I am dealing with secondaries...I'm not going to lie to you it is shit! planning your own funeral...crap! Telling your kids you won't see them grow up! totally, utterly gut wrenching crap!
Dealing with the fact that cancer is going to kill me! utterly, completely CRAP!
People telling me I should just stay positive "wanting to punch them in the face" CRAPPITY CRAP CRAP CRAP!!!
yeh that's true.
Right know St George Hospital is providing that trial.Im on it. IT WORKS!!!!!!!!!!!!!!!!!!!!! Almost no side effects. That drug is for HER positive BC and if u had only 1 line of Tykerb+Zeloda and multiple lines of chemo. If interested message me Ill send u more info or I may ask my trial coordinator what do u need to do to be qulified for this trail
yeh that's true.
Right know St George Hospital is providing that trial.Im on it. IT WORKS!!!!!!!!!!!!!!!!!!!!! Almost no side effects. That drug is for HER positive BC and if u had only 1 line of Tykerb+Zeloda and multiple lines of chemo. If interested message me Ill send u more info or I may ask my trial coordinator what do u need to do to be qulified for this trail
Hi Belinda
I'm fighting that secondary s*** almost 6 years. Never give up!Never! Since then i had a stroke, developed diabetes, Im spending as minimum a week each month in hospital... yeh it is exhousting it is not a good life,but it is still a Life... I wanted to die when I had a stroke I though this is the end.. but then why i would so easy give up...? im wishing u all the best. keep fighting for u and for ur kids.
Might be worth a look. Hope you are feeling OK, you are often in my thoughts.
Still praying
Laraxx
Hi I saw a report on this drug the other day on a show cant remember which one, It may not be available here or even be an option for you and I hope the link will work, the story showed women who had done the trial with no chemo side effects at all, and their comments where that they didnt have that raw on the inside, being poisoned feeling, is only for HER positive I believe but worth a look at least, dont want to get your hopes up on anything, but who knows there may be a trial here in Oz
http://www.sciencedaily.com/releases/2012/06/120604094115.htm
All the best for some happy times soon
Cheers Narelle xox
What on earth is going on in this world where someone as young and beautiful as you has bc secondaries.I don't know how the bc fundraising money is dispersed for which research but it should be targeted to young women like yourself. I can't begin to imagine facing secondaries when my girls were so young.It's just bloody wrong,wrong,wrong.Yes you have to be realistic but keep hope alive.Celeste has wise words in that the right chemo combo maybe just around the corner for you.Love and hugs to you.
Tonya xx
Oh Belinda
You have so much strength and courage to do what you have done so far. I honestly would have crumpled at the thought of organising my own funeral.
You have made me cry, not just for you, but for your lovely husband and your gorgeous and adorable girls.
I wouldn't be saying the crap word, but like the others shouting from the rooftop, why me!!! with lots of swear words.
Make the most of each day with your lovely family. Cherish every moment of every day and spoil yourself. Write letters to your girls when they have birthdays, engagements and weddings. So they will always know that you are there shining from above.
I can't walk in your footsteps, and know how you really feel. But, if we all had that magic potion, we would, with no hesitation give it to you.... and make it all better. I wish they had a cure for this F****** horrible thing.
Oh my lovely..... just make sure they try every avenue here or overseas.
My thoughts are with you my sweet. Love as always Julie XX
