Forum Discussion

SueRi's avatar
SueRi
Member
5 years ago

Herceptin 11 years on

hi everyone long time since I have been on here as things were going as well as can be expected but now I have this cough which I have now had for approx 10 months that just won't go. My GP says my lungs (which is where my mets are) sound fine but the cough is heavy and loud with a high pitch - it even scares my dog lol. It is so tiring to cough like this it sounds like its loose but its not. I already have fatigue problems and this makes it worse. I am coming up to infusion number 200 so wondering if it the cough is due to being on Herceptin for so long. Has anyone else had any issues like this?
I hope everyone has survived covid-19 lockdown and is doing well
Sue

herceptin
metastatic-breast-cancer
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  • SueRi's avatar
    SueRi
    Member
    5 years ago
    Update
    Spoke to oncologist and he stopped Herceptin until investigation done. So now will have a CT scan and MUGA then if needed a referral to a respiratary specialist so fingers crossed I get answers I am over the coughing and fatigue ❤️❤️
  • Beryl_C_'s avatar
    Beryl_C_
    Member
    5 years ago
    I had infusion no.125 last week given x3weekly. Had a few 'odd' things over the years but never a cough. I agree with the others, needs to be included with your notes and investigated. Not sure if they'd use an x-ray or CT scan or bronchoscopy but agree with PV123, wise to get it checked.
  • PV123's avatar
    PV123
    Member
    5 years ago
    Congratulations, continuing on Herceptin for eleven years is wonderful! 
    I am currently on Herceptin, I did have a cough the first few months.  I did the chest X-ray that showed nothing.  Since the last few months the cough has cleared, however if you have had the cough for 10 months, I would definitely check with the oncologist.
  • ddon's avatar
    ddon
    Member
    5 years ago
    I can’t help but hoping someone can soon. It’s such a worry when you can’t get the answers you need to calm your mind. Take care xx