Forum Discussion
De novo Mets
It's everywhere, all through my spine, left shoulder , should blade, breast bone, hips and both femurs. Some of them are big . In February I was blissfully happy with my husband , backpack hiking in Tasmanian mountain wilderness for our 1st year anniversary. I just had an annoying sore shoulder and what I thought was normal menopausal aches.
The tumour in my boob is tiny, I can't even feel it now I know where it is. It wasn't picked up in mamograms. My blood test are normal. I don't feel sick other than waves of panic. I'm not angry, just terribly terribly sad .
Biopsy says it's a HR+ PR+ Her -. The nurses telle that's good and slow growing, lol, tell that to my skeleton!
I'm finding it hard to be positive given the extent of the spread. Still waiting to see a specialist and start treatment. My doctor has said no running, cycling or hiking and that I'm lucky I haven't broken my arm or back. I literally don't know what to do with myself. It's like I have to give up my "core" personality
2 Replies
Having mets means redefining everything. It is difficult because not only do we have to get use to the diagnosis , treatment, people's reactions, our own emotions etc, we also have to recalibrate every single aspect of our life. It is a massive change. Go gently. Get counselling if you need that. Ask for help if you need it. We are all here to support you.
http://www.drcharlottetottman.com.au/my-podcast.html
Also, Raelene Boyle's ... Raelene was diagnosed at the same time that Lyn Swinburne (the founder of BCNA) was first starting her support for women with breast cancer.
https://www.bcna.org.au/resource-hub/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-21-raelene-boyle-on-pulling-herself-out-of-the-darkness/Also, jump onto this thread to read a bit about the forum & some useful links ...
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