New member
Hi. I was diagnosed with mbc in 2021. An MRI done of my hip (me thinking I needed a hip replacement) revealed a bone lesion and further scans showed I had lesions in my skull, breast bone and right shoulder blade. Radiation helped with the pain in my hip and I am now able to walk unaided. I have been on letrozole and Verzenio (abemaciclib) since mid 2021 and so far results have been positive. Lesions have either shrunk or stabilised and there is no sign of cancer in organs. I know that one day treatment may cease to work but in the meantime I remain positive and enjoy every single day. I love to travel, cook and spend time with family and friends. I’m forever grateful for Bcna, my medical team and all the research that goes in to treatments for this disease. I know others are not as lucky as me and I wish everyone well on their individual journeys.
Kisqali
Hi everyone, sad day today just found out I have spread to my liver now 😩 as well as already in spin and pelvis, what I’m wanting to know is when your on kisqali and letrozole combo and it stops working so well and spread happens what was the next step for anyone it happened too? Tia enjoy your day
Metastatic Breast Cancer & avoiding weight gain while on Letrozole ?
Metastatic Breast Cancer & avoiding weight gain while on Letrozole. Is it possible ? Has anyone been successful in losing weight that was gained while taking Letrozole ? What have you find helpful ? I have only met two other women with metastaic breast cancer who are also talking Letrozole and their response to my question was to just accept the wieght gain ( especialy around abdomen ) and " nothing you can do about " . I am grateful to be alive but the weiight gain and other side efects from Letrozole are negatively affecting my mental health and quality of life .
Metastatic cancer
God I’m over feeling the way I do started Letrozole and Palbociclib tablets this morn and have t been sick but god it’s taking toll on body feeling bit buggered ... stomach is full nerves as suffer from anxiety and panic so get feeling of word and scared like u want to b sick then it goes ... is this normal will it get better each day or worse I keep thinking worse try to relax and I can’t god wish I could turn back time don’t even know how I’m gonna take tablets in morn if I keep feeling like this plus need to get calcium tablet god only knows how I’m gonna take that too feel like giving up alreadyHerceptin, Palbociclib and Letrozole combination
Hi everyone, this is the first time I have posted in this forum, so hello :) I am currently doing 18 weeks of chemo and 3 weekly herceptin treatments, and my scans are showing that the cancers, which are in my liver, lungs, bones and lymph nodes, are reducing quite a lot. So far I am at week 13 of treatment and some days I am really struggling to cope with all the yucky chemo side effects. When my 18 weeks are up, my oncologist has suggested I go on a trial for Palbociclib as well as Letrozole and continue with the herceptin. I am pre-menopausal and 45 years of age so I think that's why I'm eligible for the trial. Anyway, I have read all the side effects of Palbociclib and Letrozole and it really scares me. Is there anyone here who is currently using this combination of therapy and can you please tell me your thoughts / experience? many thanks xx
new bone lesions....help whats next for me
Hi all, I thought I was off this merry go round that is cancer. I've just been diagnosed with METS on 2 ribs(one each side), humeral head, scapula and a also in pelvic bone. I originally thought it was only in the 2 ribs which were discovered via a bone scan and then a follow up MRI. I elected to pay the exhorbitant fee for the PET scan and my breast surgeon has just called tonight to tell me it's in the places other than ribs. He has said they are only tiny spots. At my oncologist appt the week before xmas (when all i had was the 2 rib mets) the game plan was shit hot drugs as she called them - letrozole and ribociclib, then a massive single dose of radiation to the ribs. Now, I'm not sure what next step will be seeing as though its in different spots. She did tell me at my last appt not to google but to come in here so here I am. Sorry, this is really rambling. I am absolutely shit scared, I have 2 kids who are young teenagers and have recently divorced my partner, long story but he couldn't cope with my ongoing medical issues as cancer was 95% caused by me according to him and I couldn't live with the ongoing guilt. Now I'm in limbo land with everything. <My oncologist is away until mid Jan when I have my next review. Hoping for any words of wisdom, the letrozole is absolutely killing my joints in my feet particularly and I haven't even started the ribociclib and won't until the review with her. Thanks in advance xoxox
De Novo Metastatic with new progression - first post
Hi there, I am completely new to the discussion boards (first post) and trying to stay positive. I was wanting to reach out to others who might understand what I am going through. I was diagnosed de novo metastatic on 04/07/2018. Originally it was a single spot to my spine (L2) then a few weeks ago I found out there were some new spots (T12 and right sternum) and then yesterday I found out it is now also in a lot of other vertebrae, left hip and that one of my vertebrae has partially collapsed. I am on the ribociclib/letrozole combination as well as receiving monthly injections of Zoladex and Denosumab and am taking Vitamin D and calcium supplements. Unfortunately my regular oncologist was away yesterday with a really lovely trainee oncologist taking my appointment. He was very patient with me but wanted to wait until I can see my regular oncologist in two weeks time where she will discuss what happens next with treatment. He told me it was very unusual but it didn't seem the ribociclib/letrozole combination was working for me anymore but there were other treatment options available. Back in the beginning, I did get a pathological fracture to my spine (L2) which was treated after a month or so with stereotactic radiotherapy which I thought had controlled the tumour. I started experiencing pain in my lower back again and was referred to do an MRI which shows multiple new metastases. I am really worried about getting another fracture as the last fracture I had was so painful and debilitating. I really hate having cancer but I REALLY hated losing my mobility. I am 42 years old and live alone. I am currently taking extremely good care of my health (nutrition, daily low impact exercise and rest) but don't know what else to do. Is there anyone out there who might be able to give me hope or advice about ANYTHING I can do for myself to help my situation? The hardest part about this situation is I feel like I am not in control of this situation at all. I am so independent and it is hard for me to ask for help.
