Newly Diagnosed
Neene
Member Posts: 4 ✭
Hello Everyone, I have been newly diagnosed this week and was absolutely blindsided by it. Went straight GP he sent me of for mammogram, ultrasound an biopsy. Got my results on Thursday and have been mess since, in my mind thought it was just fatty tissue or a cyst. It so far hasn't attached to an tissue around it and lymph nodes all good and hormone Receptor negative. My other breast is all clear. It is fast growing and aggressive have a Surgeon appointment Tuesday. so grateful to have found this site.
3
Comments
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So sorry to see you joining us here @Neene - but great that you found us. We've 'been there, done that' so know exactly how you are feeling right now. xx. Lean on us & you'll get thru it easier, I reckon
Well done on finding it & acting on it. It is all a bit of a roller coaster ride, especially the emotions ... it is 100% normal to be sad, upset, angry & every emotion in between. If you find it all a tad overwhelming, give our helpline a call on 1800500258 - to have a confidential chat xx. (Mon-Fri 9-5)
Where abouts are you? If you add your general location (region/state) in your profile, members may be able to pass on info re services available to you in the area
Stay away from Dr Google, as a lot of the info is outdated & not relevant to your own diagnosis. Trust your team & breast care nurse for info on your treatment (or us!) You should be assigned a BC Nurse soon.
Take it all one day at a time, one hour at a time, if you need to .... try & keep nice & busy, doing things you love doing. You may like to cook up a few meals & freeze them, so you don't have to worry about it after your surgery. It is early days, so maybe decide who you want to tell initially - and maybe get a friend/rellie to act as 'gatekeeper' for you - to pass on info re your treatment every week or so, rather than you having to go over it all the time, again, again & again .... that will take a lot of weight off your shoulders. Some people set up a 'blog' or a private group on FB ...
Jump onto this thread for lots of info on the forum - and suggestions for what to take to hospital with you.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
All the best with your Surgeon's appt on Tues and record your meeting on the phone - make sure you have a trusted friend or family member with you at all your early meetings - 2 sets of ears are better than one, as it is almost impossible to remember everything.
Here are some questions you may like to ask of the surgeon .... If you are going private for your surgery, also ask for a quote (as there is often a fairly large $ Gap that health funds/medicare won't cover.)
take care & all the best2 -
hi @Neene sending you lots of virtual hugs - this can be such a tough phase. For me I felt my worries reduced once my additional diagnostic tests had come back and my treatment plan firmed up. After that, for me, it was a case of “let’s get this done”
If you can, it might help to keep doing the things you love over the days ahead (film, exercise, or family maybe?) or your routine work (and to the extent you can, keep the diary open for attending any medical tests) because it might be a way of distracting yourself for a few hours.
Sending you best wishes 🌸🌷1 -
Early detection, good. Lymph nodes clear, good. Proactive GP, good. Allow yourself to feel a little relieved. It’s a shock but life can throw up shocks - this is one you can deal with. Many people get through this without too many horrors, there’s a post cancer life, best of luck!2
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Thank you so much for all this information, that has helped a lot. I have the rare triple negative type and the roller coaster continued this week, so far have seen my surgeon and Oncologist so i am now trying to come to terms with the treatment plan. Chemo 6 months then lumpectomy and then 4 weeks radiation.arpie said:So sorry to see you joining us here @Neene - but great that you found us. We've 'been there, done that' so know exactly how you are feeling right now. xx. Lean on us & you'll get thru it easier, I reckon
Well done on finding it & acting on it. It is all a bit of a roller coaster ride, especially the emotions ... it is 100% normal to be sad, upset, angry & every emotion in between. If you find it all a tad overwhelming, give our helpline a call on 1800500258 - to have a confidential chat xx. (Mon-Fri 9-5)
Where abouts are you? If you add your general location (region/state) in your profile, members may be able to pass on info re services available to you in the area
Stay away from Dr Google, as a lot of the info is outdated & not relevant to your own diagnosis. Trust your team & breast care nurse for info on your treatment (or us!) You should be assigned a BC Nurse soon.
Take it all one day at a time, one hour at a time, if you need to .... try & keep nice & busy, doing things you love doing. You may like to cook up a few meals & freeze them, so you don't have to worry about it after your surgery. It is early days, so maybe decide who you want to tell initially - and maybe get a friend/rellie to act as 'gatekeeper' for you - to pass on info re your treatment every week or so, rather than you having to go over it all the time, again, again & again .... that will take a lot of weight off your shoulders. Some people set up a 'blog' or a private group on FB ...
Jump onto this thread for lots of info on the forum - and suggestions for what to take to hospital with you.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
All the best with your Surgeon's appt on Tues and record your meeting on the phone - make sure you have a trusted friend or family member with you at all your early meetings - 2 sets of ears are better than one, as it is almost impossible to remember everything.
Here are some questions you may like to ask of the surgeon .... If you are going private for your surgery, also ask for a quote (as there is often a fairly large $ Gap that health funds/medicare won't cover.)
take care & all the best
Emotions are all over the place and it is still very surreal.3 -
Thank you for your comments, feeling bit better now we have treatment plan in place. My diagnoses was triple negative aggressive tumour, so my treatment options were a little less, but am so thankful and lucky it has not attached to anything around it or spread to lymph nodes . 6 months chemo then surgery and 4 weeks radiation. Emotions still very raw and surreal next week is staging tests than start chemo week after.
Like you all said keep busy and that is why i am going back to work next week. More so to keep myself surrounded by friends who have been amazing. Thank you again
Janine1 -
@Neene, Please consider joining the Triple Negative Group at the link below - you'll be able to chat with them in private about the treatment & and any queries you may have xx You are not alone xx
https://onlinenetwork.bcna.org.au/group/30-triple-negative-breast-cancer-tnbc
Wishing you all the best for your chemo & ongoing treatment xx2
