Forum Discussion
positive3negati
12 years agoMember
Unhappy News
Unhappy news: The pathology shows active cancer.
DCIS but it had started to become invasive.
This is not an option we were expecting.
I've asked my surgeon to find out the mitotic rate. I want to know if this is the same cancer or if I'm one of those rare, unlucky people for whom radiation and/or chemotherapy have caused a more aggressive mutation.
My doctor is recommending a mastectomy. If it's survived chemo and radiation it's too aggressive to risk it. Sad.
I'm still happy with all of the choices I've made because there was a chance I might have saved the breast.
I'm definitely having the mastectomy.
My only decisions now are one breast or two and reconstruction or not. I'm going to take a bit of time and do a bit of research.
The worst part about this news is that it does not bode well for my long term survival chances.
Of course I'll keep fighting.
Of course I'll keep enjoying life and all the wonderful people in it.
I might beat the odds and I might not.
When you ask your surgeon for a prognosis and she tells you that one of her patients with cancer like yours is still with us after four years (wow...four whole years) it starts to sink in.
Triple negative, basal, high mitotic rate, grade 3, aggressive, invasive and with a high chance of metastasising.
It is what it is.
17 Replies
Thanks so much. I hear great things about your group from many people. What a wonderful thing to do.
I did, briefly, consider reconstruction but I've decided not to have it. I'll probably write a blog about my reasons.
It's such a personal decision (could anything be MORE personal?) and I now have a much better appreciation of the appeal for so many women, but it's not for me.
XXX
Hi Meg,
I have been following your blog a little and am so sorry to hear your situation has changed, but you seem very strong and its wonderful to see you have found support here to help make your decisions. I just wanted to flag with you the Breast reconstruction online group in case you wanted to speak to more women who have chosen reconstruction and what it means to them. Many women have joined to help with their decisions, not everyone goes for it for a variety of reasons. If not, you are of course welcome anytime in the future if you change your mind down the track. The good thing is that we have these options.
All the best, Louie
- finitaMember
Mu mum was also big breasted and 20 years ago all was very different. the poor soul wanted both breasts removed but they insisted on just the one. sadly , her good breast in time became double the size and it was such an inconvenience and horror, but the doctors still did not want to remove it. Poor darling, today she is in a nursing home and 86 and still with the one sagging useless breast and it breaks my heart. I was diagnosed last year and i aksed the surgeon about the mastectomy, but he told me ( I am small breasted) that a lumpectomy will suffice and the 3 nodes removed plus 30 sessions of radiation therapy. I recently had another core biopsy, and gladly it was good , so I was able to breathe again. In the future should my cancer come back, i will insist on having a double mastectomy as I value and love my life.
All the very best for you operation, and please take good care and never stop loving yourself just that little bit more everyday. Be strong !!!
Lots of hugs
Finita xxxxxxxxxxxxxx
It's great to hear from women about great mastectomy outcomes. I'm sad but looking forward to having that risk removed.
Love
Meg
X
I was thinking of you too! I'm thinking double mastectomy without reconstruction is the way to go.
Much love
Meg
X
Oh WoW Michelle, I so needed to read this today. Like you, I'm leaning towards bilateral mastectomy with no reconstruction. I think if I keep the healthy breast I'll just keep panicking about recurrence. I'm also large breasted so having one big one is an issue. The surgeon suggested breast reduction as an option and I thought 'why not just have it off and be done with it!'. The only thing that's been concerning me is the possibility that this cancer 'likes' breast tissue and that losing all of it makes it more likely to come back in another part of my body. I've written to the triple negative breast cancer foundation in the UK to ask if they know of any relevant research into this. Barring any problems there I think I'll just feel much happier without breasts. Dangerous buggers, aren't they!
My very best wishes to you and thank you so much for your comments. This is exactly what I needed to hear. 17 years and the same pathology. I'm going to ring my daughter and tell her! XXXXX
I really love hearing from people in your situation. We must never give up hope!
Big hugs back at you.
Meg
xxx
- SilksMemberI had my single mastectomy just over 2 weeks ago and have opted to have my other breast prophylactically removed after chemo. I found the mastectomy VERY bearable and I felt relieved in many ways once the breast had been removed. Even so shortly after my operation I can already say that I have no hesitation in having the second breast done. It is so difficult at first to make some of the decisions we are confronted with, but you will find the initial confusion does settle and you will make the right call. Give yourself a little time to process. Keep us posted, we are on this journey with you xox
- Sue_in_FNQMember
Such an unexpected outcome !
I wish you hours and days of clarity and strength, to make the decision that is right for you and your family. (I have my double mastectomy booked for Wednesday next week, and am opting for no reconstruction).
Breast Cancer has many "shoes" ... and we each stand in our own. This site has blessed us with the opportunity to hold one another's hand as we share our diagnoses and victories. Please let us know what you decide, so we can walk the BC road with you, regardless of what "shoes" we are wearing xx
- Sue_in_FNQMember
Such an unexpected outcome !
I wish you hours and days of clarity and strength, to make the decision that is right for you and your family. (I have my double mastectomy booked for Wednesday next week, and am opting for no reconstruction).
Breast Cancer has many "shoes" ... and we each stand in our own. This site has blessed us with the opportunity to hold one another's hand as we share our diagnoses and victories. Please let us know what you decide, so we can walk the BC road with you, regardless of what "shoes" we are wearing xx