Sitting here at 4:15am (CST) after trying since 2:30am to go back to sleep and finally giving up, yet again... Wondering who else is out there this morning, and most mornings at this time?
@Eastmum luckily I don’t work fridays - only 4 day weeks but 11 hr days so I’m easing back into it - 2 days this week and 4 days next week. Today I’m going to the physio about my possible lymphodema arm, then I’m going to pop into work with some pressies for the girls that have been so good to me during all this shit, maybe a little housework before I do this and then I’m gonna have a lie down and watch some telly this afternoon. Have a fun day planned tomorrow in the city. Hard trying to get back into exercise when your body won’t cooperate- will just have to try some yoga at home to stretch them out.
@"Kiwi Angel" - what a bugger Steph! Any chance you can take a day off today? Treat yourself to something that takes you to one of your happy places and have a bit of a rest? Xxxx
Worst sleep ever again last night - fuc**n side/after effects of chemo and the drugs. Hot flashes again all night and because I had a busy day at work and was on my feel most of the day my cankles has flared up and I had such sore calf muscles and the bottom of my feet were sore but also tingly and numb. I also woke myself up snoring a couple of times - I now snore for some reason - don’t know if it is the lack of nose hair or what!!
Sounds like you're doing great @JJ70 - so many other DIEP gals mention the tight abdo scar - I'm pretty sure that lasts for ages. What do they say about the hard lumpy bits? Where are they from?
I'm not going to have recon until sometime in 2019 because I'm going to have radiation after chemo - my plastic surgeon (who I love) is very conservative about recon on radiated skin. He told me that he'll consider doing a DIEP around 6 months after my rads finish, or if I opt for a transfer to implants then it will be around 12 months after rads. I'm only due to finish Chemo at the end of September and then radiation will be in October/November.
Hopefully the expanders will stand up to radiation - they're supposed to!
My healing colours head wraps arrived yesterday - they're so gorgeous!! xx
Hi @Eastmum. I am doing pretty well. Uncomfortable foob with hard lumpy bits.....and a VERY tight abdominal scar hip to hip, but healing is going well. So far, so good. Walking around the neighbourhood and doing most normal things, except lifting and stretching out flat when lying down. Just over 2 weeks now since single DIEP. Sneezinf, coughing and laughing are anxious moments! I am pretty happy with the results so far. Thanks so much for asking and checking in on me. x
@Sister hope today's chemo was swift and as good as one could hope for. Do watch that peripheral neuropathy. My last Paclitaxel was modified slightly, so as to lessen the chance of permanent neuropathy. 3 months post chemo now and I still have it in my feet, mainly the left. Never did get it in my hands. You only have 2 left by the sounds - but don't be afraid to tell your oncologist what is going on with your neuropathy, it can be a long lasting side effect and debilitating and painful. Hoping for the best for you. x
@Sister - your contributions are always so worthwhile - you always 'speak' from the heart and from your real-life experiences. It helps enormously to get an incite into what people are experiencing day to day - but I think we all just jump on here when we can (I'm being incredibly naughty these days and have the BCNA discussions page open on my computer while I'm at work so I can check in during the day) and yep, sometimes it's really overwhelming to login and find a ton of notifications - as @Zoffiel says, one of the best things about this discussion board is that no matter what time of day or night it is, there's always someone around to lend an ear or offer support.
Hopefully by the time you read this, #7 will be done and dusted - I can't wait to be where you are! I've just done #3 AC so I'm way behind you and you are a HUGE inspiration!
@onemargie - sending you lots of positive thoughts and hugs - sorry to hear you're having a bugger of a time at the moment xxxxx