Peripheral Neuropathy success
(Re posted as requested with new title) Just thought I would share the success I've had with Alpha Lipoec Acid for my peripheral neuropathy. It's an antioxidant support, I've been taking 1 tablet with breakfast and dinner, 400mg (says you can up to 3 a day) suggested by my Med Onc and it has really helped! I hope others may have success with it too xx
Never say never
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet I was looking for some information on PN just to check how long it may take for improvements to keep happening and found this site, which I think is pretty useful. Most tend to focus on pain relief, which is absolutely fair enough if you have pain, but I don’t and was looking for more info on sensory nerve damage. Because my feet just took another small step forward - absolutely no idea why but good stuff! I can feel most of the area between my soles and my toe tips - doesn’t feel entirely normal but definitely there! Toe tip feeling came back nearly two years ago. I can walk perfectly well, just don’t trust myself running! Happily sensory nerve cells can revitalise themselves it seems. Seven and a bit years and who’s counting! But millimetre by millimetre we are getting there!ALA for PN (Peripheral Neuropathy)
Just thought I would share the success I've had with Alpha Lipoec Acid for my peripheral neuropathy. It's an antioxidant support, I've been taking 1 tablet with breakfast and dinner, 400mg (says you can up to 3 a day) suggested by my Med Onc and it has really helped! I hope others may have success with it too xx
Neuralgia.....numbness hands & feet
Hi all. Just wondering what others have done about the numbness of hands/feet due to Taxol treatments please ? I have just had Round 9/12 treatments and the past week & a half I have been experiencing numb hands, feet, fingertips and today a sore / numb knee. I am taking B complex, olive leaf & magnesium /bark....also taken a couple of Aspro Clear.....What does peripheral neuropathy of the feet feel like?
I am 15 months on from my Chemo EC and Paclitaxol. My feet have felt odd, ever since. I haven't complained much about it to the Onc. I'm sure it is not a big problem for me. They feel quite normal when standing/weight bearing. But when I elevate my feet, the soles feel weird. Just not right. Almost like they are separate. But normal when standing. Does this sound like PN? There is no pain.
My peripheral neuropathy is back with a vengeance
Hello folks, I've been away a long time, trying to get on with life and deal with other health issues. I thought others may be interested in this issue that has arisen for me lately. Three years yesterday since the end of chemo, it seems that my peripheral neuropathy is back. I've had a residual numbness in the front of my feet - particularly my left foot - for some time, but put that down to worsening arthritis. The toes have gradually become more misshapen. Also increasing arthritic pain in my hands. But about six months ago, I started having burning sensations on the skin of my feet - toes, instep, ankles, and some parts of my hands. My GP ordered a range of blood tests and - other than a wobble in my thyroid levels and B12 deficiency - she said there was nothing to indicate anything other than to infer that it was a return and increase of the PN. My podiatrist said the same. I'd seen my medical oncologist for my annual a couple of months ago and hadn't mentioned it to her at that time because I hadn't thought it was related to the cancer. I was blaming arthritis. Interesting. Nothing to do except keep walking. A masseuse last week did intense foot massage and did toothpick pricking around my nails. I now do that myself most nights. She also suggested epsom salts (magnesium) foot baths. On my next shopping list. Greetings to anyone still on here that I used to "know". Cheers, Fran
Vitamin B for peripheral neuropathy?
Hi there, I am Sharon and would really appreciate if anyone has any recommendations with regards to taking a vitamin B supplement for peripheral neuropathy! I finished 18 weeks of Paclitaxel in February 2020 and am continuing with 3 weekly Herceptin and pertuzamab, and daily Letrozole. The neuropathy has not improved since I finished the Paclitaxel. I wondered if anyone has taken vitamin B and found at least some relief? Any brands that you can recommend? Thank you in advance. Regards Sharon
Paclitaxel Delayed
I was supposed to have my 9th paclitaxel this morning but was cancelled because I have had significant increase in numbness in my hands and some pain in my thumb over the past week,(even after onc reduced last weeks dose by 10%) My feet seem fine at the moment. My regular onc was on leave so the one on duty made that decision and said that they will see how I am next week and decide what is next. I am quite disappointed as I was getting towards the end of the chemo and want to get it over and done with. On the other hand I didn’t want to say everything was ok as I had read on a few threads here of the lasting damage PN can do. Has anyone had a similar experience?
Decision time re continuing Paclitaxel due to peripheral neuropathy - help needed
I have started to have signs of PN on soles of feet after 4 of 9 planned weekly Paclitaxel. Onc has left it to me to decide when to pull the pin. Symptoms are mild atm I think (numbness on soles, slightly tender on rough surfaces, discomfort after 3/4 of my usual 40min walk) but I have no idea how quickly they will progress from this to severe and very long lasting ones like some of you describe in other threads. I am terrified of becoming badly incapacitated after all the effort I have put into exercise and gym to keep mobility, balance and strength as I grow older. Time is so limited to access expert advice between weekly treatments and Christmas and I am scared that even one more dose may tip me over the edge. Is there anyone who was in a similar situation that can perhaps give me some concrete idea of the timing of the progression of their PN from week to week. The onc has said if I say this is all I am prepared to live with for 12 months he will delay the next treatment and see if there is any improvement. If there is he will try one more because it has shown that improvement is possible. If no improvement I will then have to go onto another kind of chemo that takes longer and is more involved (and I guess another swag of side effects 🙄). He says my prognosis would not be affected. Any information will be much appreciated as only a few days before next chemo. 🙁 Thank you!