ZarraTheStaffy
2 months agoMember
Guilt
Thanks to BCNA and the forum contributors (my new friends). I was diagnosed with IDC this week at 49 and have been 'battling' my emotions rather than sitting into them. That stops now. A couple of f...
Golly gosh ZarraTheStaffy - some of those comments are pretty dismissive! :( I bet that if THEY got any cancer diagnosis, they'd expect compassion & support from YOU! Sadly, most people have no idea how much a BC diagnosis hits & hurts you - until they themselves are diagnosed. (Heaven Forbid!)
I am SO Sorry to see you join the club that no-one every thought they'd be joining 🙁 You've found the right spot here tho, for support & info from those who've 'been there, done that'! So hopefully we'll be able to smooth the way for your own story.
Whack up ANY question - remember there are NO dumb questions!!! Make sure you take a trusted friend or family member with you to your appointments, as a 'backup set of ears', as it is difficult remembering everything that is said. Also, consider recording your sessions on your phone, so you can go over it again later, for the same reason. 😉
As you progress thru your appointments/surgeries ... let us know how you are going, by continuing to reply to this post ... it is a good way of 'keeping a diary' of everything you're going thru, in the one spot!! I look back on my original post too (up til I started the hormone suppression) and am amazed at the wonderful support afforded to me, too xx
Mine was ILC (Invasive Lobular Cancer) - I was lucky to only have the one lumpectomy, rads & tablets .... and have recently finished with the tabs now!
This diagnosis can really muck with your brain too - so if you feel sad, angry, distressed - that is absolutely 100% NORMAL! But you don't have to 'do it' on your own! xx .... ask your GP (or your treating team) for a referral to see a counsellor .... or listen to Charlotte Tottman's podcast (link below). You can also ring our Helpline on 1800 500 258 for a confidential one-on-one chat xx
Try not to get ‘ahead of yourself’ with the ‘what ifs’ ….. as they may never happen - and going down that rabbit hole (specially if using Dr Google) will REALLY muck with your brain :( A lot of info on Google doesn’t relate to your diagnosis or is out of date - so put any questions you have, to your medical team (or here!) xx Take it one day at a time, one hour, if needed ..... but keep trying to do 'stuff you love' too .... so you have good 'down time' as well! I treated myself to a holiday on Norfolk Island after all my active treatment ..... as a 'Well Done YOU' for going thru all that stuff - as a reward!!!
Charlotte Tottman is a BC specialist counsellor who was diagnosed herself, also had a double mastectomy, so knows EXACTLY what we've all been thru, both emotionally and physically! Her reaction to her own diagnosis was also quite different to what she 'thought' it might be, given that she'd been counseling women's reactions for some years before, so thought she 'new' what to expect! She is VERY easy to listen to, too xx
http://www.drcharlottetottman.com.au/my-podcast.html.
Raelene Boyle's video is also well worth watching!
https://www.bcna.org.au/resource-hub/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-21-raelene-boyle-on-pulling-herself-out-of-the-darkness/
There is HEAPS of info in the link below to help you navigate the blog and also some tools to evaluate your own physical and mental recovery thru your ongoing treatment! xx.
https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737
Take care & all the best for your surgery & ongoing treatment xx
Thank you so much arpie . I'll work my way through your links. I'm sorry about your diagnosis. How far are you into your journey? If you don't mind me asking, how much time do you spend on physio each day? I had my pre-op physio appointment yesterday and came away feeling a little overwhelmed. I thought, going in, I'd get a sheet of exercises to do over the next 6 months and be back to pre-BC life. The physio was outlining exercises for "2 Years ++++". I'm like, "Is this cloud going to follow me forever?"
Hi ZarraTheStaffy ..... I am 8 years into my diagnosis, so hopefully staring down the 'NED (No Evidence of Disease) after I have my annual Mammogram and Ultrasound at the end of Nov.
Personally, I didn't need physio - so check with your team if you actually NEED it ...
My lumpectomy went pretty well - I only had to "NOT drive" or pick up stuff as I live in a rural/regional area & needed to drive home after the surgery (nor could I do washing/hanging out clothes or pick up grand kids or pets ..) and my recovery was also very good, really.
But, if you NEED to exercise as per your schedule..... make haste slowly. You are in this for the long haul - it is not always a quick fix. Your exercise routine will relate to the amount of surgery & whether you are having immediate reconstruction or not ..... so try not to get too hung up on 'after' the surgery xx
Just make haste slowly - if it goes 'too fast' & you are not sure of the steps .... back off, ask for clarification & (I am assuming you've been connected to a Breast Care Nurse) you can ask them about future 'stuff' - or better still, ring our Helpline on 1800 500 258 .... to chat with someone 'one on one' Mon-Fri, 9am-5pm.
Concentrate on doing stuff you LOVE doing, within the confines of your surgery/treatment ..... just don't overdue anything!!
Take care xx