Metastatic Group

@bubbyc thank you for info on your diagnosis-it really was a roller coaster ride! Sorry for my late reply, as well as everything else I have been dealing with kidney stones lately.
Hope you were able to reduce to one tablet a day. Take care

Hi Ladies ,

Reading all the comments has made me feel better since today is just 2 weeks out from bilateral mastectomy and lymph nodes from left side, however its my right side ( no lymph nodes removed) that is giving me more trouble, have drains removed and surgeon post op happy with results of the surgery ( radiation coming next) . Am I expecting too much from myself ???
  did anybody else have similar issues , ?? still swollen , no weeping or redness ,just really painful .
  Also they have started me on Tamoxifen 1 tablet a day and I feel like a zombie , brain really fuzzy and wanting to sleep all day , 5 days of that , does it get better ??? 

Hello @Bubbyc
Thankyou for your post.  I am sorry to hear that your cancer has come back after your initial diagnosis.  Im sending you a request for the metastatic breast cancer group as requested.  We do have other members in the group who are on Kisquali that you will be able to correspond with.  Kind regards

@BoraBoraong story but here goes. December 2016 I fell over got stitches, it got infected. My arm went numb from elbow to wrist put down to the fall. Made perfect sense. Roll on 12 months it got a lot worse now with tingling in my middle and ring finger, orthopaedic surgeon, neurologist couldn’t work it out. 5 months on the neurologist did a MRI on my brachial plexus thinking it was radiation induced neuritis from when I had radiation 9 years prior. Perfect sense again. Results came back with it saying leaning more to malignancy rather than radiation induced neuritis. So my roller coaster began again. PetCT scan showed the tumour entwined so it couldn’t be removed. Fine needle and Core biopsies weren’t successful because of the location. Surgery to remove a part for a biopsy came back that it was definitely ER+ again. Had 6 weeks radiation. Now on letozole and the new drug Kisqali which is not agreeing with my white cell count. Oncologist today to see if I can go to 1 tablet a day. And that is my story nearly 2 years on from my fall. At least I know the radiation has shrunk it as I am not in as much pain now. PetCT scan in a month or 2 to see what’s going on. I also had some dodgy lymph nodes. 

@Bubbyc hope you have been able to join group-only way I could rectify problem was to ring BCNA and issue was sorted straight away. If you don’t mind could you tell me how your Mets were diagnosed? I have Mets in my neck area but no actual diagnosis of location.

Hello @Bubbyc
Sending you a private message

@Giovanna_BCNA, can you help @Bubbyc?

All the best @LITHGOW1950

Fingers crossed for you @LITHGOW1950