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Treatment

Is anyone on Tamoxifen and how are you finding it?
Why was it suggested that you go on it?

Comments

  • Aska
    Aska Member Posts: 81
    Hi there
    I started tamoxifen July last year post lumpectomy and radiation of Estrogen and Progesterone positive cancer. T took me about 10-12 weeks to adjust.  
  • Pru
    Pru Member Posts: 9
    Hi Slonmiski, I've been on Tamoxifen since I completed all my other treatments in 2021.  It was initially difficult to adjust to as I wasn't in menopause when I started treatment and it was only induced by my chemo but now my menopause is well established I don't notice any specific symptoms. 
    Even when I was experiencing symptoms - hot flushes, sweating, sleep disturbance, low grade nausea it was all manageable compared to everything that went before it in the treatment journey.  I trialed another aromotase inhibitor last year but found the side effects overwhelming so I'll be on Tamoxifen for minimum 10 years due high risk of recurrence.  
    I think all the usual advice really applies for incorporating it into your system - lots of hydration and lots of physical movement in whatever way is good for your body.  I see it as one of the many things I can do to maintain the best health I can. Is your oncologist recommending for you?
  • slonimski
    slonimski Member Posts: 11
    My radiologist has suggested Tamoxifen.
  • arpie
    arpie Member Posts: 8,324
    edited July 2024
    Hi @slonimski - welcome to the forum - sorry to see you join our exclusive little club (that most don't expect to join!).  You can read up more on the 'blog' here .... feel free to check out any of the links - we show off our gardens, art & craft, furkids & much more .... plus even have a laugh now & then!
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest

    Feel free to fill us in on what treatment you've had so far .... what your diagnosis was & how far along your treatment plan you are.

    Have you seen your Medical Oncologist yet?  THEY are the ones who will advise you on which hormone blocker you will be taking - not your Radiologist (who is trained in a different field.) After my surgery, My surgeon suggested that I would be put onto Tamoxifen ..... but my Medical Onc started me on Letrozole, then Exemestane, and finally, the one that suited me best, Anastrozole (for the last 5 years!).  LOL ... Tamoxifen is the only  Hormone Blocker I HAVEN'T tried!!!  

    Take care & all the best
  • slonimski
    slonimski Member Posts: 11
    The person that advised me is a Radiation Oncologist.
    My medical Oncologist did not mention it.

  • arpie
    arpie Member Posts: 8,324
    @slonimski

    Your Medical Onc is the one who should be advising you on the Hormone Blockers, not your Rad Onc .... I didn't start mine til after I'd finished my 4 weeks of Rads ....  

    Aromatase inhibitors (Letrozole, Exemestane and Anastrozole) are usually more effective than tamoxifen in postmenopausal women ... so your age & 'stage' of menopause is all a part of deciding which meds you'll end up on.

    take care
  • Julez1958
    Julez1958 Member Posts: 1,323
    Hi @slonimski
    I always ask my medical team “ what would you do if it was you”.
    The medical specialists we see have spent a great many years getting their qualifications and then getting experience so I figure we should take notice of what they recommend.
    You  may not have side effects but the evidence is they are quite effective in preventing a recurrence so it’s worth at least giving them a go 😊