Before you go down the preventative mastectomy road, I genuinely feel that requesting those lumps are surgically removed is wise.
I had a lump on my boob that was mammogrammed, ultrasounded, core and needle biopsied and dismissed. I had spent a couple of months on this process before I finally cracked it and demanded the lump was taken out. I was treated rather shabbily and told I was overacting, until the lump that wasn't a problem was a 5.5cm lobular tumour. Sometimes I would rather be wrong.
Fast forward 10 years and I had to go through a similar process with a lump in my armpit. You'd think--given my history--that the bells that were ringing in my head would be audible to someone else, but no. That time it took nearly two years, probably 5 ultrasounds and as many needle biopsies before someone--my new GP--hit the panic button. By that time I had skin presentation of the same cancer. Lobular BC is a sneaky disease which does not present like DCIS. Once again, I'd have preferred to have been wrong.
As Margie has said, other peoples experiences should not drive yours, but if you are not comfortable, get that chunk of whatever removed. Marg xx