Long term Herceptin

Hi @SueRi I was on herceptin for a year in 2018 and then started again with herceptin/perjeta nine months ago. Congratulations on doing well. I have a number of reactions to the combo but am perservering for now. I too am monoboobed and have that same annoying thing with my clothes but am happy to just readjust.

Hi @SueRi, I’ve been on Herceptin and Perjeta for 8 years since being diagnosed HER2+ stage 4 de novo back in 2015. Nice to know there are some other long-termers still around. Star xx

Hi @StarGirl
Great to hear you have been stable on Herceptin and Perjeta for 8 years .
👏👏👏
🎉🎉🎉

Wow that's good to hear. I was diagnosed Feb 22 and was told I should have years - you are a great example!

Hi all, in 2012 I was Her2Positive and stage 4. Had a single mastectomy but wish they took the other one the same time as I'm sick of the neck pain and the clothing thing. I was on Herceptin every 3 weeks until Aug 2021, when I went into remission. I always had side effects with intravenous but never with the subcutaneous. Good luck ladies x

I was on Herceptin and Perjeta for 6 years, I am on a break. they finally changed the rules allowing a break and my doctor had talked of stopping it after 5 years, I managaed to drag it out to 100 doses which ended  up being the 6 years due to a few delayed or missed doses over the years. I have had 2 scans that have been ok and I am due for a PET scan in  February so fingers crossed. My secondaries were in the 3 different lymph nodes so after Chemo, raditaion and the time on Herceptin he felt it was worth having a break. It is a worry none the less but at least I do have the option to go back on it. I didn't have too may side affects

I have only just started treatment (Paclitaxel, Herceptin & Perjeta) for de novo stage 4 breast cancer (bones & liver). I have my 5th round tomorrow and I am hoping that I will be around to tell my story for many years to come. I am hopeful after reading your experiences.

So encouraging to hear these positive stories 💕
I was diagnosed last Thursday 28/9/23 with inflammatory breast cancer stage 4. Had my first chemo yesterday.

Hi, sorry I am new and trying to navigate the system. I commented on your post instead of creating a new discussion. Have now made the edit. 

It is great to see how many are doing ok on herceptin and perjeta .I’m soon to have no 40 , and am sitting on no evidence of active disease -first diagnosed I. June 2020 . Had initial,treatment as if a EBC case (chemo/lumpectomy/ radiation ) and herceptin post treatment, the L3 spot found and they realised it had been there since day 1 (a radiologist revised his report )So de novo .started H&P regime Oct 21. A few side effects - itchy skin and diarrhea , but manageable .I’m planning a trip to Japan for July