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Friday Update - 5th of May 2023
Hello members, There is quite a lot of BCNA activity to share in this update; new cancer treatments recommended for PBS subsidy; Season 2 of the Dr. Charlotte Tottman podcast; 'Prioritising me – Setting healthy boundaries’ webcast and more! Also, Bakers Delight’s Pink Bun campaign is back! Head into your local Bakers…
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Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…
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I don't feel like myself
Hi, I'm new to the BCNA Online Network and have spent a little time today reading through some of your posts - just wanted to say thanks as I'm finding the posts useful, in some ways a little scary, but reassuring. I'm 54, I was diagnosed with early stage DCIS in late May this year - one week after starting a new contract…
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My Care - Understanding Best Timeframes for Treatment
Hi members, During October for breast Cancer Awareness Month, BCNA will shine a light on optimal breast cancer care. The aim is to raise awareness in the community, the health sector and amongst the BCNA network about what optimal care means. I know not all of you are on other social platforms so I thought this would be a…
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Skin Rash Side Effect with Exemestane (Aromasin) & Everolimus (Afinitor)
Hi All, I'm on week 5 with this treatment combo now. This last week I've broken out in a pretty bad skin rash, starts of red/pimply look and evolves into joining up into large red blotches. Its just horrible - I'm sure people will start thinking I've got Monkey Pox now! :o :D :( I've been to my GP on Onco Nurse's advice as…
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Newbie triple negative
Hi everyone I was diagnosed in December with triple negative bc. I’ve been visiting this wonderful forum probably daily, but have only now had the courage to join. I’m currently having fortnightly dose dense ac chemo, about to have my third round and am feeling really anxious about it. I found the second round a lot more…
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SHINE (The Sleep Health in Breast Cancer Study)
Hi Members, BCNA's Policy & Advocacy Team recently shared the below study which may be of some interest to you: SHINE (The Sleep Health in Breast Cancer Study-Evaluating the impact on psychological wellbeing and medication adherence) Researchers at the University of Strathclyde Sleep Research Unit in Glasgow (UK) are…
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Is anyone under Professor Arlene Chan Onc (WA)? Mets BC treatment
The Annabel Crabb Q&A on Metastatic Breast Cancer is on tonight - starting 5pm East Coast time (I've just received the link.) https://www.breastcancertrials.org.au/qa-registration? On the FB page, lots of other Top Mets BC Oncs are being mentioned too - as having 'turned around Mets BC' ..... giving hope to many of…
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4 years since BC diagnosis & joining BCNA & my surgery ...
Woohoo! This year was the first year that I didn't actually 'remember' that Jan 5th was the anniversary of my actual diagnosis of BC ...... so that must be a good sign! So - today - it is now 4 years ago since I joined BCNA (at the suggestion of a girlfriend in Qld who had been diagnosed a few years earlier) .... and a few…
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what to take to chemo treatments?
Ok so here is my question, I've had my mastectomy (healing well, thankyou), and now I'm about to start Chemo shortly, what do I take with me on the day? I've seen suggestions for 'chemo packs' and some seems practical and some seems over the top. If you've been through chemo, what did you find important to have with you?…