Sydney together
Comments
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We try to be up and positive most days, but then some things are just not fair! Lee, you are such a bubbley fun loving person. I remember at the BCNA events ,when ever I looked your way, there was always a huge smile on your face. You were enjoying every moment bonding with the girls. We will miss you in Sydney. You may be far away in distance, but you are there beside us in our hearts.
I will be thinking of you on the 26th and sending you healing thoughts for a speady recovery. XXXXX Ann
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You are such a little trouper. Small in stature seems to build strength. We will all be thinking of you on 26th and sending you love, support, strength and whatever else that you might need to "mend" you as quickly as possible. Your amazing smile just emits strength and happiness - even if it isn't happiness for yourself you are sending it out to others. We will miss you but will also know that next time we see you and have the opportunity of hugs that you will be "freeer" and SHINING as the old Lee that we have come to love. You will never be alone now that you have US. XLeonie PS I am sailing along okay now that I know that my back pain is not coming from any sinister.
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Hi my wonderful pink sisters. Yesterday I rang my specialis's office (they were just about to call me) to find out the results of the CT scan. All clear - what a relief (Bill could see a change in me instantly even though I thought that I was not showing any signs of worry) I still have the back pain but what tha............I can take it a whole lot better now knowing that the chiropractor can help me when I go home. I will wait to have it all explained to me but I think it must be degenerative spine issues. I will definately be working closely with her to get my old self back. Never had any cortizone injections before but will do anything to get to Sydney and of course my fifth wedding anniversary celebrations the week before. It sure is about quality of life - not only quantity. On that note, I made a decision this morning that today is the last day of Arimidex for 2012 for me. The Chiropractor found that I have practically no muscle strength and of course I ache all over most of the time. I will give it a "go" and see if I can build up my strength without the side effects of Arimidex. If it works to help my back then I will make another decision about the Arimidex in 2013. I have tried lots of tests and interventions to elevate my aches and pains and the same conclusion always shows up - Arimidex. Taking it out of the equation for 3 months may give me some other results. Love you girls forever - meeting you all has been my blessing in life. XLeonie
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Hi my wonderful pink sisters. Yesterday I rang my specialis's office (they were just about to call me) to find out the results of the CT scan. All clear - what a relief (Bill could see a change in me instantly even though I thought that I was not showing any signs of worry) I still have the back pain but what tha............I can take it a whole lot better now knowing that the chiropractor can help me when I go home. I will wait to have it all explained to me but I think it must be degenerative spine issues. I will definately be working closely with her to get my old self back. Never had any cortizone injections before but will do anything to get to Sydney and of course my fifth wedding anniversary celebrations the week before. It sure is about quality of life - not only quantity. On that note, I made a decision this morning that today is the last day of Arimidex for 2012 for me. The Chiropractor found that I have practically no muscle strength and of course I ache all over most of the time. I will give it a "go" and see if I can build up my strength without the side effects of Arimidex. If it works to help my back then I will make another decision about the Arimidex in 2013. I have tried lots of tests and interventions to elevate my aches and pains and the same conclusion always shows up - Arimidex. Taking it out of the equation for 3 months may give me some other results. Love you girls forever - meeting you all has been my blessing in life. XLeonie
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Big deceision Leonie, but I can see why you would choose it. So many of us feel crap in so many ways when on Arimidex. I have the bone density of a 79 year old now and have had many other 'side effects'. I feel instead of actually being 56, some days i do feel 76! Not to mention the effects on our sex life:(
Good you have all the tests so you can feel good about taking the break from it. I have until February next year until my 5 years are up. Can't tell you how much I am looking forward to that day. We are lucky to have mediaction to help us with our journey, but sometimes I feel we are at the very early stages with the drugs. Almost like the first early experiments with other long gone drugs.
I really hope that you will find a positive change ex Arimidex. It will give me hope too. Can't tell you how much you and all the others mean to me, just to know you are there. X
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AH dearest Leonie, so it is the "old degenerative spine changes" !! SO good to be normal, even if we are ageing. The other choice is not enticing.
Lee- we think of you all the time! Ease off on the grog, though hehe.
Sunday cheers to all. xx
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Hi ladies
Great to hear your news Leonie hope all goes well with the next stage.
Lee, if you need to have a chat let me know. I had a double mastectomy back in 2007 & haven't had the girls replaced & actually haven't missed them at all. My oncologist has also chatted to me about having my ovaries removed ~ in the process of thinking about it at the moment. I know where you are at, I had a bit of a bad patch just recently. I think being faced with cancer progressing to my bones & losing my dad to collorectal cancer just all got to me. I hope you can find the new & improved "old Lee" soon. It may seem like an impossible task at the moment but hang in there & you will work through it in you own time.
