2 years on Prolia injections have significant affect on Bone Density improvement.

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  • [Deleted User]
    [Deleted User] Posts: 0 ✭
    edited July 2018
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  • [Deleted User]
    [Deleted User] Posts: 0 ✭
    edited July 2018
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  • Afraser
    Afraser Member Posts: 4,374 ✭
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    My oncologist hasn't proposed I take Prolia. I suggested it as a possible antidote to the effects of Femara, which are patchy but unquestionably have had an impact (my bone density at 68 was described by my oncologist as being comparable to a 35 year old, it's much closer to being comparable to a 72 year old now and I don't think that's sudden ageing!). Many thanks to everyone for their comments. As I am osteopoenic,  I think I will keep up the weight bearing exercises (I wish there was a Bone Clinic in Melbourne but I can work with some of the online stuff) and monitor. 
  • [Deleted User]
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  • melclarity
    melclarity Member Posts: 3,503 ✭
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    @Afraser and @Joannie I think that's just the thing, I wasn't given a choice in my circumstances, there wasn't another alternative. Ideally at the time? after what I had been through?? I honestly didn't want to take anything at all period. Our paths are not always easy and we really are in our Specialists hands for the best outcome as individuals. We certainly put our faith and trust in them, I didn't have him for my 1st diagnosis, but to hear him say that radiation I had in 2011 didn't work, so something went wrong?  was tough. But I'm on a good road taken many years but am working full time again with much more responsibility and super active physically. So my results for this really mattered for what I went through, I understand its not for everyone, but it really was the only answer for me and with such positive results. I really didn't think it would attract anything negative. :/ 
  • [Deleted User]
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  • melclarity
    melclarity Member Posts: 3,503 ✭
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    @Joannie thanks and I wish you well in retiring very soon, for a well deserved break. All the best moving forward. This is my last thread :) xx
  • [Deleted User]
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  • primek
    primek Member Posts: 5,392 ✭
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    Hi Mel. I don't think it was negative. It's just allowed for  discussion. I think we all need to allow people to hear alternatives to talk over with oncologists and GPs. It's fantastic you are now out of dangerous level range and hope it continues to improve as your health and fitness has too. I really wanted to go on prolia initially and for my sister who has had multiple fractures it was absolutely what she needed. We are both doing the bone strengthening program and eagerly await our next bone scans to see results. I expect hers will be much better than mine but she had much further to go. Time will tell if I'm doing enough. It may not be. 
  • melclarity
    melclarity Member Posts: 3,503 ✭
    edited July 2018
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    @Primek I think I was honestly just focusing on the result which I shared, I welcome opinions absolutely, but I think people may not have realised the story behind it and why it was good news for my individual case. It did take away from a little joy and win that I felt for the first time in 3yrs. Kath, I have been lucky in that I have only been with my Oncologist for 3yrs since 2nd diagnosis, so not my whole 7yr path. Our appointment last week was the first one where I walked out with a respect for him, for his knowledge and his expertise. He has always been brutally direct and a no nonsense approach which I value, there is NO sugar coating with him and I have found it hard in the past. Everything he talked of made complete sense, it was hard to hear his opinion of my previous diagnosis and the handling possibly of it. 

    I think I am very misunderstood and others seem to miss the parts in all my posts where I have said, I exercised heavily prior to 1st diagnosis, after that and pre 2nd diagnosis. The minute I finished chemo I had a very LONG HARD recovery, thankfully I had an Exercise Physiologist who I cannot praise enough that I worked with for over a year. I exercise NOW! am rigorously active in my job also. I have ALWAYS been PRO exercise for many reasons...seems some only hear a certain part of what Ive said in relation to this. 

    I know the value of weight bearing exercises, and building into it now, I actually did body building in my late teens early 20's so I know all about it, I even still have my weightlifting belt. LOL and it fits ;) 

    I also dont attribute my good results to JUST Prolia, I have worked DAMN HARD! 

    I've been on medications for 7yrs, 4yrs on Tamoxifen and 3yrs on Arimidex/Aromasin, did that impact my bone density prior to chemo, possibly. So yes I'm proud of what Ive achieved :) 
  • Lmc1310
    Lmc1310 Member Posts: 120 ✭
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    Hello Mel, I remember when I first came on this site (12/16) that your posts promoting using exercise physiologists inspired me. As a result I found an exercise physiologist during first AC chemo. Through my interest in exercise (inspired by you) I researched ways of building bone rather than taking drugs. I found the clinic in DeeWhy because of you. It has been running for around 6 months. Your journey has been longer and has been inspirational. I respect your input very much.  Thank you so much and very best wishes.
  • [Deleted User]
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  • Lmc1310
    Lmc1310 Member Posts: 120 ✭
    edited July 2018
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    I just purchased and read the full report on the Liftmor (bone clinic) trial August 2017, Griffith University. From my reading the study was for post menopausal women and excluded women undergoing cancer treatment among other exclusions. @melclarity you are absolutely right having faith in your oncologists and continue to rejoice in your results. It would be great @BCNA,  if a trial of Liftmor for pre and post menopausal women undergoing BC treatment could be sponsored. I am much earlier in my journey Mel and have osteoporosis in my arms and osteopoenia back and hips. I will give the programme 12 months and then if necessary start Prolia. I am a little unsure as Prolia has been shown to reduce the risk of recurrence. As @Afraser says, decisions, decisions. In the meantime Mel, continue your trail blazing and valuable support you give us all.  
  • [Deleted User]
    [Deleted User] Posts: 0 ✭
    edited July 2018
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  • Lmc1310
    Lmc1310 Member Posts: 120 ✭
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    @Joannie the clinical trial link: www.ncbi.nlm.nih.gov/m/pubmed/28975661 - it cost USD$38. I'm no expert so found it hard going and a lot went over my head. Whilst I am loving high intensity weightlifting and hoping it strengthens my bones as it did in the women in the trial, the fact that the report noted that the trial excluded women undergoing cancer treatment or pre menopausal is of some concern for me. I am going to discuss continuing the bone clinic program with my oncologist and reviewing in 12 months. It is of course a worry too that I am forgoing Prolia's impact on recurrence. @Joannie I'm not sure if my link is the same as Mel's. 

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