Newly diagnosed and learning
Comments
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Hi Lillian, thought I would check in and see how you are doing.
It is so difficult to mentally prepare ourselves for an appointment - of course one thing leads to another - appointment with oncologist, haircut - all little hurdles to overcome as mentally we make plans and then they get changed or put back. You sound like you are pretty organised to me !
Let your hair down and enjoy a wonderful evening with your husband - just the two of you and without your little girls. You both deserve to spend that time together just being husband and wife without all the other distractions going on.
Try not to let that anxiety take hold. My cousin's daughter was diagnosed with bc just over a year ago and her oncologist recommended the same treatment as you - chemo first then mastectomy. The chemo will help to stop the cancer from growing and spreading further in your body and there have been cases where the lump has gotten smaller following chemo and before surgery. My cousin's daughter was also told by her oncologist that recent studies have found that it is being recommended more and more with current stats and research.
Hopefully the discomfort from your breast and swelling won't continue to be an ongoing problem for you. That heaviness in your chest however perhaps is from concern and worry (not just your lump and swelling). All perfectly natural and understandable.
Take care - Sheryl xx0 -
Hi Lillian,
Also, I found Cancer Council's "Cancer Connect" program extremely helpful. They basically pair you up with a support person who has recently finished treatments and who are in a similar situation as you ie tumour size, grade, young kids at home, the planned treatments you'll have whether it be surgery, chemo, radiotherapy and hormone therapy. My support person was also a mum with young child and she gave me very practical advice about how to look after my oral hygiene to prevent mouth ulcers or tooth decay (as we are immune suppressed) from side effects of chemo such as vomiting (luckily I never did). She recommended that I use Biotene Dry Mouthwash and Sensodyne Pro Namel toothpaste (protects teeth against effects of acid wear if you vomit) which you can buy at any chemist. You can also get GC Tooth Mousse from your dentist, it's a topical creme with bio-available calcium and phosphate. If you haven't started chemo, organise to see your dentist for a check up and clean. I found my support person an invaluable resource while going through treatments because I felt so alone as no one in my social network is going through breast cancer treatments so they don't know what you are going through really even they sympathise. A bit like being pregnant, you need to have been pregnant to know what morning sickness feels like for example.
I also saw the Catalyst and because of that, I have exercised throughout my chemo treatments and still continues during radiotherapy now. I exercise 4-5 times a week. I used to go for a session on a chemo day after the injections. Call me crazy but I felt Ok so I did.
The best advice I've ever got was to trust my oncologist completely, and don't worry about what other people say how their mum did this when she had breast cancer and don't Google (unless it's from credible sites like the Cancer Council or BCNA)! It will just make you more stressed. If your medical team has recommended you having chemo first then there's good reason for it. I know the feeling that you just want the tumour out ASAP but I'm sure your doctors knows what they are doing so just focus on your girls, go do exercise, eat well and rest well, prepare your body the best you can as it is going to battle. I had been very lucky to not had any mouth ulcers, any change in taste buds, not much diarrhea in terms of side effects. I believe it was exercise that kept fatigue at a minimum. In a way I'm glad my girls are so young that they don't understand what's going on and doesn't ask questions yet. I just tell the older one that mummy's sick and needs to go to hospital and she's OK with it.
Remember just one day at a time, you will get there.
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Hi Lillian,
I forgot to mention that having a portacath inserted is an excellent idea. My brother who's a Consultant Radiologist at St Vincent's suggested that I have it to save my veins given that I'm so young. If chemo is delivered by cannula it will damage the veins permanently, so in the future it will be harder for the medical staff to give drugs intravenously. Inserting a portacath is a simple procedure where they insert the device under your skin and everytime they just access the site to give you chemo. This procedure is carried out by the Radiology Department. They can also take blood from the same site. So on chemo days I just get the chemo nurse to take blood in the morning, wait for the results and then receive chemo later that day. If you do get a portacath, remember to ask for a "emla patch" each time you finish chemo, you put the patch on about 1-2hours before accessing the port to numb the area so when the needle goes in you won't feel a thing.
