Sitting here at 4:15am (CST) after trying since 2:30am to go back to sleep and finally giving up, yet again... Wondering who else is out there this morning, and most mornings at this time?
@JJ70 I have a CT scan every 3 months but I have metastatic breast cancer. I have also just had another bone scan 8 months after my initial bone scan. My oncologist was originally talking about a breast MRI but I think she is trying to get my mets under control. I think any test that can inform our doctors is important. Then again, I wasn't tested as regularly with my primary diagnosis.
@Kiwi Angel@kmakm@SoldierCrab and anyone else on this thread....what do you all think of future bone scans and MRI's etc? I have always been proactive, rather than reactive about my health (this is how I found this BC, by having mammograms since 40). My oncologist and BS say I don't need them. Easy for them to say from their POV? I wonder about the radiation dose v's chances of actually finding a recurrence. As I understand it, the further away I get from 2017, the less chance of a recurrence. I am thinking I'd like another whole body scan in a couple of years. What are your thoughts?
@kmakm @JJ70 - some things are improving the further out I get from chemo so hopefully that will be one. Probably had a little anxiety as well as I went for a bone scan today just to be thorough. Hopefully the tamoxifen doesn’t give hot flushes.
@JJ70 @"Kiwi Angel" I'm having fewer now as well, the further away from chemo I get. Letrozole doesn't seem to have increased them, though they seem to pump out more sweat than before.
@kmakm - ha! This was me night before last. Had a solid one last night - yay! Didn't even hear hubby get up this morning at 530. @Kiwi Angel hoping for a better night for you tonight. You turning off screens at least an hour before bed? Could help. Although, as you say, it is the hot flush that wakes you. I am having less of those the further I get away from chemo (nearly 3 months now). I am sure when I start Tamoxifen on Monday I will be back sweating it out with you.
:( So sick of not sleeping properly. Stayed awake till just about 11 last night hoping I would sleep better but just woke up in the middle of the night an hour later. Get my first hot flush about 11ish wish wakes me a up and then arthritis aches and my own snoring is waking me up. Starting to affect poor hubby too.
-1° here on my Otis Foundation retreat last night as well! Made sure I didn't drink too much before bed so I didn't have to get up in the middle of the night!
oh Girls what a Sh*t when we don't want to go to bed or our sleep is broken by Hot flushes and insomnia. @kmakm Could you use your headspace app on headphones to help you go to bed and relax into sleep ? just a thought.... I have a great CD by Sarah Edelman called letting go that works for you it is available on Itunes if you want it
@"Kiwi Angel" are you having a glass of wine at night ? I find that if I have any alcohol at all I get hot flushes approx 4hrly for 24hrs .... just a thought....
@JJ70 at -1* staring at the blackness is better than risking creeping out of bed for me.....