Go Forth...and live your life!
Hi Everyone, It has been a LONG time since I have been back online. The past few months have been one hell of a road trip indeed. The months away have been spent, trying to get through numerou...
Forum Discussion
Hello Lovely Ladies,
THANK YOU SO MUCH for answering my question. In the past couple of weeks, I have done some serious research and as much as I hope and pray that the side effects are small, considering how the Lupus was in full flare up the entire time during the treatments, I do not think it is going to give me a break.
On a positive note, I have just had the mammogram / ultrasound done yesterday - just in time to meet with the surgical team on Monday to discuss removal of the right breast. It had been discussed back in September, however due to all the problems i was experiencing it was delayed until now. I am hoping he says "Lois, its time to say goodbye!" I can assure you all, I have NO issues with that and to be honest, it will be a damn relief. Having a 22E boob hanging off your side causing lopsidedness and immense neck/back pain for the past year has not been pleasant. It has been pure frustration to say the least. I am ready - pure and simple.
I am glad to know that I can ultimately stop it if I choose to but like you have said - I wont know if I dont give it a go. I meet up with the Medical Oncologist on the 15th March, so that will be an interesting conversation. As my kind of BC is in the doctors words "super nasty aggressive" - my initial survival rate was 10-15%. Initially, I was informed the radiation offered was to help out a bit. Not fully understanding at the time what she was implying until it clicked - I went into complete and utter shock. That number has now been hanging over my head along with the question which NOONE wants to answer - has anything changed with the chemo and radiation? The only thing the radiation oncologist told me before telling me to "Go forth and prosper" was all the scans are clear - so far.
I came home from that appointment both jubilant and a big question mark posed over my mind....what happens next? How do you stop thinking about the one thing that has been a constant 24/7 companion? Does anyone ever get over the fear of recurrence?
Anyway - a truly pure joyful moment in my life yesterday - my 2 year old grandson came and snuggled into my lap and called me "Nan - Nan" for the first time. Until that moment, Blake had persisted in calling me "Ma". Then reached over to his mother's very pregnant belly and said "Baby" - the first time he has said it. Both Eliza and I sat there in awe.
On that note - have a fantastic weekend and to my dear friend @Locksley - I hope Charlotte's 21st is amazing!
Big hugs and Love
Lois.
@arpie - did the doctor need to sign off on the magic oil script??? I am wondering if it will help with the extreme aches and pains caused by the LUPUS attacking my muscles and bones?
THANK YOU SO MUCH for answering my question. In the past couple of weeks, I have done some serious research and as much as I hope and pray that the side effects are small, considering how the Lupus was in full flare up the entire time during the treatments, I do not think it is going to give me a break.
On a positive note, I have just had the mammogram / ultrasound done yesterday - just in time to meet with the surgical team on Monday to discuss removal of the right breast. It had been discussed back in September, however due to all the problems i was experiencing it was delayed until now. I am hoping he says "Lois, its time to say goodbye!" I can assure you all, I have NO issues with that and to be honest, it will be a damn relief. Having a 22E boob hanging off your side causing lopsidedness and immense neck/back pain for the past year has not been pleasant. It has been pure frustration to say the least. I am ready - pure and simple.
I am glad to know that I can ultimately stop it if I choose to but like you have said - I wont know if I dont give it a go. I meet up with the Medical Oncologist on the 15th March, so that will be an interesting conversation. As my kind of BC is in the doctors words "super nasty aggressive" - my initial survival rate was 10-15%. Initially, I was informed the radiation offered was to help out a bit. Not fully understanding at the time what she was implying until it clicked - I went into complete and utter shock. That number has now been hanging over my head along with the question which NOONE wants to answer - has anything changed with the chemo and radiation? The only thing the radiation oncologist told me before telling me to "Go forth and prosper" was all the scans are clear - so far.
I came home from that appointment both jubilant and a big question mark posed over my mind....what happens next? How do you stop thinking about the one thing that has been a constant 24/7 companion? Does anyone ever get over the fear of recurrence?
Anyway - a truly pure joyful moment in my life yesterday - my 2 year old grandson came and snuggled into my lap and called me "Nan - Nan" for the first time. Until that moment, Blake had persisted in calling me "Ma". Then reached over to his mother's very pregnant belly and said "Baby" - the first time he has said it. Both Eliza and I sat there in awe.
On that note - have a fantastic weekend and to my dear friend @Locksley - I hope Charlotte's 21st is amazing!
Big hugs and Love
Lois.
@arpie - did the doctor need to sign off on the magic oil script??? I am wondering if it will help with the extreme aches and pains caused by the LUPUS attacking my muscles and bones?