Triple Positive Breast Cancer
Comments
-
I hear you @Ned01 I am sure mustering up motivation for more surgery is digging deep.
As @arpie described, the feeling of tension and sensitivity in the area of the operation and from the scar near the lymph node has continued for me but it doesn’t for everyone- and my sensitivity is not in a way that is super painful or constant - it’s certain postures or if any pressure is applied. I am actually seeing a physio who specialises in post breast surgery scarring and recovery this afternoon. So it’s positive to know there’s incredibly skilled people who can help.
I had a laugh when I was wincing during an ECG ultrasound and apologised to the technicians - she said some of her patients do experience it and “…there’s probably a bit of stretching and bruising going on in your breast after a lumpectomy… same suitcase but packed differently” ☺️
hopeful that this is just a matter of time- certainly I can feel the tenderness has reduced in intensity.
@Ned01 My oncologist recommended I pause having Kadcyla whilst doing the radiation therapy. Having radiation therapy can tire some people (it did me) especially towards the end, so a pause worked well.Will be thinking of you next week 🌻0 -
@Ned01 sorry I didn’t properly answer your question - no I didn’t feel tired all the time.My energy levels were good in the morning but catching up or meals with friends after 5:30 pm (with the exception of NY Eve when I stayed out until 8:30 pm) weren’t possible for me. I had the problem of over estimating what I could fit in without coming down in a heap because I had been too ambitious!
You might be surprised and be able to get back into your garden.
I was well enough to commit to 2 mornings a week exercise program and an online course of study whilst doing the radiation therapy. I would take a rest about 2 pm in the afternoon and that would be enough.0 -
Thank you arple, not looking forward to that, it is 3 weeks since last surgery and arm still sensitive to touch feels more like a burn, massage does help though and it is not as bad as it was. I am so glad I found this site as it has really helped
1 -
Hi everyone, thankyou very much for your feedback. We have successfully added a new private group today for you all to keep the conversation going!
Click on the link below:
2 -
Got through my second surgery for lymph node removal okay, not so stressful due to the kind hospital staff, arm is sore but not as sore as the first surgery, hopefully it stays that way, back to Doctors next week for results fingers crossed its good news, so resting now until new treatment Kadcyla starts on the 14 August. Just taking each day as it comes. Glad to hear a new group has formed for TPBC
3 -
@Ned01 also triple positive (her2) diagnosed sept last year. Indeed it's been a trying time but forums like this, support groups, family and friends have been amazing. Hope you are doing well. Am here if you want to chat directly aswell. All the best for your results and recovery from surgery x2
-
Hi @Ned01 and @Cheri its great to see a couple of people who are also “triple positive”!
I will start a conversation and would love to hear your experiences in the new triple positive private group discussion https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc
1