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You are doing great. I'd be buying in some movichol ahead of time as the chemo can make you really constipated. I didnt find anything else worked. Also even have some zantac if you are not on reflux medications, as it is a common side effect. It might get you through until you can see a Dr. The gastritis, bloating and constipation was really hard to deal with for me but once sorted I was good by 3rd cycle. And if nausea issues ...tell them. So many other options than the standard. Won't be long now. (PS I felt the same waiting for my surgery)0
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Well I start Chemo on Tuesday. Will be every 3 weeks for 18 rounds - Docetaxel, Doxorubicin, Cyclophosphate.
Thanks for all your advice. I have a chemo day bag, full of things to keep me busy (or just to sit and relax). Teeth have been checked. In touch with Mummy's Wish. Have changed my diet and actually lost 2kgs, which is good cause I'm overweight. Seeing a dietician tomorrow to make sure what I'm doing is right.
have my Netflix's cued up.
i think I'm about as ready as I can, though I know until I am in the trenches I won't know exactly how it will effect me. I'm feeling very positive, which I think is with thanks to some great meditations I found.
@Tingy great to hear the exercise is working for you
I'm off to see an Exercise physiologist on a Friday, so for now just doing some walking. I hope I can keep up the enthusiasm!
and I cut my hair short from mid back level. I'm loving it, so will enjoy it for another week before I shave it off
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Lilian good luck with heading into Chemo, it can be very daunting, I remember it like it was yesterday and am now 14 months post Chemo. I had 4 FEC 3 weekly and 8 Taxol, do communicate emphatically with your team especially as I see you are on Docetaxel as there have been alot of posts from alot of women on here regarding this particular one. You sound ready and setup which is great, I too did the same and felt some control...however it went pear shaped and reminded me that in life there are no plans and its OK...I was very ill on Chemo 4.5 months. I had to stop work which was difficult being a single parent of 2 but once I accepted my path I learnt alot and I'll never put work before me again. I couldnt exercise and had to learn to walk again pretty much, been a long road to recovery but Ive been seeing an Exercise Physiologist for a couple of months now and am rebuilding. She works with quite a few women who have BC but she also said she doesnt work with anyone in treatment that light exercise is ok but its a time of healing unless you were an athlete prior. Rinse daily with salt water, if you do get ulcers Kennalog is a cortisone paste thats fantastic! Nexium from your specialists is the best for reflux...coloxyl tablets for constipation or believe it or not PEAR JUICE.
Its a hard difficult road, but believe me once you come through the other side you will actually have some incredibly special moments along the way. Biggest of Hugs xo Melinda
A very SILLY PHOTO of My LAST CHEMO..
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Well done, Lillian. You've put yourself in the best position you can, now it's a matter of wait and see.
Chemo is unpredictable. You can have a couple of good rounds then a complete shocker, then back to being OK. I can't figure out what makes the difference and it probably doesn't matter as long as I keep reminding myself that next time is a whole new ball game and I won't know how it will affect me until I've done it. Hopefully you breeze through it; being young is a huge advantage, your body is more resilient and it sounds like you have heaps of drive and motivation.0 -
Best of luck, Lillian, with your Chemo.
Mel, where did you get that lovely Aqua headscarf?0 -
Hope all goes well. I had to give up bits as I went when I realised I couldn't continue work and exercise as much as I thought I'd be able to. I just kept an open mind and did the best I could each week. Keep us up to date with how you go. X0
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@Unicornkisses well I got the Aqua hat from headcovers.com it was just a cotton small hat, the actual small scarf I added myself, believe it or not My mum made a dress and there was this little scarf left over and I found it and thought hmmm I wonder if it would look ok...and so I tried it on, only one time I ever wore it, so it was lovely to have my Mum close to me...Thanks xo1
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Good luck Lillian! I hope it all goes to plan and you sail through0
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Cycle 1 done and dusted.
the centre is lovely, I'm loving all the crochet blankets. A lovely lady dropped off some chemo caps so I picked myself up a cute little turban.
feeling a tired and a little nauseous but the steroids are making me jittery.
Part of me still can't quite believe this is what's happening but there it is.2 -
You just turned an important corner, you might not believe it yet but you have. You are on your way to being well again. It won't feel like it, and if won't happen overnight but, at the risk of sounding like the ad, it will happen. Believing helps. Best wishes.1
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Well done....hear those cancer cells screaming. Hope round 2 goes well. Keep in touch with your team about side effects, they can help and adjust medications as needed.1
