6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me.
It's also so hard to find anyone with a similar diagnosis to talk to...on this site.
TNBC Stage 4 Mets to lung, lymph
Started Carbo & Gem chemo 4 months ago.
1st scans showed lung spots gone, chest spots gone, tumour shrunk considerably, great news. TNBC responds well to chemo.
I was also given immunotherapy pembro, experienced very severe side effects, fever, liver inflammation and more, common side effects however wasn't permitted to continue on immunotherapy, shattered I was.
Chemo also stopped.
After steroids to reduce liver inflammation went back on carbo gem chemo and the 1st session back gem inflammed my liver.
Today my oncol said no more gem. 😞
I can have carbo until I can't have it anymore eventually effects will kick in.
My liver Dr is wanting me to go back on immunotherapy pembro with infusion of tocilizumab which stops liver inflammation.
Oncol will review this, she isn't keen, but I am and it will be my choice anyway.
My oncol going to have a round table with her oncol team to seek other options if they are available.
TNBC one of the hardest if not the hardest to treat with very very limited treatments.
I research every single week about trials, new treatments just hoping.
I am very healthy otherwise, cruise through chemo, work FT and just feel great, so
Today, I had a huge meltdown. I dont talk to my oncol about life expectancy ever, its too fearful for me and my choice not to, a rule I set on day 1 I met her.
If anyone has a same, similar diagnosis, story I would love to hear from you.
I've said alot here today, helps my mind a little bit.
Take care to you all ❤️
It's also so hard to find anyone with a similar diagnosis to talk to...on this site.
TNBC Stage 4 Mets to lung, lymph
Started Carbo & Gem chemo 4 months ago.
1st scans showed lung spots gone, chest spots gone, tumour shrunk considerably, great news. TNBC responds well to chemo.
I was also given immunotherapy pembro, experienced very severe side effects, fever, liver inflammation and more, common side effects however wasn't permitted to continue on immunotherapy, shattered I was.
Chemo also stopped.
After steroids to reduce liver inflammation went back on carbo gem chemo and the 1st session back gem inflammed my liver.
Today my oncol said no more gem. 😞
I can have carbo until I can't have it anymore eventually effects will kick in.
My liver Dr is wanting me to go back on immunotherapy pembro with infusion of tocilizumab which stops liver inflammation.
Oncol will review this, she isn't keen, but I am and it will be my choice anyway.
My oncol going to have a round table with her oncol team to seek other options if they are available.
TNBC one of the hardest if not the hardest to treat with very very limited treatments.
I research every single week about trials, new treatments just hoping.
I am very healthy otherwise, cruise through chemo, work FT and just feel great, so
Today, I had a huge meltdown. I dont talk to my oncol about life expectancy ever, its too fearful for me and my choice not to, a rule I set on day 1 I met her.
If anyone has a same, similar diagnosis, story I would love to hear from you.
I've said alot here today, helps my mind a little bit.
Take care to you all ❤️
