Newly diagnosed

Hi @Not_good_63_57
Sorry you had to join this group.  Please remember that we have the best healthcare system and the latest medications in the world.  When I was diagnosed, I really struggled as well.  I asked Cancer Connect if they could put me in touch with someone who had a similar diagnosis.  After I spoke to my connect friend, I realised that there are many on a similar path as mine and they are still going strong and living productive lives. 

@Not_good_63_57 -  Duh!  I hit the ‘enter’ button before I was finished!  Did I mention ‘fog brain’?  With so much going on in your head right now ..... your brain can go into overload .... 

We have ‘private groups’ for some more personal discussions (check out the right hand columns) .... so feel free to join any of them, if they suit you.

Try not to get ahead of yourself ... guesstimating outcomes makes it more stressful.  If you find yourself getting really stressed and upset, please get professional help ... your GP may be able to put you onto someone (or your breastcare nurse or medical team.) They can help you with coping strategies. Xx

It is totally normal to be scared, angry and every emotion in between!  But don’t let it rule your life!  Every day will be different .... try and keep yourself really busy, doing things you love.  This will help keep your mind busy, as I found It mucked with my brain more than anything .... all the ‘what ifs’ .....Personally, I love kayak fishing, and after my GP found my lump, I basically went fishing every day from Nov to Jan, until I finally got my confirmed diagnosis!  Yes, it took that long (I live rural and everything takes longer here! :( )

If you live rural, you can get $$ assistance to recoup money spent on fuel and accommodation.  Whereabouts are you? State/town - you can add it to your profile .... we may have members there who can help you out with local assistance.

There are many ways of letting family and friends know (if you want to.)  I told most by email, and gave them weekly updates once my game plan was in motion.  Having their support will really help you get through this train wreck.  You don’t have to tell everyone straight up ..... just those who you think will support you the best! I finally told ‘the rest’ 2 years after .....

Try & keep your sense of humour 'up there' - we have a really good 'funnies page' (called Friday Funnies, but we add them every day!!)  Just click on the link to add pics and posts ... 
https://onlinenetwork.bcna.org.au/discussion/19116/friday-funnies#latest
If you are into arts & crafts, we have a 'Creative Corner' 
https://onlinenetwork.bcna.org.au/discussion/14979/creative-corner#latest
 and if into your garden, a Gardening post as well!! 
https://onlinenetwork.bcna.org.au/discussion/comment/186078#Comment_186078

Take care, take one day at a time, 1 hour at a time, if necessary ..... we’ve got your back .... so lean on us in these early days of confusion xxx

@Not_good_63_57 - I am so sorry to see you join the club that no-one really wants to join .... but we are here for you.  Throw us any questions you may have and we’ll do our best to answer them honestly and in words that you understand.

@Mazbeth has given wonderful tips .... I’d just add, to record your meetings on your phone so you can go over it later on if you need to.  It is easy to miss some info whilst pondering the previous bit!  Having a companion with you as an extra set of ears and eyes (and support) really helps.  Not having to drive to appointments is a bonus too.

Hi @Not_good_63_57 I am sorry you are dealing with so much and feeling so scared. I know there are lots of others who will respond to you over the coming days and we are all here to support you. The first thing is, you are not alone. This is one of the hardest parts, the waiting and trying to process ‘bits’ of information and not knowing what the next step is going to be. I hope that you will be meeting with your medical team very soon so that you can get some answers. I strongly recommend making contact with a breast care nurse as they can be a great source of support and information. Just from my own experience, I totally understand just how frightening the diagnosis is, but there is going to be a path forward. The Cancer Council also has brilliant support services which I can totally recommend as well.
I think just about all of us here will tell you not to google - it will not help as everyone is different and often the information is old. Have you got someone who can go to appointments with you? I kind of zoned out or maybe I was just overwhelmed and didn’t retain a lot of what was said to me.
Your medical team are going to come up with a plan and once you hear it and understand it, you will get on with it. At the start, I felt like I was plonked in a parallel universe, it was all just so foreign to me. Thanks to everyone here, I just kind of got on with my treatment plan.
I found it really helpful to try and focus on the’ now’  and not to get too far ahead of myself. If you can, keep yourself occupied  - walking, reading - whatever activity that can help keep your mind busy.
I am sending you hugs. You are not alone. Ask any questions. We are here. X