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Glynnis's avatar
Glynnis
Member
5 years ago

Kisqali

Hi everyone, sad day today just found out I have spread to my liver now ๐Ÿ˜ฉ as well as already in spin and pelvis, what Iโ€™m wanting to know is when your on kisqali and letrozole combo and it stops working so well and spread happens what was the next step for anyone it happened too? Tia enjoy your day 
  • Hi 
    Iโ€™m on same medications only been on Kisqali for two weeks but my blood test came back bit low in white cells so another week before goin back on kisqali wonder if this has happened to there 
  • Hi @Glynnis, my onc put me on capecitabine after the ribo/letrozole combination stopped working. 
  • Hello @Glynnis 
    Sorry to hear the news that your cancer has spread.  Don't hesitate to call our helpline if you would like to speak with one of the cancer nurses for support or information.  Take care of you,
    kind regards
  • Thankyou every Have spoken to my oncologist, going to have radiation on liver as itโ€™s only small, stay on same meds routine as itโ€™s keeping everything in check. Blood work was all good so all in all feel much calmer and relaxed I have the way forward ๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿ˜ƒ