug. margie xx1
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@onemargie so good to hear from you Thankyou,the TNBC diagnosis has scared the living crap out of me,I am really trying to stay focused and positive and not let fear consume me as at times it’s suffocating
my surgeons appointment is next Monday re lymph node involvement
And treatment etc i have been told my tumour is Grade 2 but I don’t have a stage yet.
Thanks for the advice and support I really really appreciate it0 -
Hi Shellbelle_75
I am now 6yrs out from diagnosis I had bilateral mastectomy and lymph clearance. I had node involvement and did 9mths of chemos TAC, then AC then paxitaxel then another due to neuropathy. then rads
I am cancer free and reclaiming life.
I get the being strong single parent since '99 with 3 still at home.
2 with autism.
Take it one day at time and dont google.
soldiercrab
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@SoldierCrab Thankyou! You are an amazing woman! Tell me what do you think kept you strong and focused
I am at the start of your journey,if you think back what drove you?
My huge drive is my boys as a sole parent but I am wobbling currently and trying to collect myself0 -
hi Shellbelle,
My kids wanting to be here for them then 15, 17, 25.
seen my daughter grad school now in her 3rd year of uni
seeing my boys become more independent with NDIS supports etc.
Accepting help and knowing when it was OK to just be ......
mediation helped me
I had a great Breast Care nurse and a few very supportive friends.2 -
@SoldierCrab I hear you! Previous to this I worked full time for an NDIS provider as a support worker I loved the role and plan on returning
thankyou for your thoughts
count down until Monday for my results and treatment...1 -
@onemargie are you interested in sharing your story on my campaign: Can at 40. Do at 45?
If your on FB, here is the link. Let me know if you want to know more. Basically it is a campaign for government to spend $$ on awareness of free mammography from 40 and to lower the invitation age to 45.
Anyone can like the page ladies.... but I am collecting stories of ladies diagnosed in their 40's. Could save some lives!!
https://www.facebook.com/Can40Do45/
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@SoldierCrab can I ask please did you have - Targeted therapy that I keep reading about that is additional treatment in regards to treating the HER2 positive protein?
i thought I had read it is an additional intravenous treatment that is given like chemo to specifically treat the HER2
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NO I had what was standard TNBC treatment back then surgery then TAC,AC, Paxitaxel, then FEC think it was .....
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Thanks @SoldierCrab I believe the targeted treatment is only within the last 3-4 years x0
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Ok so HUGE LEARNING CURVE..... I am triple POSITIVE NOT NEGATIVE. I misunderstood the terminology
ER +
P +
HER2 +
so it appears I am looking for triple positive members to also chat to x1 -
