Go Forth...and live your life!
Hi Everyone, It has been a LONG time since I have been back online. The past few months have been one hell of a road trip indeed. The months away have been spent, trying to get through numerou...
Forum Discussion
Gosh @LoisLois - what a time you've had of it! GO GIRL! You are a superwoman, proving them wrong! What a shame you were allergic to that cream! :(
I didn't have chemo (but watched my husband go thru it 11 years ago & he is on it again currently as I type :( )
Absolutely - what @Deanne and @Blossom1961 said. I hope you have a good Onc who listens to your concerns and tells you the truth - do NOT be afraid to change Oncs if you feel you are not being listened to. I did. My current Onc is lovely and right up with the latest trends (and is treating my husband too.)
Don't be afraid to change your meds, as Deanne did ..... I'm on my 3rd lot now - Tamoxifen is about the only one I haven't tried!!
I had radiation then straight onto Letrozole. Coming from an arthritis background, sadly, Letrozole gave me bad side effects almost immediately & only lasted 6 weeks & after my first Onc didn't believe me, I saw his stand in (then his replacement) who put me onto Exemestane. I lasted 6 months on that before the levels reached the Letrozole ones ..... so am now on Arimidex for 2.5 years and am coping just FINE - still a bit achy but nothing extreme! (Tho I AM taking some magic oil as well, which I believe takes the edge off the side effects!)
In answer to your question - yes, some members have stopped treatment. I considered it seriously when I was having the bad side effects, as the perceived 'benefit' to increasing my 'survival' was only 2-4% .... I was wondering if it was worth the discomfort & pain? But when push comes to shove - most will continue taking them, I think.
I have a chart of side effects that I can give you (with many added side effects by members here) - but it is probably better to start your meds & wait & see if you are affected, to 'give them a chance' before checking them out! You can also take a 'break' from the meds to give you a chance to bounce back, if the side effects ARE bad - if you want to stay on that specific one?
All the best with your Onc appts & meds - make sure you record it on your phone so that you can go over it again later ...... I often print off my questions and give them a copy (and take notes on my copy) so then you know all your questions have been addressed ;)
take care xx
I didn't have chemo (but watched my husband go thru it 11 years ago & he is on it again currently as I type :( )
Absolutely - what @Deanne and @Blossom1961 said. I hope you have a good Onc who listens to your concerns and tells you the truth - do NOT be afraid to change Oncs if you feel you are not being listened to. I did. My current Onc is lovely and right up with the latest trends (and is treating my husband too.)
Don't be afraid to change your meds, as Deanne did ..... I'm on my 3rd lot now - Tamoxifen is about the only one I haven't tried!!
I had radiation then straight onto Letrozole. Coming from an arthritis background, sadly, Letrozole gave me bad side effects almost immediately & only lasted 6 weeks & after my first Onc didn't believe me, I saw his stand in (then his replacement) who put me onto Exemestane. I lasted 6 months on that before the levels reached the Letrozole ones ..... so am now on Arimidex for 2.5 years and am coping just FINE - still a bit achy but nothing extreme! (Tho I AM taking some magic oil as well, which I believe takes the edge off the side effects!)
In answer to your question - yes, some members have stopped treatment. I considered it seriously when I was having the bad side effects, as the perceived 'benefit' to increasing my 'survival' was only 2-4% .... I was wondering if it was worth the discomfort & pain? But when push comes to shove - most will continue taking them, I think.
I have a chart of side effects that I can give you (with many added side effects by members here) - but it is probably better to start your meds & wait & see if you are affected, to 'give them a chance' before checking them out! You can also take a 'break' from the meds to give you a chance to bounce back, if the side effects ARE bad - if you want to stay on that specific one?
All the best with your Onc appts & meds - make sure you record it on your phone so that you can go over it again later ...... I often print off my questions and give them a copy (and take notes on my copy) so then you know all your questions have been addressed ;)
take care xx