Hi, newbie here
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I went back to Breastscreen to get the results of the core biopsy which indicated invasive lobular cancer, got straight into my GP that afternoon who booked me into see the surgeon the next day. Luckily we hadn't cancelled our health cover so I was able to go private but even so, the surgeon didn't charge me a gap due to financial concerns (the hospital was a different matter). From there it was CT scans to check whether there was any spread, then a date for surgery for a partial and sentinel node biopsy. Unfortunately for me, although all tests had said that the cancer was only 2.5cm with no nodes involved, the surgery and subsequent biopsy showed otherwise. It was 4.5cm, no clear margins and with 3 nodes involved - ILC is a very sneaky beast. That meant a second op for mastectomy and axillary dissection but there was nothing further to find. It is only after the tumour and sentinel nodes are taken that they can really give you a clear path report of the cancer which will determine your recommended further treatments.2
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Just got a call, they need more time to do more tests so changed my appt from tomorrow (wed) to next Monday0
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Oh how infuriating!0
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Yes not what I wanted to hear after already waiting 6 days and now I have another 5
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Hi @SallyS I definitely can’t add more than the info the ladies above have already given. I’m new here since January and can definitely recommend this forum for absolutely any questions you have. There are some incredible and generous women on here. Good luck for everything!0
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My cousin was diagnosed in late January (after getting the recall in December but having to wait over Christmas/New Year for an appointment). She is in the public system and has been waiting all this time for surgery which was supposed to be last week. Apparently, the dye was injected into the wrong place so she's now rescheduled for 3 weeks later. I would be beside myself.0
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and that means your cousin will be having the die injection again. I imagine she is beside herself.0
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That'd be right. I don't know how she's managing - I did suggest this group but she didn't want to join so hoping she may change her mind. Maybe she is like me in the beginning and stalking secretly.0
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I know the difference between a lumpectomy and a mastectomy but what is the difference between them as far as why they do one or the other? Is it because the cancer is bigger or spread more?0
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@Sister OMG she must be beside herself with stress and worry! My heart goes out to her. I got caught in the Christmas delays and absences, but nothing as bad as that. For me that injection is the single most painful thing in this whole event thus far.
If you're lurking Sister's cousin, come on in!
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wow Mine was injected once they put me out to it.....0
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@SoldierCrab Wish I'd had that option...0
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Wish I'd had that option also @SoldierCrab ..... and if you are lurking @Sister cousin I feel for you on this one. I unfortunately read up on the procedure on one of the American websites the week before the procedure . It put the fear of God into me. Never again will I Dr Google unless it's BCNA or UK equivalent.
@kmakm I thought I was the only poor sod that had the injections the day before. Wonder if we share the same surgeon.0 -
Hi @SallyS,
Whether you are able to have a lumpectomy will depend on the size of the lesion/s vs the size of the breast. Sometimes its just not an option. Some women choose the mastectomy instead anyway which sometimes avoids the need for radiation and they are more comfortable with that decision. I chose lumpectomy as I was given a choice. 19mm tumour vs 14D breast. I did have to go back for a second surgery as some of the margins were too close. All told I am happy with my decision and the cosmetic outcome is probably as good as it gets. I never had the blue dye as the lesion in my lymph nodes was larger than the breast one so I had to have the auxiliary clearance.
xoxoxo.0
