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ddon's avatar
ddon
Member
6 years ago

Afraid to finish chemo

This will sound crazy but with 7 taxol to go - 4 dose dense AC and 5 taxol behind- I am afraid to finish. People say to me ‘you must be just wanting it over’ and I can’t explain that actually I don’t. Firstly, I feel kind of like I am in a bubble of relative safety. Wherever those cancer cells have landed, at least while this stuff is circulating it is stopping them from actively growing. Fingers crossed even killing some. As soon as I am on my own the fear will really kick in. 
Secondly, I don’t wish any days/weeks away. I don’t know how much life I have left to live and I don’t want to be rushing through slabs of it wanting it over. I try to find joy in every day. This is the only one I am sure of. 
This chemo has been miserable in many ways as everyone knows but still mentally I feel safe and so I am afraid for it to end. 
  • I would have to say the scariest part of having treatment was finishing up my active treatment of chemo & radiation. Even though I was having monthly injections & monthly oncologist appointments...its not the same as having treatment that you know is actively killing cancers butt. It's a scary time and literally everyone else is like yay it's over & they put it behind then but there's no way we can and so we're almost expected to "get over it" 

    I like kmakm thoughts around having other plans, something that gives us structure like treatment did. 
    Counselling - especially around grief & loss 
    Massage 
    Exercise
    Nutrition
    Learning/keeping up with BC news
    Support groups 
  • Thank you - I think I will have to make some plans on structured things to be doing when treatment is over. I do worry about the expectation from others that treatment is over and now life goes back to normal but people don’t understand the toll it all takes physically and emotionally. 
  • ddon said:
    Thank you - I think I will have to make some plans on structured things to be doing when treatment is over. I do worry about the expectation from others that treatment is over and now life goes back to normal but people don’t understand the toll it all takes physically and emotionally. 
    Absolutely, I'm 5 years on from chemo & radiation. Still on long term meds that have continued to mess with my body and life's plans. I'm just a lot more assertive, if people throw me any grief or question why you're still struggling. I say I'm still doing treatment and doing it tough 
    I've become better at knowing what I can and can't control and I definitely can't control others expectations or actions 
  • Hi ddon, 
    Know exactly where you’re coming from.
    I finished chemotherapy last July and Radiotherapy last October.
    I like you was very anxious and felt like my safety net had been taken away from me, like you I thought whilst this evil stuff is being pumped through me I’m going to be ok.

    Im now 6 months post Chemotherapy and feeling better all the time, Had first mammogram in December had the all clear after diagnosis and treatment.
    I felt much better after the first check up.
    Keep yourself busy with things you love to do, stay around positive people, I’m finding even now that meditation is helping me enormously.
    Speaking with a therapist is an excellent idea, as like you I don’t want to burden my family with more.
    Talking here is also a great way to express your feelings as we understand.
    If you want to pm me we can also speak privately as I’m not that far in front of you and have just recently been through those emotions.
    Stay positive as it does get better, give yourself time to adjust it does get easier.
    Stay in contact with your BC nurse, you are never alone.

    Sending hugs xx

  • Thank you shell shocked. How do I pm you? Would love someone to communicate with because I don’t know anyone going thru this or anyone who has been thru it recently.