Good evening everyone. Some of you would have read my post on Not Dignosised yet. Today I got the results from my Core Needle Biopsy. All is clear I have not had cancer before. I have a strong family history. Om my mums side my grandmother and 2 Aunts one of the Aunts had breast and Ovarian Cancer. On my dads side my grandmother and 2 Aunts also breast cancer. My dad also has non hodgkin lymphoma not sure if tgat makes a difference. I am heading to a specialist as soon as my GP makes an appointment probably within the next week. I with the support of my husband and my GP am going to ask for Preventative Mastectomy. My results today said fibrocystic non cancer lumps. Am I over thinking this? I am so anxious about getting breast cancer in the future. I am 50 and have alot of plans for the future. Sorry for all my posts but I am at a loss of what to think. Cheers.

No I don't think you are overthinking it but as the urgency is gone I would definetly have genetic counselling. Knowing you have a positive gene might mean the need for additional surgery or not. Also if you do carry a gene it's important for your offspring. Because of family history and my Dad being gone...and the sample was held in Scotland, all 3 of my Dads kids were mapped and tested. So we can be sure he never carried it. They even sent out an original sample and retested mine against it again to be certain. They were so sure I had the gene because of age and the age they developed it.I had an Aunt who had bilateral breast and ovarian cancer (and 2 others had ovarian) but don't have her known faulty gene. At this stage they believe I'm just the average unlucky 1 in 8. Talking it over with a counsellor really helped me feel more comfortable. I had the mastectomies and reconstruction. I don't regret it. But I really miss the sensation of my breasts and it does impact on intimacy. We have a breast reconstruction group you can request to join. Many have included their photo stories. If you would like reconstruction you can plan this as same time as mastectomy.

@Pahill, you've probably given us the best news we could hope for, on your behalf. As @primek said, talk to a genetic counsellor about genetic testing, but at the endof the day, the decision to have preventative mastectomies is yours to make. I didn't have a mastectomy but I believe there is a closed faceboook group, called Reclaim Your Curves,that could be worth looking into. AnAustralian website you may be interested in is Pink Hope, to look at pros and consof preventative mastectomies Take care, & stay in touch

@pahill I also wish I trusted my guts the year before diagnosis when they found the fibroadenonoma which I’d never had previously and I wanted to get the mastectomies then but was told “it’s not necessary”. Don’t let My circumstances influence your decision but don’t ignore your gut instinct either love. Whatever you decide you will have ongoing support here with the gang on here. Margie. Xx

Hi everyone I hope you are all having a good day. I am sorry again to ask what may seem like a silly question after my results were ok from recent Core Needle Biopsy. If any of you are free could you send me a message so that I can ask for your help. Hope that is ok. I seem more stressed today than I was before this begun. Or I can chat here if its easier just don't want to be a burden on any of you as you are all going through alot more than me at this time. Thank you for listening. Cheers

Non Cancer Lumps Found | Online Network

SoldierCrab
Member
8 years ago
Pahill why not give the ladies at
BCNA Helpline 1800 500 258 a call

If you have any questions, concerns or require any further information or support please call 1800 500 258. The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm EST.
They will be able to answer things more accurately than a lot of us could.
Pahill
Member
8 years ago
Ok sorry. I will contact them about it. Thank you.
SoldierCrab
Member
8 years ago
no need to be sorry .....
Pahill
Member
8 years ago
Thanks for all your kindness soldiercrab. Hope your journey is going well. Cheers.
primek
Member
8 years ago
No I don't think you are overthinking it but as the urgency is gone I would definetly have genetic counselling. Knowing you have a positive gene might mean the need for additional surgery or not. Also if you do carry a gene it's important for your offspring. Because of family history and my Dad being gone...and the sample was held in Scotland, all 3 of my Dads kids were mapped and tested. So we can be sure he never carried it. They even sent out an original sample and retested mine against it again to be certain. They were so sure I had the gene because of age and the age they developed it.

I had an Aunt who had bilateral breast and ovarian cancer (and 2 others had ovarian) but don't have her known faulty gene. At this stage they believe I'm just the average unlucky 1 in 8.

Talking it over with a counsellor really helped me feel more comfortable. I had the mastectomies and reconstruction. I don't regret it. But I really miss the sensation of my breasts and it does impact on intimacy.

We have a breast reconstruction group you can request to join. Many have included their photo stories. If you would like reconstruction you can plan this as same time as mastectomy.
Pahill
Member
8 years ago
Thank you primek
primek
Member
8 years ago
The group link.

http://onlinenetwork.bcna.org.au/group/1-choosing-breast-reconstruction
Pahill
Member
8 years ago
Thank you I have requested to join
primek
Member
8 years ago
@mum2jj could you look out for group request. Thanks.
lrb_03
Member
8 years ago
@Pahill, you've probably given us the best news we could hope for, on your behalf. As @primek said, talk to a genetic counsellor about genetic testing, but at the endof the day, the decision to have preventative mastectomies is yours to make. I didn't have a mastectomy but I believe there is a closed faceboook group, called Reclaim Your Curves,that could be worth looking into.
AnAustralian website you may be interested in is Pink Hope, to look at pros and consof preventative mastectomies
Take care, & stay in touch