Fulvestrant pain - any suggestions?

@vickfromvic I've adjusted profile settings (I think). Should be ok to message me

Thx ilanagal.  As your profile is private, I can't privately message you, but feel free to privately message me if you'd like to.  really appreciate you help.

There is no pain if done correctly. I had to tell the nurses every single time. Out of 17 rounds, 4 were done incorrectly and I suffered terribly with no life for that round. I complained to the nurse unit manager, who retrained her staff, wrote a big yellow note on the file 'must be given over a min of 2 minutes and in the upper outer quadrant of the buttocks'. My husband would come with me and time the nurses quiet opening so they knew we were monitoring. Again if done correctly there were no problems at all.

Honestly, if they do it slower than slow, the whole experience is totally fine 🌟 🌟 🌟 🌟 🌟   

wow!  Many thanks.  Does this also help with the pain afterwards?

I've learned to tell the nurse it must be given slowly. And whatever they think is slow- do it even slower. I say over 3 mins each side- because they always do it faster so set the bar that they really understand just how slow is needed. 

Hi Vic
i found icing the area for 15 mins beforehand then having both injections at once was good for me. They didn’t need to go too slowly either.  So long as it was the upper outer quadrant.  Hope you are going ok 

Hi @vicfromvic,
I am no longer on this drug but was advised to drink lots of water and do some walking the day of the injection.
That seemed to help me.

much appreciated  Cath62 & Anne94

Hi @vickfromvic, hold injections in hands to warm them up. Each injection must be given over 2 mins. That is crucial. Also make sure it is given in the upper outer quadrant of the buttocks. Massage after and walk a bit helps too. I am treated at the Wesley hospital in Brisbane and had to complain to get the nurses to do this correctly. The nurse unit manager had the staff retrained to help me. Speak up. Don't put up with this. You deserve to have good treatment. If done correctly life is so much better. Best wishes