Metaplastic TNBC , Effectiveness of Chemo

Hi Oplivelong​ I'm so sorry to hear about your diagnosis last year, I'm also glad to see you reaching out here after some anxiety from the ultrasound yesterday. While we wait for others to comment with their experiences and insights, you might also like to post this in the TNBC community group page to get some more eyes on your post :)

I am so sorry to see you joining our select little group here, the one group you never thought you'd be joining!   We understand what you are going thru tho, as we've 'been there, done that' as we've all received a BC diagnosis, had surgery, many have had chemo & other ongoing treatments.  Whack up ANY question about ANYTHING & we'll do our best to help you.

I see that you've joined the Triple Negative group which is good - as they will have a better understanding of your diagnosis & treatment/surgery and be able to guide you xx

If you put 'Metaplastic' in the search area, quite a few posts come up mentioning it.   Reading thru some or all of the posts might also help you as there may be snippets of info that no-one else has mentioned.     The link to the 'search' is here:
Search | BCNA Online Network

Check out this link too, for a bit of info on the forum - There is HEAPS of info in the link below to help you navigate the blog, including some tools to evaluate your own physical and mental recovery thru your ongoing treatment! xx.
https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737

As you'll be having treatment for some time, ask your GP for an Ongoing/Permanent referral to all your specialists. It just takes pressure off you knowing you don't need to get it done yearly and the stress & upset of it running out prior to an appointment, as can happen.  😪  

Anyone with cancer will be seeing their specialist team (Surgeon/ Rad Onc and Medical Onc - it can include a lymphodema specialist too) for a minimum of 5 years (even up to 10 years for the Medical Onc) so your GP should automatically give you a ONGOING/PERMANENT REFERRAL!! 

Take care & all the best with your ongoing treatment and surgery xx

I know you have shared your own story in the past Fufan​ - your lived experience of metaplastic TNBC perspective may be helpful (If you would like to share 🙂)