Take care all ~ Kezz
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Hi ladies
Great to hear your news Leonie hope all goes well with the next stage.
Lee, if you need to have a chat let me know. I had a double mastectomy back in 2007 & haven't had the girls replaced & actually haven't missed them at all. My oncologist has also chatted to me about having my ovaries removed ~ in the process of thinking about it at the moment. I know where you are at, I had a bit of a bad patch just recently. I think being faced with cancer progressing to my bones & losing my dad to collorectal cancer just all got to me. I hope you can find the new & improved "old Lee" soon. It may seem like an impossible task at the moment but hang in there & you will work through it in you own time.
Take care all ~ Kezz
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I could see all the messages building up on my emails, have only jusgt had the chance to read.
Very glad the Lee can talk to Kerrie if needed, what a shitty time you have had of it. I remember wondering where the happy girl went during chemo- I really missed euphoria, something you just cant do when faced with such huge challenges ahead. Lee hang in there, love seeing all your lovely pics on FB, and look at you - still out raising awareness in the midst of a very ordinary time (Reminds me of someone else Kerrie). Your are so inspiring, both of you girls, just absolutely INSPIRING !!
Leonie, good on you. The drugs are shit, and there are no guarrantees, a decision that you wouldnt have made lightly.
Am sure you remember that after many many attempts and a lot of guilt and soul searching I too had to bail - my oncologist encouraged it in the end - in fact he was against my last attempt at managing the drugs. Maybe later on you can try again, I will be for sure, am not giving up completely.
As for our sex lives- dont forget PJUR from the Passionfruit ? Online shop in Melbourne, remarkable stuff for sex, makes everything so slippery, you nearly get launched out of bed ba ha ha
Remember we are all different - that is what makes each and everyone of us unique.
Know all of you who are unable to make it that you will be there in spirit, in our spirits, it wont be the same without you, but just as much as it will be hard it is only a few days in the big scheme of things, and am guessing next year there will be a MCG Field of Women Live and WE WILL ALL BE THERE TOGETHER AGAIN
all ponchoed up.Love to you all ALWAYS, I feel so terribly blessed
ros xoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxooxxooxoxoxoxoxoxoxooxoxoxoxo
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I could see all the messages building up on my emails, have only jusgt had the chance to read.
Very glad the Lee can talk to Kerrie if needed, what a shitty time you have had of it. I remember wondering where the happy girl went during chemo- I really missed euphoria, something you just cant do when faced with such huge challenges ahead. Lee hang in there, love seeing all your lovely pics on FB, and look at you - still out raising awareness in the midst of a very ordinary time (Reminds me of someone else Kerrie). Your are so inspiring, both of you girls, just absolutely INSPIRING !!
Leonie, good on you. The drugs are shit, and there are no guarrantees, a decision that you wouldnt have made lightly.
Am sure you remember that after many many attempts and a lot of guilt and soul searching I too had to bail - my oncologist encouraged it in the end - in fact he was against my last attempt at managing the drugs. Maybe later on you can try again, I will be for sure, am not giving up completely.
As for our sex lives- dont forget PJUR from the Passionfruit ? Online shop in Melbourne, remarkable stuff for sex, makes everything so slippery, you nearly get launched out of bed ba ha ha
Remember we are all different - that is what makes each and everyone of us unique.
Know all of you who are unable to make it that you will be there in spirit, in our spirits, it wont be the same without you, but just as much as it will be hard it is only a few days in the big scheme of things, and am guessing next year there will be a MCG Field of Women Live and WE WILL ALL BE THERE TOGETHER AGAIN
all ponchoed up.Love to you all ALWAYS, I feel so terribly blessed
ros xoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxooxxooxoxoxoxoxoxoxooxoxoxoxo
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We couldn't have done this 20 years ago!! How wonderful to be able to communicate openly and instantly with each other, sharing and giving support at distance. I know we had the telephone, but it wouldn't have been a shared conversation. I hope we all feel that anything can be said without judgement.
I am so grateful to know you all, xxxxxAnn
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Ros- passioinfruit by name and nature eh? Sylk is kiwi fruit- I wonder how people find these things work! lol.
Yes all, we support each other cos we care and it is a 21st century wonderful thing to be able to do. We have to work out the total kilometres that divide us... but they don't matter one bit.
Strength to Strength !!
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