Why not join the Living with metastatic private group? Access group via the link here.
Newly diagnosed - Just need some positivity and hope
Comments
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I am so sorry to read of your diagnosis, @Jacqui64 - this really is the mongrel that keeps on giving!
Vent here all you like - you are totally allowed to be angry, upset and all the emotions you've been thru already .... having a really supportive family is just terrific.
We are here for you to lean on when you need that extra bit of strength .... take care & all the best with your upcoming appointments - don't forget to record them on your phone, in case you miss (or forget bits) .... you can go back to it later if you need to. xx
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Hi @Jacqui64. I love that you went for a 7km walk! That's the kind of thing I do.
I am not in your position but from this forum I know that some people live with Stage 4 for a very long time. You could just about say indefinitely for some.
You'll know from last time that this great shock will pass. Yes, there'll be treatments but what else? Make some plans, make some memories. What would you like to do? Book it, make it, plan it, trek it, throw it (party or ball!), paint it, breathe it. You are not your cancer. You will always be more than your illness.
It's truly f****d Jacqui so you bloody get to cry as much as you want. I'm sending you the biggest of hugs. One of those long enveloping ones that releases oxytocin and ends up with us giggling as you've snotted on my shoulder and I've cracked a lame joke about it. Hang in there lovely, hang in there. K xox
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Jacqui64 Hi, Yes I have always been a planner too, but when I was suddenly diagnosed everything changed. I decided to not look to far ahead, take it a day at a time, and for once in my life I have put myself first and I feel good about that. I feel so good that I have friends here that I can ask questions and not feel uncomfortable about it. Discussing it with others that are going through it and can give you the information that will help get us through. Its amazing. I am very lucky that I have an amazing husband who is so supportive and I know I can lean on him when needed. Sending you lots of hugs xx Cheryl
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Just read your post hope you are a bit more settled and traveling ok. I am 53 and have been living with bone Mets for 7 years after getting a 10 year all clear . I was 35 when I first got it. It does get easier and there is hope, I am still here and have a good happy life ♥️😀7
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Hankster - Thank you so much for this message. I am a little more settled now, but still going through the weekly blood tests, trying to work out which medication will be the best, and cause the lease problems on my body. It's so strange to get a phone call to say that my liver is unhappy, because I feel so strong, and I'm walking for an hour or more every day. It's something I'm learning to get used too, but I really hope we can settle on a medication soon. I ended up getting an anti anxiety/depression medication, because I decided that it was all too much to deal with, and my body just needed a break from the constant anxiety. It's actually helped me to be more productive, and I've found the fight again, which I think is the most important thing. Hearing that most people are living "normal" lives is a huge comfort. Even today I was wondering if I would ever stop thinking about it ALL the time. I hope you continue to have the greatest and happiest life, and again, thank you so much for checking in. xxxxxxxxxxxxxx
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Hi Jacqui64,
I responded to your other post about Kisqali but thought I'd pop in here to let you know a little about myself which should help a little as I know how much comfort I took from the ladies in this group! I was diagnosed at the end of 2018 at 40, after having early breast cancer in 2016. I was diagnosed stage 4 with bone mets and was lucky that I kept saying I felt a little unwell, like constant nausea, almost like a hangover or morning sickness. That was literally my only symptoms. I was diagnosed just before xmas, & was convinced my life would be over and I'd be organising a funeral and people to care for my 2 teens before the following xmas! Happy to say that nearly 2 years down the track, I'm still working part time(haven't been full time since before kids), am a single mum to 2 very busy teens who I ferry around constantly and am generally doing really well. Haven't really used this year, so I'm not counting myself as ageing this year, as I'm in lockdown metro melb.
Yes, it is totally shit and I do have some really shitty days where I just want to crawl up under the doona and not come out, but those days are very few and far between now and I just get on with living the best life I can for the sake of myself and my kids as well as my extended family and friends who are my biggest supporters. The thing that I've found the hardest is accepting help, but I am learning to accept it when I need it and say yes to things when offered. I'm also better at saying no to things if I'm tired or it doesn't interest me enough to give up time with my kids or something. This might sound selfish, but if I'm going to be tired after attending something that I don't really want to go to, and that in turn affects my kids, I just don't do it!! Others will probably be able to explain that more eloquently than me, and yes it is late at night so probably not my best time to be typing.
Sending you much love, and yes there are many of us living well with mets!! Feel free to shoot me any questions, happy to help any way I can!!!6 -
Hi @Jacqui64 sending you massive cuddles and sister cry your eyes out hold your heart close and let the grief out. Im
Also recently diagnosed and still feel the waves of fear but more of hope. All these feeling are important, share them and let yourself be held on here and in your life,
much love to you 💜🌷x Nel
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