Newly diagnosed and has spread to bones and liver

Jano
Jano Member Posts: 2
I literally found out 2 weeks ago that I have breast cancer. I just got back from an appointment today after all my scans to be told that it’s spread to my liver and bones. I’m absolutely shocked and terrified. I’m HER positive. I’m having a PET scan done to confirm about bones and liver and told surgery is not an option for me. Anyone else in the Sam boat as me? Any storie of hope out there? I’m only 45 and have 3 young kids. I don’t want to die! 

Comments

  • Julez1958
    Julez1958 Member Posts: 1,246
    Hi @Jano
    There is a private group on here Living With Metastatic Breast Cancer you can ask to join.
    This will al be a huge emotional roller coaster for you so I repeat what my GP told me when I was diagnosed with breast cancer - take someone trusted to all the early important medical appointments as you won’t take everything in .
    Breast cancer treatment has come a long way in recent years and new discoveries and clinical trials are happening all the time .
    There are ladies who have lived a long time with stage 4 breast cancer and HER 2 is a type that has a number of possible “ lines” of treatment.
    There are lots of resources on here and don’t hesitate to call the helpline.
    Also , consider getting some counselling from someone who specialises in cancer related distress - your medical team should be able to refer you .
    Take deep breaths and accept the many offers of help that will come .
    Take care 🌺
  • Jano
    Jano Member Posts: 2
    Thank you to those that have responded. Your hope and encouragement means a lot 🥹 
  • ruralmum2
    ruralmum2 Member Posts: 14
    Oh @Jano I’m so, so sorry you’re going through this. I’m just new to this journey too, but still awaiting appt with surgeon, scans, etc. so I don’t have anything useful to tell you sorry. Just sending you the biggest virtual hugs. Maybe when you have free time, talk to your McGrath nurse or one of your other amazing nurses about your situation & maybe some counselling? 
    Gosh, what a terrible shock, hoping your nearest & dearest can step up & support you at this time xoxo

  • cactusk
    cactusk Member Posts: 71
    @Jano
    I echo the sentiments above. The first few weeks are crazy, there is so much to get your head around. The waiting is interminable, but as noted above, take someone with you to your appointments. I continue to take notes and add them to my diary.
    I have found so much information, understanding and like minded souls who are also experiencing their own 'journey' on this forum. It continues to be a safe and understanding place to be heard.
    Day at a time. Sending love,
    Kelly
  • Blossom1961
    Blossom1961 Member Posts: 2,489
    @Jano I have Her2 + in my bones. I met a lady in hospital who had been on the same line of treatment for seventeen years and was still going strong. I was diagnosed with Mets nearly two years ago and the treatment is holding well. Don’t give up hope. Her2+ has lots of treatment options. I was treated with Paclitaxel first to kill as many of the little blighters as possible, followed by Herceptin and Perjeta to hold them at bay. I also have Zoledronic acid infusion once a month to strengthen my bones so the cancer has trouble attacking them. Sending big hugs