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SueRi's avatar
SueRi
Member
5 years ago

Herceptin 11 years on

hi everyone long time since I have been on here as things were going as well as can be expected but now I have this cough which I have now had for approx 10 months that just won't go. My GP says my lungs (which is where my mets are) sound fine but the cough is heavy and loud with a high pitch - it even scares my dog lol. It is so tiring to cough like this it sounds like its loose but its not. I already have fatigue problems and this makes it worse. I am coming up to infusion number 200 so wondering if it the cough is due to being on Herceptin for so long. Has anyone else had any issues like this?
I hope everyone has survived covid-19 lockdown and is doing well
Sue

  • Sounds like you’ve really been checked out well, @SueRi ...  great that the colonoscopy was clear and the puffer helping with the cough.   All the best with your BS appt tomorrow. Xx
  • Latest update. I am going to have a mastectomy as tumour has grown and mutated from er+ to er- but still pr+ and her2+ so seems I will continue with Herceptin and femara but will also have sentinel node tested to find out if any lymph nodes need to removed. I am happy to have answers and I always wondered why I never had surgery now I know. I have a Telemed with oncologist tomorrow so will find out for sure that treatment remains the same.
    thanks ladies for all your kind words ❤️
  • All the best with the Onc, @SueRi ... bugger that the tumour has grown and mutated  ... yep, if in doubt, whip it out.

    take care xx