I were first diagnosed in 2011 and had lumpectomy followed by chemo and radiation I then had a local recurrence in 2015 and had a double masectomy and reconstruction followed by more chemo and then daily letrozole tablet I have just been diagnosed with another local recurrence in my reconstructed breast I have had surgery to remove the lump and are awaiting the results. I am wandering what sort of treatment I will have as I have been told different things .It sounds crazy but I almost want more chemo as cancer has returned twice with chemo and it scares me to think what could happen if I don't have chemo.Anyone been in a similar situation.

Hi @0608hev. This BC just doesn't give up sometimes. I had BC in 2005, then again in 2009. Chemo both times and rads in 05. Tamoxifen then Zoladex. I thought I was done then in May another big dcis. I had a left mastectomy in 09, right side mast in May. I didnt do reconstructions for a range of reasons. My surgeon is confident I won't need further treatment as there were no nodes involved but I find out this week after her case conference with oncs. The thought of chemo again caused me nightmares but so does the thought of no further treatment. I am terrified that surgery isn't enough. Your doctors will consider type, any possibility of node involvement and other factors in treatment decisions. I have read many wise words from other ladies here to the effect that as difficult as it is not to worry about whats going to happen, to try and wait until you have all the info. It's not easy to do. Have your list of questions ready for the doctor when you see him/her next. Do you know when you will have the full results? Do you mind if I ask who has been giving you the different information? It took me awhile to come on here but these ladies are amazing. So much wonderful support and good advice. Keep in touch. :)

Thank you ladies for all your words of encouragement. I were very nervous to join here but am now glad I have as hearing everyone elses journeys realy makes me feel not so alone.I go back to see my surgeon with my pathology results on Tuesday the 12th sofinfers crossed for good news and hopefully a treatment plan .

All the best for Tuesday @0608hev. As @Zoffiel and @Kiwi Angel say meandering happens. It is truly a blessing to meander amongst women and men of great courage and experience. We come and sit, stand, fall, cry, vent, seek, rest, laugh, play, check in, respect and most of all accept who we are, where we are and stand beside to hold gently. The cause of us being here is one word and it is a scary place to start from. Be encouraged @0608hev there are people here for you.

Oh, what a nightmare. I had a recurrence 10 years after the primary. So, over a period of 12 years lumpectomy, Double mastectomy, reconstruction, repositioning/repair X 4, AC chemo, TC chemo, rads, tamoxifen, Letrazole, Anastrozole, auxillary clearance, ovaries out....not necessarily in that order. What do you have to get free of this shit? I, too, wonder what happens if I have another non metastatic event, how many potential 'cures' are there? I really struggled to commit to the last chemo as it obviously didn't work the first time. Or maybe it did. You may be a rare enough breed to qualify for some sort of trial, depends where you live. Best of luck, I'm looking over my shoulder (or under my tortured armpits) all the time too. Marg xxx

I too had my first diagnosis in 2011 and a recurrence in 2015 same breast, same spot :/ in the scar tissue. I did Chemo and 1yr after in 2017 I had a single mastectomy/diep flap reconstruction. I am so sorry to hear of what has happened, I know how I felt after my last bout, speechless. Im currently going on 3yrs clear so I too wonder how they will proceed. Keep us up to date how your pathology comes back. Thinking of you x Melinda

Recurrence | Online Network

kmakm
Member
7 years ago
What an absolute bugger 0608hev, so sorry to hear that. Hang in there and hang about here, we'll keep you company. K xox
0608hev
Member
7 years ago
I recieved my pathology results 3cm of grade 1 cancer was removed with clear margins so no more surgery wich was great news but given that it is a second reacurrence I'm having 6months of chemo followed by 5 weeks of radiation apparently after a masectomy and reconstruction they can repeat radiation because it's new tissue.
I start CMF chemo tomorrow .
melclarity
Member
7 years ago
@0608hev lovely to hear from you, please do let us know how your meeting goes, what your pathology is and your treatment. Having been here twice, I can't imagine another, the thing is we just do don't we? we deal with things at hand because we have to. I know how much strength it takes physically and mentally on any subsequent diagnosis, so do know, you do have support here...nobody gets it the way we do and in the depths the way we do. Hugs M xo
steplightly
Member
7 years ago
All the best for Tuesday @0608hev. As @Zoffiel and @Kiwi Angel say meandering happens. It is truly a blessing to meander amongst women and men of great courage and experience. We come and sit, stand, fall, cry, vent, seek, rest, laugh, play, check in, respect and most of all accept who we are, where we are and stand beside to hold gently. The cause of us being here is one word and it is a scary place to start from. Be encouraged @0608hev there are people here for you.
0608hev
Member
7 years ago
Thank you ladies for all your words of encouragement. I were very nervous to join here but am now glad I have as hearing everyone elses journeys realy makes me feel not so alone.
I go back to see my surgeon with my pathology results on Tuesday the 12th sofinfers crossed for good news and hopefully a treatment plan .
Kiwi_Angel
Member
7 years ago
@Zoffiel we r bad for meandering on here ;)
Zoffiel
Member
7 years ago
Hey @0608hev , as you can see, this is a topic that really rings some bells with many of us. 'Us' means you too. Jump in, sometimes the conversations meander a bit, but we want to hear how you are going. Marg xxx
Kiwi_Angel
Member
7 years ago
@"Patti J" sorry us had to go through this shit again. My plan is to live my best most fun life and to make the most of every day.
Patti_J
Member
7 years ago
@melclarity, @"Kiwi Angel". I certainly didn't sign up for this &%$$#@ disease! Once was bad enough. Second time...???!!! Nothing you can do to stop it. Just get on with your life. Make the best of life.
Kiwi_Angel
Member
7 years ago
@melclarity as like most women no history in my family. The only blessing is that I have to have a cancer it was “outside” the body and can be cut off and the support for breast cancer is amazing.