Forum Discussion

SueRi's avatar
SueRi
Member
3 years ago

Long term Herceptin

Hi was just wondering how long people have been on Herceptin and how they are doing?

I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying would much rather be flat. So far everything is stable and the Herceptin is what they call maintenance dose to keep me stable.
hope everyone is coping as well as they can

❤️❤️
herceptin
metastatic-breast-cancer
  • Vicki_White's avatar
    Vicki_White
    Member
    2 years ago
    Hi all, in 2012 I was Her2Positive and stage 4. Had a single mastectomy but wish they took the other one the same time as I'm sick of the neck pain and the clothing thing. I was on Herceptin every 3 weeks until Aug 2021, when I went into remission. I always had side effects with intravenous but never with the subcutaneous. Good luck ladies x

  • Haitch's avatar
    Haitch
    Member
    2 years ago
    Wow that's good to hear. I was diagnosed Feb 22 and was told I should have years - you are a great example!
  • Julez1958's avatar
    Julez1958
    Member
    3 years ago
    Hi @StarGirl
    Great to hear you have been stable on Herceptin and Perjeta for 8 years .
    👏👏👏
    🎉🎉🎉
  • StarGirl's avatar
    StarGirl
    Member
    3 years ago
    Hi @SueRi, I’ve been on Herceptin and Perjeta for 8 years since being diagnosed HER2+ stage 4 de novo back in 2015. Nice to know there are some other long-termers still around. Star xx
  • Blossom1961's avatar
    Blossom1961
    Member
    3 years ago
    Hi @SueRi I was on herceptin for a year in 2018 and then started again with herceptin/perjeta nine months ago. Congratulations on doing well. I have a number of reactions to the combo but am perservering for now. I too am monoboobed and have that same annoying thing with my clothes but am happy to just readjust.