Awaiting results after surgery - Mjheke
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Hi @Kiwi Angel
I am fortunately at this stage only having Radiotherapy. I am from Auckland but lived for the last 19yrs in Orewa, just north of Auckland. We are both from NZ and moved here about 4yrs ago with a break back home for 9 months last year.
Work has so far been supportive of me having time off-I don't have a lot of sick leave unfortunately so will have to return whether I feel like it or not! ha ha.
M x
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@Mjheke - I was pretty luck and had about 3 months of sick leave up my sleeve so that took a huge stress off me.
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@Mjheke ..... I lived in South Auckland for 15 years to '99 (Weymouth.) I loved my time in NZ. We moved back to Aussie in '99.
That is great that your margins & nodes are clear (as were mine.) Just one less thing to worry about, eh? Mine was invasive lobular .... but caught early (I was VERY lucky!) so didn't have to do chemo.
Do you have a superannuation policy? Sometimes there is a health/sickness clause that may help with the financials whilst you are getting back on your feet. The Social Welfare officer at the hospital may be able to help with at least one bill up to $400, if that will help (Council or power bill) but it is a 'one off'. (I had lots of 'medical payouts' up to $6000, so found this helped us big time.)
Most of us have found the 'mental anguish' to be much worse than we anticipated, along with the physical pain & discomfort. There may also be memory/sleeping issues (not sure if from anaesthetic or anxiety) that may impact your daily activities for some time .... all these things may affect your ability to work full time, initially.
I hope that you have an understanding boss! All the best for your ongoing treatment xxxx
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Thanks so much @arpie
How funny you used to live in Auckland!
I do have a superannuation policy and have checked it and have a stand down period of 90 days so not really helpful...
I am definitely having some memory issues-sent my husband my CV today and I cannot remember doing it! I feel exhausted all of the time, although I am walking and doing my physio exercises daily as I see this is something that everyone sees as vital both on the forum and in other information I have been reading.
I have a really good boss when it comes to things like this and I am grateful for that.
Thanks again xx
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Hi @Mjheke, like you, I'm a nurse, also a midwife. I had neoadjuvant chemo, WLE and axillary clearance then radiotherapy. Unfortunately, I developed lymphoedema within about 6 weeks of surgery, which effectively ended my clinical career. I've been lucky to find a couple of non clinical roles since then, that I've been very happy in. Perhaps, when you feel up to it, talk to your workplace about what sort of non clinical roles may be available, and what you may need to do to be considered. I suggest this, because I couldn't afford the loss of income that walking completely away from nursing would have meant. You will have a wealth of knowledge and experience to draw on. Your workplace may also be willing to look at something to help you get back to work that isn't quite as physical as bedside nursing
Take care2 -
Hi @lrb_03,
thank you for that. Unfortunately my current workplace does not have any non-clinical roles. I work in occupational health. I do pre-employment Medicals mainly. I do medical, measurements and functional capacity evaluation. It is physical in that I lift weights and show people how to do full ROM. At the moment I cannot get my arm higher than about 60% abducting and limited in my extensions, flexion and interior rotation is not possible. I will have to use my words and just one arm to explain what I want to see. But the lifting, pulling and pushing is sometimes unavoidable. I’m not sure what i’ll do.
I am returning to work Monday, financially I have no choice. Do I feel ready? Not at all. I have a large seroma that has formed in the breast/axilla and gets extremely painful especially towards the end of the day. Particularly when I do too much. Because of this discomfort, I have not yet driven as when I am in the car, I have one hand supporting my breast over the bumps and I’m not sure how I would go if I had to manoeuvre quickly or stop suddenly due to my pain and limited ROM. I do my physiotherapy exercises daily but the swelling of the breast pulls and stops me from going further. I am a bit worried about chording. I am going to drive today just to see how I go. Basically the same with work, I’ll have to see how I go.
Emotionally I don’t feel ready either....0 -
Are you seeing an oncology physio for the movement and potential cording. I see one who does laser therapy as well as physical manipulation and it has worked wonders. It is pricey though but I'm currently on a health care plan for it.0
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@Sister
I didn’t know there was one. I am going to make an appointment with My GP Monday to see what I can do. I also am hoping to see a psychologist who specialises in BC. I have been on medication for depression anyway for the past 6 months and had been feeling really good up until this diagnosis and the post surgery effects. I miss my old life!
Thanks,
M x1 -
HI @Mjheke,
I remember the bumps and boob clasping! We have a very rough farm ute and bouncing around in that was not particularly comfortable.. I took to using the soft bra tops and a nice big wide crepe bandage over to strap em down. LOL. Took away the bounce ouch.
I had WLE and full Aux clearance. Huge seroma and did have a bit of chording at the beginning. A couple of sessions with Physio sorted the chording pretty quickly once she showed me where and how to massage it. I found that doing way more of the arm above the head exercises (read that as hand painted a tongue and groove timber ceiling) than was recommended got my arm back in action pretty quick and definitely helped with the swelling and drainage. The exercises do hurt at the start definitely, used to make me feel quite nauseas for the first week or two. I still have to remember to do the full stretch above the head ones or it will tighten up a bit. I still have a bit of up and down swelling if I have done a lot of work through the day especially if it's hot.
