Friday update 15 June 2018
Hello everyone and welcome to Fridays update. It has been a busy couple of weeks
at BCNA with lots of activity.
We have recently made changes to the
hours of operation of our helpline service 1800 500 258. BCNA’s helpline will now be open from 9am-6pm
Monday to Thursday and 9am to 5pm Fridays. As a result of the increase in the call volume
during working hours, the change in hours will enables us to concentrate our
resources during the day when the call volume is higher.
Our policy team recently posted about the
Breast Density survey which is being run on behalf of the Department of Health. If you haven’t completed the survey we
encourage you to do so. You can take the survey here: https://www.surveymonkey.com/r/BSApositionstatementonbreastdensity.
You might have already read our 2018 advocacy
priorities, but if not, click
here
We have updated the clinical trial webpage
and we will be featuring a ‘clinical trial of the month’ from now on. Here’s
the link to the new
page
Clinical
trial of the month click
here
Marianne and Rosie have been busy preparing to attend the Cancer Nurses
Society of Australia (CNSA) annual congress in Brisbane next week
on 21 to 23 June 2018. They will be
meeting with Breast Care Nurses (BCNs) from across Australia and plan to update
the nurses regarding available BCNA resources to ensure they can link women and
men into BCNA in a timely manner. Danielle
Spence, Director of Policy at BCNA, will be chairing the BCN pre-conference
symposium and our CEO Kirsten Pilatti will be addressing the BCNs about the
State of The Nation (SOTN) project. If you would like more information
regarding the conference please visit www.cnsacongress.com.au
Community highlights
Every week we
have so much variety in the posts being shared in the online network.
These can include questions about treatments, updates on how things are
going, and celebrating milestones. Here are some popular conversations you
might have missed:
1. Wobbly nearing the end of
active treatment
Great thread by kmakm, discussing what happens after the medical
oncologist says ‘see you in six months.’
How do you come to terms with the end of active treatment and what
happens when medical appointments slow down or end for six months? Good discussion re finding a new normal.
Great thread by Kym G, with
chemotherapy starting next week she has told her family that help is required
in the home while undergoing treatment.
Unfortunately she was met with some resistance and asked the forum what she
can expect from chemotherapy. Great
responses from our online community with some tips for getting the family on
board!
Great thread
by Kiwi Angel about the Memorial Sloan Kettering Cancer Centre ‘About Herbs’
app. Good
discussion regarding vitamins and mineral supplements and great to see that our
community is having the conversation with their medical oncologist and checking
that there are no contraindications with current treatment.
Community News
Webinar available:
Can-Sleep: Improving night-time sleep for cancer survivors. Peter MacCallum Cancer Centre
“Can-Sleep: Improving night-time sleep for
cancer survivors” was held on Wednesday 23 May at the Peter MacCallum
Cancer Centre in Melbourne. The session
was recorded and has now been made available through the following link: 
https://youtu.be/2-87yI0yM8s. The
video is not searchable through the YouTube site; access is only through the
use of this link at this stage. The
session includes 3 speakers from the department of Psych oncology at the Peter
MacCallum Cancer Centre and the recording is just under 2 hours..
We have been informed that
the Can-Sleep self-management booklet is in the process of being updated so that
it is better suited for distribution beyond the Peter MacCallum Cancer Centre. It is expected that this will take another month
or two before it is finalised and available. The booklet once finalised, will be available
for download from the Peter MacCallum Cancer Centre website. Will keep you posted regarding this booklet!
Invitation to a free online information session
If you’ve recently been diagnosed with
breast cancer, you may be feeling shocked, overwhelmed, or afraid. You may have
many questions about what you will face in the days, weeks and months ahead.
Navigating your way through all of the
information and advice you are given can be a very confusing and emotionally
challenging time.
Breast Cancer Network Australia is
hosting a free online information session for people recently diagnosed with
breast cancer.
The session will provide practical tips
about the information you need to help you through this time and guidance on
how to make the treatment decisions that are best for you.
Hear from leading experts, as well as a
breast cancer survivor, who will share tips on what she wishes she’d known when
first diagnosed and trying to make treatment decisions.
This is an interactive information
session, where you will have the opportunity to ask questions.
Please register at
webcasts.com.au/bcna270618/ or call 1800 500 258. You will need to have an
email address to log on to register for the webcast.
|
Event Date: |
Your local time WA: 5.00 pm |
Speakers:
· Caroline Baker, breast surgeon
· Kathryn Wallace, breast care nurse
· Renee Gani, breast cancer survivor
Julia Zemiro’s Home Delivery ABC TV
featuring Raelene Boyle
|
|
Julia Zemiro's Home Delivery Back for a sixth series, the playful and always entertaining Julia |
Pink Lady Luncheons
We would like to thank all of BCNA’s members, health
professionals, Community Liaisons, Consumer Representatives and volunteers who
kindly supported this year’s Pink Lady Luncheons by attending, volunteering and
assisting in the planning of the event. Because of you, this year’s Pink Lady
Luncheon series was a huge success with both luncheons selling out and over
$144,000 being raised for BCNA. You are all superstars and we can’t thank you
enough for your kind support – the luncheon wouldn’t be the same without you!
GriefLine's Children
& Youth Counselling programs.
The
Children & Youth Counselling program provides a safe space for
children/youths who are experiencing loss, grief & trauma as a consequence
of issues such as family violence, parental conflicts, bereavement, family
illness, bullying, anxiety & school refusal. The sessions are tailor-made
to suit the individual children and their interests. Using a family therapy
& person centered perspective, activities such as puppetry, painting,
crafts, therapeutic board games, play therapy are used to gently encourage them
express their emotions, understand their thoughts & feelings and together
find ways to manage them. This often includes collaboration with the
child/youth’s support network such as family members, school, GPs,
psychologists & social workers.
What
About Me! –
Is a 6-week support group aimed at primary school aged children. This workshop
focuses on children who have had a significant loss, a sibling/parent with an
illness, experienced bullying or lacking confidence or social skills. This safe
& friendly space allows children to interact with peers, express their
emotions, learn coping strategies & build resilience. The workshop involves
90minute sessions packed with fun-filled activities, a movie night & a day
of celebration, appreciating the uniqueness of each child.
National:
(03) 9935 7400
National:
1300 845 745 (landline only)
You
can also contact our office between 10am and 4pm, Monday to Friday:
(03)
9935 7444 www.griefline.org.au
Townsville Living Well Forum Friday 22 June 2018
Here is this fortnight’s quote from Rosie
‘To be poor and be without trees, is to be the most starved
human being in the world. To be poor and
have trees, is to be completely rich in ways that money can never buy’. – Clarissa Pinkola Estes
Hoping you all have a restful weekend, take care everyone
Giovanna
Comments
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Thank you Giovanna. Can't wait to get my hands on that sleep booklet!4
