So just dropped my script for Kisqali off at my local chemist they tell me they can’t get, so where do I get it from? Where does everyone else get it from?

If its of any assistance, my Oncologist advised/insisted that I purchase the Kisqali from the hospital pharmacy where I am treated. He advised they have been trained and counselled in how to dispense this drug and are up on the side effects, interactions etc whereas most Chemists aren't. So that's what I do. They also have a very effective ordering system going between the Oncologist and the hospital Pharmacy, so they always have them available when I need them :)

Hi Glynnis yes I found it hard , was told no from my chemist but after some hard talking they did some research and was able to order in from a supplier in Sydney [ I live in Melbourne]. I take my script in go back about 3 days later.They can get it for you they just have to try harder. In other words they need to pull their finger out. Sorry just makes cross that we have to battle so hard to get it.Hope they listen to you , let us know how you go.

I always have to give my chemist 5 days notice in order to get it in time as they always have to order it in for me. I just use the medadvisor app on my phone and order it on my week off ready for the next cycle.

That's good to hear Glynnis. I'm sure like me, things will eventually fall into place. The difficulties over things like this just add to the stress you feel at the beginning. It can seem overwhelming. I've become quite blase now that it's six months since I started the treatment. I have had only minimal side effects, and no longer panic if my Neutrophils fall. It seems to happen about every second cycle, and I just have another week off the pills, then a further blood test. I'm 75 years old, a widow, and live alone, I do Yoga twice a week, I'm a volunteer tutor teaching adult migrant English two days a week, and lead a busy social life, so I consider that in the scheme of things, life is still good for me. I hope you will also find things are not too difficult to handle. Good luck Glynnis.

@Glynnis. I take Palbociclib. I have to get it from the hospital where I did my chemotherapy. My local pharmacist won't stock it because it is so expensive. I also don't get a prescription. My oncologist works with the hospital pharmacist to procure it.

Kisqali | BCNA Online Network

LucyDee
Member
6 years ago
Ive been on Ksquali since last August along with Letrozole since last June. After breast lump was cut out in March & 40 ‘positive’ Lymph Nodes in April. Leading to a Stage 4 Estrogen positive BC diagnosis.

No serious side effects so far, except Ksquali makes me tired and Letrozole makes me feel hormonal ie run hot and cold, despite being post Menopausal. But the good news is the 4 bone Mets, 2 on my spine and 2 on my skull haven’t grown or spread.

I give my Chemist my scripts the Monday of my week off (from Ksqali).But initially it was going to take two weeks - just as well I wasn’t in a hurry and that now we are in a routine.
Glynnis
Member
6 years ago
That’s awesome @Angelo always great to get that news
Angelo
Member
6 years ago
I’m in Perth and have been on Kisqali for about 4 months. My chemist orders in every three weeks and it normally takes about 3 days. Recent tests have indicated that it is working , fingers crossed it keeps working .
Marieda
Member
7 years ago
@PattiJ that is very interesting. I will ask my oncologist about Palbociclib, though I haven't had any side effects as yet after my first month on the kisqali, the possible side effect on the heart are a concern. :)
Glynnis
Member
7 years ago
Thankyou @elisewjk first dose coming from the hospital, which I’m still waiting for, I know it has to be ordered got told would have it today but I’m still waiting for it, then after that have got the chemist on board so that’s where the rest is going to come from
elisewjk
Member
7 years ago
If its of any assistance, my Oncologist advised/insisted that I purchase the Kisqali from the hospital pharmacy where I am treated. He advised they have been trained and counselled in how to dispense this drug and are up on the side effects, interactions etc whereas most Chemists aren't. So that's what I do. They also have a very effective ordering system going between the Oncologist and the hospital Pharmacy, so they always have them available when I need them :)
Patti_J
Member
7 years ago
@Glynnis, @Marieda, @youngdogmum. I have just been to see my oncologist. I am on Palbociclib and Letrozole. She is a fan of Palbociclib not Ribociclib because, apart from low white cells, there are far fewer side effects.
Also, Palbociclib will be available on the PBS from 1/5.
I will then be referred to as a "grandfather patient". 😁
youngdogmum
Member
7 years ago
What is Kisqali like? My oncologists have mentioned it as an option for me in a clinical trial after chemo... it’s recruiting at the moment in the US but supposedly comes here late 2019 for non metastatic ladies to see if it serves any benefit. It would be double blinded so I may get placebo of course. Thanks 🙂
Marieda
Member
7 years ago
@Glynnis here's hoping we go well with our kisqali :)
Glynnis
Member
7 years ago
@Marieda glad to hear that I wish you well with your treatment, I’ve been on anastozole for 3.5 years so some of the side effects I’m already getting so I’m hoping to go well on it. 😃