Forum Discussion

  • I just checked
    Same conditions as other new drugs

    under restriction it states
    only for those who have not been on a AI
    So only for those who are designated first time diagnosis as Metastatic

    Very disappointing!!!!
  • Good news - I couldn't find any conditions (other than being premenopausal and having MBC) also. So I am sure it will be available irrespective of what line of treatment. I have now been on Verenzio for 13 months (accessed through a trial) and no sign of progression yet. However, I am the only one from my hospital and on the trial that is still taking Verenzio. Around half the women came off due to side effects and the other half had progression (although only a small number on the trial anyway). They think I am doing better than the others because my tumour burden was a lot lower at the start of the trial. I was actually in remission from taking capecitabine but the hand and foot side effects were very debilitating, so my oncologist thought she would try me on Verenzio to give my hands and feet a spell. The more drugs we have in the 'toolkit', the better off we are!!!
  • Fingers crossed @wendy_h67  - I didn't see where there were 'conditions attached' - so hope you are covered  xx
  • Hi arpie, I saw that in the paper today and I was wondering if it will only be available for those as a first line of treatment for metastatic breast cancer.  I am on Fulvestrant Injections monthly and this treatment may also be beneficial.  I will have to ask my oncologist.,especially if it is on the pbs.
  • Fantastic, @Palmbeachprincess  - make sure you mention it to your Onc ...... and double check with your chemist next time you get your meds ....

    With my husband 10 years ago, his own chemo treatment went from $25000 a year to $10 a set, due to it coming onto 
    PBS.   He still had to 'sort it' thru the chemist before it was administered to him.

    All the best with your treatment xxx