Forum Discussion

Cath62's avatar
Cath62
Member
5 years ago

Family are not being respectful of my wishes

Dear all,

I have invasive BC. I had surgery in May and I am currently having chemo. When I was diagnosed after much thought I decided to only tell my immediate family and a few very close friends. I choose carefully and selected people who i thought would support me.

When I told people i had BC I expressly advised each of them that I did not want to have my breast cancer known to anyone else. I wanted my privacy. I wanted time to deal with my emotions.

Well my parents (in their 80s and in good health) have told distant relatives. I find out because I was messaged and called on the phone. Shock to say the least and totally unprepared. 

I was a annoyed with my parents but explained again I wanted my BC private. Again my parents have kept broadcasting my health to others including random retirement village people in their retirement village. I then hear a message from a male cousin i only ever see at funerals that they know of my condition. Of course it was a  nice message but hey I won't hear or see them until another family funeral.

I challenge my mother and she says I told her to tell all relatives, a complete and utter lie. She says i must have forgotten but my husband knows I was very clear. 

Our relationship has deteriorated. They just don't respect my wishes. In fact they tell me I am overreacting and there is nothing wrong with telling people. They now suggest i am 'not well'. They are gaslighting here.

What do I do? I had asked for space and said I would get in touch when I was able to (The intention was to create some space from them) however my mother can't respect that and haS called twice. Neither call had been good and she continues to gaslight telling me telling me I forgot whst I told her.  

I am stressed about it. I didn't want a bad relationship with them during this time. There is s long history of not respecting my boundaries. Yes i can forgive but I don't know if I want to see them. I can't trust them. If they contact me  and they will i plan to just say everything is fine and no further details. I am not sure if I should cut them out of my journey but at the moment I feel like it given their betrayal. 
  • Thanks @Sister and @"Beryl C." Very sound advise re asking them not to contact for a couple of weeks and the Friday update. I think given i have lots of treatment ahead and have to manage tyem ongoing it might be a good idea. 
  • Getting your husband to be the gatekeeper is not a bad idea for you and probably for him as it gives him a support role in which he can really provide something for you.  Mine certainly found it was something positive he could do.

  • @Blossom1961, sorry to hear how your mum made you feel. I have anxiety about having to manage my parents needs about my cancer all the time. It is just too much. My husband is in board with maintaining some relationship but protecting me as he sees and hears what they say and do. So I will let my husband take the calls and give me a bit of space from them.  We i feel stronger to deal with them   i well limit the time. Well these are my thoughts atm.
  • @Cath62 - setting boundaries with those who have no understanding of what this actually means can be so frustrating and unsettling.(even exhausting) Perhaps set your boundaries by letting everyone know that you will send them an 'update message' every Friday evening. Let them know that if they want to support you the best thing to do is NOT CALL for a couple of weeks. Consider getting in touch with BCNA counsellors or the Cancer Council - talking it over with others will keep you focused on your needs. Your husband also has enough to deal with, if people can't respect your requests then you always have the option to block - perhaps your husband could inform the next unwelcome caller of this option.
    Stay connected - this forum offers the best support - its a safe place to 'tell it as it is!'

  • I actually cut myself off from my mother as she upset me everytime I spoke to her. She ended up ringing my daughter who was on board with it all and my daughter just told her I wasn’t speaking to anyone as I just needed to be concentrating on getting well. My mum begrudgingly accepted that. It wasn’t worth the anxiety she caused.
  • Thankyou. I am trying @Fraser .  To be honest if they weren't there ages I would cut them out as they are so toxic in there lack of boundaries.  I continue to look after myself but I do get distracted by this nonsense of theirs. I think my mother is actually a narcissist. 

     I feel happy when they are not in touch with me. I try to limit contact but do on occasion see them and admit some of those times have been nice.

     I try to manage them as they would contact me daily during this time if I didn't however  but they got out of control.

    I think I will not contact them and if they call again, I will let my husband handle that call.  I doubt they will pull their nonsense with him. Maybe that will help things settle. I can then continue to focus on getting through my chemo and the rest. 

    I am sorry for your Victorian situation and not seeing your daughter. Sounds like you have a good relationship with her. I hope you can get together very soon. 
  • I hear your frustration and at present you are, more than likely, trying to process the information and treatment options without the added pressure of discussing same with others.
      
    As @fraser has said, those of us in Victoria do not have any contact with family and friends at present, COVID19 has taken over, and/or parents are no longer with us.  God knows all I wanted was to speak with my Mum when I was diagnosed but alas she had passed, a few years earlier!

    There's a BCNA booklet that you may find something helpful within with regards to dealing with your parents and friends
    https://www.bcna.org.au/understanding-breast-cancer/talking-to-family-and-friends/

    Until you are more comfortable perhaps keep the information trail open but very limited. 

    Can't undo what they have done but you can keep it shortened

    Take care and best wishes with your ongoing treatment
  • Dear @Cath62

    it is of course infuriating when people cannot respect your wishes. Even worse when they rewrite your comments to suit their own agenda. If your parents have a bit of a track record of this sort of thing, then it’s possibly not surprising but also repetitious and brings back other bad memories. Your story has become their story. 

    Cutting them off entirely may prove impossible. It’s also a drastic step. It’s possibly being in COVID conscious Melbourne that does it, but when your contact with family is as scarce as ours is (I’ve seen my daughter in the flesh three times since February!), it may be worth thinking twice. Distant relatives are unlikely to pester, particularly if not encouraged. You can limit your responses to parents. But you don’t need any added stress so perhaps let as much of it go as you can. It’s happened, perhaps time to put your energies to your own recovery and wellbeing. Best wishes,