Getting back to work actually helped me I think. More "normal" I guess. . I did have more of a break than you though and I only worked 2 days a week through chemo and rads.
As you say, just see how you go.
Look after you. xoxoxox
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Hi @Mjheke - welcome to the forum and wishing you all the very best going forward.
I had a double mastectomy into air expanders and was back at work 2 weeks later and driving. I was also very fortunate to be able to continue working throughout chemo and now, during radiation therapy. My work isn't physical however, it's very sedentary and most of it is on the computer so even though I have been going in to the office more often than not, I can work from practically anywhere. In fact, I was generally typing on my laptop with one hand, while having I/V chemo in the other arm hahahaha
The most important thing to remember is that it's such an individual journey. This is what was right for me, and you need to do what's right for you. Don't feel that you ever have to be more than you are - no matter how much you can do and at which stage, you are AMAZING just for getting through all of this in your own unique way. My story is just one experience on a very wide bell curve of how people manage with their cancer and I simply did what I was capable of doing at the time - nothing more, nothing less. Listen to your body and whatever you can cope with is enough. xxxxxx
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One tip with the cording issue. You've probably been told to do 10 of the exercises - it may be better to do 3-5 of them but hold each for longer so that you're getting a sustained stretch. That's what my physio told me but you probably should check that's okay before you take my word for it.
Firm massage in the shower works really well as the warm water helps. I've also found gentle kaying and SUPing is good as the paddling motion gets your arm working.2 -
Hi @mjheke
Seroma are a bloody nuisance and can be very persistent. Some surgeons advocate draining them, some don't, some say exercise helps, some say stretching makes them worse. Most seem to write them off as 'one of those things' which is really frustrating.
I've had far too much experience with them and, from personal experience, I think you are wise to keep an eye on the cording. Both my breast care nurses and lymphedema physio have told me there appears to be a correlation between excessive leaking and cording, but that is just anecdotal from what I can find out. Mind you, they see enough patients that I respect their opinion and I've had cording following all my surgery.
The whole issue seems to be a bit underplayed, I have never been given any information about either complication before surgery and have ended up with a seroma every single time. Bastard things. I've had them drained, not drained, massaged (yuk) vacuumed (more yuk) lasered, we've tried antihistamines ....nothing seems to make any difference. I had a whoppper in my axilla that delayed my last chemo for 6 weeks, the mongrel thing was producing 450 ml every couple of days. I'm an Olympic grade irritable leaker...It eventually started to septate then dried up in a couple of days. Hopefully yours will resolve quickly. Mxx
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Thanks @Sister
I am booked to see my physio today, I had an awful day yesterday. I returned to work, a reluctant one at that. Cancer is expensive, and I unfortunately do not have income protection (only a measly one through my super which has a 90 day stand down period), so an early return to work is required. Hard to manage when I was still having a Nanna nap up until Sunday! I have been exhausted, both emotionally and physically-Pain with the seroma is exhausting in itself. I managed the full days work, but by the end of it I was SO uncomfortable-my whole R side of my body and back, I think just trying to compensate for the discomfort. I called the breast care nurse and she got me in to see the surgeon who recommended another drain of the seroma-at this stage my breast was about twice the size of the other. I had 220mls drained off this time-almost 100mls more than the first time-no wonder I was in pain!
Thanks @Zoffiel , for your insight into seromas and your experience of same. I too think there must be a correlation between Seroma and cording as it has certainly limited my movement in the affected arm-I don't have as much range of movement as I am restricted by the pulling in my breast/chest. See above-had it drained yesterday and fingers crossed that if it does return, it will be in much smaller quantities!
M x0 -
Thanks @Sister
I am booked to see my physio today, I had an awful day yesterday. I returned to work, a reluctant one at that. Cancer is expensive, and I unfortunately do not have income protection (only a measly one through my super which has a 90 day stand down period), so an early return to work is required. Hard to manage when I was still having a Nanna nap up until Sunday! I have been exhausted, both emotionally and physically-Pain with the seroma is exhausting in itself. I managed the full days work, but by the end of it I was SO uncomfortable-my whole R side of my body and back, I think just trying to compensate for the discomfort. I called the breast care nurse and she got me in to see the surgeon who recommended another drain of the seroma-at this stage my breast was about twice the size of the other. I had 220mls drained off this time-almost 100mls more than the first time-no wonder I was in pain!
Thanks @Zoffiel , for your insight into seromas and your experience of same. I too think there must be a correlation between Seroma and cording as it has certainly limited my movement in the affected arm-I don't have as much range of movement as I am restricted by the pulling in my breast/chest. See above-had it drained yesterday and fingers crossed that if it returns, it is in much smaller quantities!!
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