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Lynne48's avatar
Lynne48
Member
8 years ago

Liver mets & struggling

Two weeks ago I found out that my BC has metastasised to my liver, with multiple mets, the largest being 111mm in diameter.  I was initially diagnosed with Stage 3 BC cancer in February 2015 and had a bilateral mastectomy, followed by chemo, radiotherapy and hormone treatment.  I was fortunate in that I came through all treatments quite well, but this recent diagnosis has certainly thrown me!  I had been experiencing some pain for a month or so and had thought it was gall stones, as I had also been recently diagnosed with type 2 diabetes and gall stones was a common follow on.
I am a very pragmatic person, but am struggling with this recent diagnosis.  I just can't seem to get out of my own head at the moment.  I am struggling, because I feel that I have so much to organise and am losing control.  My first thought, was to try and organise our finances as best I can, as we are so reliant on my income at the moment, because we have such a large mortgage. Do I start to organise my funeral now, as I don't want to leave that burden on my family? I want to start organising things, but I haven't given up, I just don't want to leave it until the last minute when I'm too tired to care.
i start chemo in a week with Paclitaxel and like everything else I want to be organised.  My oncologist has said that the side effects should be minimal, but I want to be prepared.  I will be on weekly treatments for 3 weeks, followed by a week off and so on.  I need to work during treatment, so any information on what to expect would be greatly appreciated.
Sorry for the rather long discussion thread, but once I started, I just couldn't seem to stop.  I have so many questions, but will save the others for another time.
Cheers, Lynne
  • @Lynne48 I was sorry to read your news.  There's so much for you to absorb.  It sounds like you want to control your everyday life and have even put into this post your thoughts on funeral.  My day job is running a Cemetery and I always advise people to put thought into what it is they want, to be cremated or to be laid to rest as bodily remains.  That is the most important question as it is a difficult question for families if it's never been discussed.  Once that decision is made, just make sure you have it written down or in your will or discussed with family so they are aware. 
    Now that we've been to the extreme end of it all I think your real priority to is absorb all the information based around what's next with your team and how you are going to manage treatment and working and everyday.  Enlist help where you can both practically and financially.  Take care 

    Below is a link to a BCNA document that may give you some steps to help you along!

     https://www.bcna.org.au/health-wellbeing/financial-and-practical-support/
  • Hi there Lynne. Have a chat to the the other ladies on this forum with metastatic breast cancer. There is also the videos they made have you watched them?.. they are pretty inspirational.  And you should ask all the questions you have whenever you want no one on here will judge you for anything remember that. . Please just ask whenever you need anything lovely. I think if you can keep working it would be good I think but if. It like marg said take care of you. Biggest hug. Margie xx
  • Oh Lynne, I'm so sorry to read this. That's awful news and the nightmare that haunts all of us. Best of luck with the treatment, I hope you can keep working, I really think that helps if you can do it, but if you can't, try to be kind to yourself. Marg xxx
  • Hi @Lynne48, I'm sorry I can't help with any info but I'm sure others will come on who can answer your questions. I just wanted to send you a big virtual hug, and wish you all the best. Xx Cath