I can't connect with my diagnosis..

Anne94

@Ellamary98, I too have a secret Facebook page that is specifically for my diagnosis. It takes the pressure of repeating myself, people can remove themselves if they want to as well. 

Ellamary98

Thanks, @Anne94. That's not a bad way to let the broader group know initially, either. It beats multiple conversations, without announcing it to the world at large. Aren't we fortunate to have these communication options? Thanks again, girls. You are a fabulous resource.xxx

Eastmum

Hi @Ellamary98 - I’m so happy to hear that your feeling more settled. 

I also did a trial run with two work colleagues before I told the world - one of them was really amazing, the other one cried - which I did not need - but it made me realise that I was going to get a whole range of unexpected reactions. 

It was really interesting actually - could be a great social studies thesis! People who I thought would be fine, collapsed into blubbering pools of emotion and that was bloody hard to deal with - especially because they took it harder than I did and they simply could not accept that I was not devastated like they were. Other friends were totally awesome - cool, calm and collected. 

Sending you tons of good wishes xxxxx

Ellamary98

Thanks, @Eastmum- that is so very true! xxx

Tennille

My mother told me in front of my 7 year old son that she lays awake at night thinking about where ill be buried

Ellamary98

@Tennille. Good grief!! This is exactly what I'm afraid of...One of my sisters is very likely to say something similar in front of my kids..I hope you had words with your Mum!

Kiwi Angel

@Tennille - OMG!!!

Eastmum

@Tennille - good lord! I have to be honest, I would have been tempted to reply 'well you'll never know because you'll be six feed under before I am' - guess I would have had to bite my tongue?

SoldierCrab

@Tennille
 when my mother did that in front of my boys with autism, I threw it back and said don't worry I wont be buried as I am donating my body to science.....  shocked silence by her.... 

Zoffiel

Gawd @tennille it must suck to be her sometimes. On the other hand, that she told you in that setting does show a degree of....not sure what. 
Little documented side effect of BC,  you can have episodes where your eyes cross then roll backwards while trying to keep your mouth shut.

Tennille

Its all good. I told her I was living not dying and to knock it off. Have 11 kids to raise and I am starting a Master's degree in July and I plan on walking across that stage on my own 2 feet when I am done!

Kiwi Angel

@Tennille u go girl!!!  xo

Sister

Some daughters do 'ave 'em!  I hope your 7 yo is okay.

Eastmum

@Tennille - you are an absolute legend! 11 kids - that’s incredible - what a blessing! What’s the age range? I’m in awe with 4! 

Ellamary98

Wow, @Tennille! 11! I have 5 and at times that's crazy. Like you, I am doing a Masters Degree, although I just have a final thesis to complete. Too much life to live-I have zero interest in slowing down right now. Good luck with your studies- what area of research?